stuttering

[Guest guest]

We've started our son on Pep and Culturelle about a week ago. Two

days ago, we added the Zyme. He's had problems in the past with

stuttering and I've noticed in the past few day he's doing it again(I

noticed it before we added the Zyme.)

Could this be caused by the Pep? Culturelle? Come to think of it, we

also added the Super Nuthera around the same time.

Shame, shame on me for trying multiple things at once but I hate

wasting even a minute if there's a chance of making his life better.

Thanks for your input...

[Guest guest]

I read some stuff on stuttering in Newsweek a few months ago. It

could be a result of your son having increased vocalization as

suggested. I like her idea of adding Magnesium because this is

recommended in conjunction with a number of things (like the SNT).

Mag helps relax the muscles (calcium promotes the contraction of

muscles) and is recommended for twitching, seizures and cramps.

Backing off and looking at things one and a time may help you pin

point the source as well

.

[Guest guest]

Thanks you guys! We're leaving for a week's vacation and I'm thinking

of leaving the Super Nuthera home to see what happens. He won't mind

a bit since he hates the stuff! LOL

His stuttering is whole words or phrases.He usually looks up at the

ceiling while he's doing it which is his " gears are grinding in the

brain look. " Something he does when he's thinking hard.

I've also noticed he's really pale and has circles under his eyes.

Could this be a sign of the die off?

[Guest guest]

My son has had problems with stuttering off and on since April -

right after he went GF, and about a month after starting SNT (no

other stuff).

we thought it was the increased language thing, ignored it, by end

of June it seemed better (not gone). the suddenly it came back with

a vengeance. THe only change seemed to be that he had gone a week

hardlly taking his SNT, and then he was taking it again.

I panicked and stopped the SNT. After about 3 weeks, the stuttering

was better, then stopped. There was a particular day when I

realized he was talking wonderfully. By that afternoon the

stuttering started to return, and by 3 days later was back but

different (more struggling, and " ummmmmm " to get something out,

less repeating of a syllable).

He is getting better, but still doing it.

I do not have the answer yet, but if you are about the first person

I've heard with a similar situation!

If you find anything that works, let me know!

-- Sue T, Adam's mom

> We've started our son on Pep and Culturelle about a week ago. Two

> days ago, we added the Zyme. He's had problems in the past with

> stuttering and I've noticed in the past few day he's doing it again

(I

> noticed it before we added the Zyme.)

>

> Could this be caused by the Pep? Culturelle? Come to think of it,

we

> also added the Super Nuthera around the same time.

>

> Shame, shame on me for trying multiple things at once but I hate

> wasting even a minute if there's a chance of making his life better.

>

> Thanks for your input...

[Guest guest]

Sue,

The mom that wrote the original stuttering post later found her

child's stuttering ceased after going off the Super-Nu-Thera (SNT)

permanently. Is your child still off the SNT? I'm assuming he is.

I would have a speech pathologist screen his speech. There may

nothing to worry about at all, but because he is struggling with

getting the word out rather than repeating a word, I would be more

inclined to have it checked. How old is your child? It is possible

it is due to adjusting to a burst of language or that now it is a

learned behavior left over from the SNT, but I would at least call

your local school district for a screening. They should provide

services even if your child is pre-school age. Meanwhile, make sure

you talk at a slower, but natural rate of speech. Talking too fast

can add stress as this is his speech model and worsen the

stuttering. Be a patient listener (I'm sure you are!) so he does not

feel pressured. Do not stress pronunciation at this point, again to

alleviate any pressure.

Let us know how he progresses.

> > We've started our son on Pep and Culturelle about a week ago. Two

> > days ago, we added the Zyme. He's had problems in the past with

> > stuttering and I've noticed in the past few day he's doing it

again

> (I

> > noticed it before we added the Zyme.)

> >

> > Could this be caused by the Pep? Culturelle? Come to think of it,

> we

> > also added the Super Nuthera around the same time.

> >

> > Shame, shame on me for trying multiple things at once but I hate

> > wasting even a minute if there's a chance of making his life

better.

> >

> > Thanks for your input...

[Guest guest]

If you found your son was stuttering more with the SNT, and he is

still stuttering on and off, you can look at other highly phenolic

foods which may contribute to this issue. SNT is an aggravating

factor to children with phenol issues, so I think if you reduce the

other highly phenolic foods in your son's diet, you may find that his

stuttering improves. Here is my information on phenols.

http://home.pacbell.net/cscomp/phenol.htm

>

> > > We've started our son on Pep and Culturelle about a week ago.

Two

> > > days ago, we added the Zyme. He's had problems in the past with

> > > stuttering and I've noticed in the past few day he's doing it

> again

> > (I

> > > noticed it before we added the Zyme.)

> > >

> > > Could this be caused by the Pep? Culturelle? Come to think of

it,

> > we

> > > also added the Super Nuthera around the same time.

> > >

> > > Shame, shame on me for trying multiple things at once but I hate

> > > wasting even a minute if there's a chance of making his life

> better.

> > >

> > > Thanks for your input...

[Guest guest]

CJ Dir wrote:

> Th stuttering with most apraxic kids is not actual stuttering- it is a

> word retrieval problem... d

Does anyone know of good websites that give a good explanation of and

different characteristics of each?

