CFS Conference /Minnesota 10- 28, 2001

[Guest guest]

[CO-CURE] NOTICE: CFS Conference in Minnesota October 28, 2001

> American Association for Chronic Fatigue Syndrome and

> Chronic Fatigue Syndrome Association of Minnesota present

>

> The Well-Informed CFS Patient

> Opening Doors to Better Care

>

> ·Research Trends

> · Clinical Practices

> · Psychological Support

> · Medical Research

> · Alternative Therapies

> · Legal Strategies

> · Advocacy

>

> For Patients, and Families, Friends, Parents, Physicians, Care Providers,

> Agencies,

> and Advocates who address the needs of CFS Patients

>

> Sunday, October 28, 2001 Holiday Inn Select Bloomington,

> Minnesota

>

> Conference Schedule

>

> 9 - 11 Registration and Exhibits

>

> 9:45 Pre-Conference Parents' Workshop:

> Your Child's Educational Right: IEP and Section 504

> Virginia , PACER Center

>

> 11:00 Introduction

> Harrington, President, CFSA-MN

>

> 11:05 Welcome

> Judy Basso, CSFA-MN Founder, President Emeritus

>

> 11:10 Keynote: The CFS Patient in the Twenty First Century

> Natelson, MD

>

> 11:30 Overview of Fatiguing Illnesses CFS/FM/MCS

> Leonard , Ph.D.

>

> 12:30 Putting the Pieces Together Towards Understanding CFS/FM

> Sudhir Gupta, MD, Ph.D.

>

> 1:15 Lunch

>

> 1:45 Thoughts on Newer CFS/FM Therapies

> Lapp, MD

>

> 2:35 Rehabilitation, Sleep and Treatment Alternatives for

CFS/FM

> Uslan, MA, MBA

>

> 3:30 Social Security Disability, Private Disability Insurance,

> ERISA

> Barbara Comerford, JD

>

> 4:15 Adjourn

>

> 4:30 Post-Conference Workshop: Advocacy Training

> Beth Buchholz and Patti Schmidt, CFIDS of America

>

> Why Attend This Conference

> Learn about access to better care! The Well Informed CFS Patient: Opening

> Doors to Better Care is co-sponsored by the Chronic Fatigue Syndrome

> Association of Minnesota and the American Association for Chronic Fatigue

> Syndrome. The conference is designed to provide a broad range of

up-to-date

> information and strategies for improving patients' ability to access care

> and manage symptoms. The conference will cover trends in research,

clinical

> practices, psychological support, medical research, alternative therapies,

> legal strategies, and advocacy. The Conference is also designed to be

> shaped by participants by giving time for questions and answers (except

> Keynote).

>

> Who Should Attend

> The CFS Patient Conference is designed for those living with Chronic

> Fatigue Syndrome, their families, friends and parents. It will also be

> helpful for physicians, allied health care professionals, agencies, and

> advocates addressing the needs of CFS patients.

>

> Pre- and Post-Conference Workshops

> A Pre-Conference Workshop on your child's educational rights will be held

> for parents of children with CFS. The PACER Center presenter will explain

> the Individuals with Disabilities Education Act, and Section 504 of the

> Rehabilitation Act as aids to children with CFS in school. The CFIDS

> Association of America presenters will conduct a Post Conference Workshop

> to provide training for those who willing to advocate for better CFS

> patient care.

>

> This is a Patient Friendly Conference!

> Every effort has been made to make this a CFS patient-friendly conference

> with a comfortable environment and convenient layout. Facilities include

an

> adjacent resting room with cots and chairs. This room will also have the

> presentations on a TV monitor. Many people with CFS have chemical

> sensitivities. Please refrain from using perfumes, scented shampoos, or

> aftershave.