Thanks,

Barbara

NW PA

[Guest guest]

http://216.239.37.100/search?q=cache:u-342NmhDWkC:www.hwdsb.on.ca/instructionals\

ervices/support/Hearing/G118-131.pdf+%22word+retrieval+problem%22+stuttering & hl=\

en & ie=UTF-8

http://members.tripod.com/~Caroline_Bowen/wordretrieval.html

http://www.quest4kids.com/asa/tgcc/nuggets/aphasia_1.shtml

Re: [ ] Re: stuttering

CJ Dir wrote:

> Th stuttering with most apraxic kids is not actual stuttering- it is a

> word retrieval problem... d

Does anyone know of good websites that give a good explanation of and

different characteristics of each?

Thanks,

Barbara

NW PA

[Guest guest]

Hi !

Question -Then how do you know that stuttering isn't a word finding

problem too? Earl once said " Once a stutterer always a

stutterer " Let's ask him! Yet he and most stutterers don't stutter

when reading something. Apraxic children do much better when

given " visual cues " too. For those of you with older apraxic children

do they talk better when reading something? Tanner does (but he's

only 6 and on the easy reading books)

I once again encourage all of you to seek others in your area

through a support group. The CHERAB group meetings were the largest

support meetings anyone had ever heard of -most months with 70 to

over 100 people each month for over a few years. We got to see each other's

children -we all got to know each other. It's one thing to read

some research on a small group -it's another to see what is most

common in apraxic children by seeing it.

I do believe that there could be possible overlaps between

stuttering and apraxia based on the number of children in our group

who go through this once they begin to talk, and based on the

knowledge that many conditions of communication impairment can

overlap. It's known there can be overlaps between apraxia and

dysarthria -and apraxia and dyslexia/ADHD/learning

disorders/autism/hypotonia/DSI/SLI too -so why not stuttering? Here

are some other conditions stuttering can overlap in.

http://web.nmsu.edu/~lleeper/pages/Fluency/SPED/

How can anyone say for 100% sure what apraxia is or is not when

there has been up to date virtually no clinical research and almost

no awareness.

I had an SLP that told me that apraxic children that stutter aren't

stuttering -they are " dysfluent " I question everyone -and I still

keep my open mind, my questions, and my doubts. I don't believe

I'll have any strong beliefs about what apraxia is or is not until

there is at least some neurological research done on it. It's way

to soon to shut the door to this case even though I know in the

world of speech some have. I'm sure in some textbook somewhere

there is some long and intricate definition between dysfluency and

stuttering -and why apraxia has nothing to do with stuttering only

dysfluency and also explain why in some parts of the world they are

looked at as one in the same. I also heard that what apraxic

children go through may be partly developmental-I believe that's the

case most of the time in any child that stutters however.

Our children are left locked in the dark unable to call out for help

due to a strange name to a diagnosis that has been the best kept

secret for years. If you do a search on the (American Academy of

Pediatrics) AAP website for apraxia in pediatrics you come up

with " No documents matched the query " A pediatric condition rising

in epidemic proportions and yet complete and total silence. At the

AAP however there are 44 matches for autism - 4 for PDD (and even 2

for PDD-NOS which means again?) Autism is on the rise in schools -

except there is no classification for " apraxia " only autism or LD or

speech or language impaired. Apraxic children are conveniently filed into each

of

these groups -both appropriately and inappropriately. Numbers of

apraxic children in the schools or life? -read above-how would you know?

Autism is on the rise - so is apraxia -with and mostly without

autism. Just like sensory integration dysfunction or mild

hypotonia -both which are found in most apraxic children -apraxia

co-exists in a large amount of conditions, syndromes, disorders and

impairments, outside of autism...and it also stands alone as the

child who is as one mother of a four year old just said to me " so

normal I could smack him " ...except he can't talk. (other than " ma " " da " and 4

other " words " )

At least the neurological aspects of stuttering are being studied.

Since apraxic children don't stutter and are instead " dysfluent " -or

assumed to be " developmentally dysfluent " then lets again not pay

attention to this group of children.

All our children deserve a smile and a voice -and an open mind to

help them get there.

=====

Out Of the Box Geng

President CHERAB Foundation

Communication Help, Education, Research, Apraxia Base

http://www.cherab.org

Co Founder Speechville

http://www.speechville.com

772-335-5135

" Help give our cherubs a smile and a voice "

--- In , " CJ Dir " <gstone98@t...>

wrote:

> Th stuttering with most apraxic kids is not actual stuttering- it

is a word retrieval problem... d

> Re:[ ] Re: stuttering

>

>

> I admit, I do not post on here much,no time I guess.Occasionally

I read posts,and reply. My son is apraxic, 5, moderate, but he does

stutter, and started that about 1 yr ago. Usually it seems he does

it when he is in a hurry to say something and stops when i say slow

down, etc. When kids are Apraxic, is stuttering something they will

continue to do? I do not know much about Apraxia, mostly becuase my

husband does not want to hear it, but, If anyone can answer that I

would appreciate it, ALSO, he seems to not understand or comprehend

the fact he cannot have or do things. Like you cant have that right

now, its almost like he doesnt understand that,and keeps on and on

until he gets it. Is this part of something else. Thanks!!

>

> Danelle mom of Hannah,9, Hank (apraxic) 5, and HollieBrook 3