>

> Holiday Inn Select Hotel Accommodations

> The CFS Patient Conference will be held at the Holiday Inn Select in

> Bloomington, Minnesota, which is only 5 minutes from the airport (I-494 &

> 34th Avenue So.) A block of rooms has been discounted for this conference

> (through October 6.) Rates are $89.95 single/double or $99.95 two-room

> suite. Ask for the CFS Patient Conference discount. After October 6th

these

> rates are on a space/rate availability basis. Call 952-854-9000 for

> reservations. Complementary parking is available in ramp and lot east of

> ramp. Ramp does not have elevator. If unable to use stairs, park on top

> level or drop off at front door. If using wheelchair, hotel can arrange

> with metro mobility to provide transportation from airport. Shuttle from

> airport is available 24-hours. The Mall of America is only ten blocks away

> and complementary transportation to the Mall is available from the hotel.

>

> For Additional Information

> Call the CFSA-MN at 651-644-4975 (866-644-4975 outside the Twin Cities

> metro area.) A limited number of partial scholarships are available on a

> first-serve basis. Call for information.

>

> Daylight Savings Time Bonus

> Sleep in! Don't forget that Daylight Savings Time switches back at 2 a.m.

> Sunday morning, giving you an extra hour!

>

>

>

>

>

> Conference Presenters

>

> Keynote Presenter

> Natelson, MD, President of AACFS and Professor of Neurosciences,

> UMD-New Jersey Medical School, CFS ative Research Center. Dr.

> Natelson will give participants the benefits of his experience

> both in heading the AACFS and in heading a major research and educational

> program on medically unexplained fatigue. Dr. Natelson has completed

> postdoctoral fellowships in behavioral neurosciences at the Cornell

> University Medical Center in White Plains NY, and in physiological

> psychology at the Walter Army Institute of Research. He then moved to

> the New Jersey Medical School in Newark and the VA Medical Center in East

> Orange. After many years of animal experimental work on stress and

> chronobiology, he was awarded a federally funded research center to

explore

> the causes of CFS. His research focus now is on clinical studies of humans

> with CFS. He has over 200 papers published in peer review journals and

has

> authored two booksone on the practice of medicine and one on fatigue.

>

> W. Lapp, MD, is Vice President of AACFS and Medical Director of

the

> Hunter-Hopkins Center in Charlotte, North Carolina and Assistant

Consulting

> Professor of Community and Family Medicine at Duke University in Durham.

> Dr. Lapp began researching CFS and FM in 1985, and opened a consultation

> practice in CFS, FM, and related disorders in 1995. He has written

> numerous articles and has spoken widely on these illnesses. He is a

> diplomate of the American Board of Internal Medicine, and a Fellow of both

> the American Academy of Pediatrics and the American Board of Independent

> Medical Examiners. Dr. Lapp is also a board member of the American

> Fibromyalgia Syndrome Association, a medical advisor to the CFIDS

> Association of America, and a member of the Scientific Advisory Council.

>

> Uslan, MA, MBA, is Secretary of AACFS and President of Northwest

> Counseling Associates, in Seattle, Washington. He is a medical

> psychotherapist and rehabilitation counselor at Northwest Counseling

> Associates, a group practice including clinical social work, mental health

> counseling, vocational rehabilitation counseling, biofeedback, health

> education, and nursing care coordination. This group's services include

> pain and stress management, counseling for chronic medical conditions in

> multi-disciplinary groups, employee assistance services, forensic

> vocational evaluation and testimony, consultation to employers, and

> vocational services. He is co-founder of the Center for Comprehensive

Care,

> a facility offering several alternative care services for individuals with

> a variety of disorders including CFS.

>

> Leonard , Ph.D., is Professor of Clinical and Community Psychology

and

> Director of the Center for Community Research, De University, in

> Chicago, Illinois. He has published over 310 articles and 45 chapters on

> various topics including chronic fatigue syndrome, and has edited or

> written fourteen books. He was presented the 1997 CSN ACTION Champion

Award

> by the Chronic Fatigue Immune Dysfunction Syndrome Association of America

> for his efforts on behalf of persons with CFS. is a member of the

> Chronic Fatigue Syndrome Coordinating Committee, and its " name-change " and

> State of the Science work groups. He recently published a book (with

> and Fred Friedberg) " A Clinician's Guide to Controversial

Illnesses:

> Chronic Fatigue Syndrome, Fibromyalgia, and Multiple Chemical

Sensitivities. "

>

> Barbara Comerford, JD, AACFS Board member, is Managing Partner of the Law

> Offices of Barbara B. Comerford, in Ridgewood, New Jersey. Her practice

> includes Social Security claims from agency appeals through federal court

> appellate system; private long-term disability insurance claims through

> litigation process; personal injury litigation of all types; worker's

> compensation claims; and contract disputes. She has been an Advisor to the

> Academy of Medicine of New Jersey, and co-authored Chronic Fatigue

Syndrome

> Physician Treatment Protocol Manual 2000-2001 for them. She is a frequent

> speaker on Social Security disability law in chronic fatigue syndrome and

> fibromyalgia.

>

> Sudhir Gupta, MD, Ph.D., immediate Past President of AACFS, is Professor

of

> Medicine, Pathology, Neurology, and Microbiology and Molecular Genetics,

> Chief of Basic and Clinical Immunology, University of California, in

> Irvine. He is also Director of the Allergy and Immunology and Clinical and

> Laboratory Immunology training programs. His area of research is in basic

> immunology and its application to HIV, cancer, and CFS. Dr. Gupta has been

> involved in CFS research for the past 10 years, publishing one of the

> earliest papers on the comprehensive immunological analysis in CFS.

> Currently, he is studying the alterations and the role of cytokines in

> central motor activities in CFS, for which he has been funded by NIH.

> Conference Registration

>

> Please register me for the CFS Patient Conference as indicated below.

>

> Name _________________________________________________________

>

> Organization ____________________________________________________

>

> Address ________________________________________________________

>

> City ________________________________________________

>

> State _______ Zip _______________

>

> Daytime telephone _________________________________________________

>

> Email __________________________________________________________

>

> Pre- and Post-Conference workshops

> ___ Yes. I will be attending the Pre-conference parents' workshop on Your

> Child's Educational Rights.

> My child's age is _____ years.

>

> ___ Yes. I will be attending the post-conference workshop on Advocacy

Training.

>

> Special Needs

> Lunch ___ I would like a vegetarian lunch.

>

> Other __________________________________________________________________

>

> Registration Fee

> The conference registration fee of $99 per person includes all conference

> materials, refreshments, and lunch.

>

> SAVE! ____ $99 per person, non CFSA-MN member *

>

> Deduct $15 for ____ $84 per person, CFSA-MN Member

>

> Early Registration ____ $84 per person, Early Registration non

> CFSA-MN member *

>

> by October 6 ____ $69 per person, Early Registration CFSA-MN

> Member

>

> ____ * Add CFSA-MN membership. (Included in $99/84

fee)

>

> Register by Mail I have enclosed a check (payable to CFSA-MN) for $

> ________

> MAIL TO: Chronic Fatigue Syndrome Association of Minnesota

> 1885 University Ave. West, Suite 325 St. , MN 55104

>

> Register by Fax Credit Card ___ VISA ___ MasterCard ___

> Discover ___ AMEX

> FAX TO: Name of Cardholder

> ________________________________________________

> 805-965-0042 Card Number

> _______ _______ _______ _______ Exp. Date ______ ______

> Signature required to process

> _________________________________________

> Register Online Go to the Pro Health website at:

> https://www.immunesupport.com:443/track/events/aacfs.cfm

>

> Holiday Inn Select Hotel Accommodations

> Call 952-854-9000 and ask for the CFS Patient Conference special room

> rates, $89 single/double, $99 two-room suite. Special rate ends October 6,

> continuing on an " as available " basis after October 6.

>

> YES ___ I would like to volunteer before or during the conference.

> Please call me.

> ___ I want to help promote this conference. Please send me _____

> brochures.

> ___ I am interested in a display and/or advertising in the

> conference program. Please send information

> ___ I want to help others attend the conference. Here's my

> donation of: $ _____

>

> ---------------------------------------------

> Co-Cure Web Site: http://www.co-cure.org/

> Send posts to mailto:CO-CURE@...

> Join or leave the list at http://www.co-cure.org/sub.htm

> Co-Cure is not a discussion list. Please do not reply to the list.

> ---------------------------------------------