Guest guest Posted July 10, 2002 Report Share Posted July 10, 2002 Hi again! THE BENEFITS OF ISOPRINOSINE (for me) As I said before, I consider this to be a wonder drug, if you have whatever it is, that it works on. I know this sounds too good to be true, but I swear, these things have occurred. Actually, I can't believe it myself. All of this was evident in the first 3 days of taking the Iso. The absolute most dramatic thing that happened was this: The very first night, after only 6 tabs, I SLEPT A REFRESING SLEEP, like I had not in 12 years. I slept through the entire night, without waking up every 3 hours, without being awake and asleep at the same time, without strange dreaming. It was so incredible. I woke up feeling RESTED for the first time in 12 years. The feeling that morning when I woke up is indescribable. We all have probably forgotten what it is like to sleep normally. This has decreased over time, but has not disappeared. Because of this experience, I feel that the sleep issue is a MAJOR MAJOR MAJOR player in CFS. The next thing I noticed was that my ALL OVER, TINGLING, PINS AND NEEDLE BODY PAIN, AS IF EVERY CELL IN YOUR BODY IS BEING TORTURED WAS GONE. This pain has not come back while taking the drug, but started to slowly reappear during the 2 day reduced dosage, and during the 2 weeks off. I then noticed that my severe, severe leg aching had disappeared, along with many muscle and joint aches, although these flare up from time to time, but not to the degree as before the Iso. Instead of hurting and aching, my muscles just feel tired and over used even though I hardly do anything, like move. (I would like to add here, that I classify CFS Grand Overall Misery into 3 catagories.) First, the sick all over feeling, like you want to just die. For me, this was eliminated with Immunocal. Second, the cell torturing, described above, greatly controlled with the Iso. Third, the body, muscle, and joint aching greatly controlled and somedays eliminated with the Iso. My next classification is CFS Un-grand Specific Misery. These are horrible and annoying, but not like the above. First, the gut problem. Mine has been severe for 12 years, bloating, gas, pain, swelling, etc. It just disappeared. After the first 6 tabs, I have solid waste for the FIRST time in 12 years, no bloating, no gas, etc. This disappears very quickly at the reduced and off dosage times. Second, the intersystial cystitis (spelling?), that is the frequent, low volume, burning urination. This just disappeared for a long time, and then slowly but very minimumly creeps back with occasional flares, but has not returned to pre-Iso levels. MORE BENEFITS Next is brain fog and mental energy. This will be hard to describe. I don't think we realize just how fogged we all are till we come out of it to any degree. Although, I have an occasional moments, I just don't feel foggy. I feel much more mentally alert. And I believe it to be part of the sleep issue. As I slept better, I just had more brain power, and a much more positive and better attitude. Plus, the " release from the pains " described above, seemed to release mental and physical energy. Somewhat improved is my ability to remember things. PHYSICAL ENERGY is another hard one to describe. Initially, I had much more in quality and in length of time (that is more than 4 hours a day.) Although some days are better than others, this has leveled out. The time is generally not extended, but I feel better during the time I do have. This relates to Dr. Cheney's living in a energy limited box. Feeling better makes you FAR MORE AWARE that your mitochondria are damaged, and you JUST CAN'T DO ANYTHING. You feel good enough to do things, but you just can't, you have no " dynamic hormonal response " to get up and go. One other minor thing, is that I now have long and beautiful fingernails, even far better than my pre-CFS nails. They just started growing after the Iso. Previously, they just broke and split. But my hair still falls out. SUMMARY It is my feeling that these benefits will not be lasting, when permanantly off the ISO. BUT, I DON'T REALLY KNOW what will happen then. Immunune modulators do not work over extended periods, but who knows how long that is, and it is probably different for each person. I do not know if these benefits are from immune modulation, or from attacking the HHV 7, or from both, or even from something else. All of these benefits decrease to varying degrees depending on the symptom, during the 2 day reduced dosage, during the 2 weeks off, and as you get closer and closer to the end of the 3 month cycle. But for me, ENOUGH of the benfits remain, to make it well worth it. Heck, the gut thing alone is well worth it, for sure. I am not cured by any stretch, and am happy to have however few moments in time, feeling better, and suffering less. I will continue to take this as long as Dr. Cheney permits, and as long as it it beneficial. I will see Dr. Cheney in the fall, and will discuss all this with him. Then I will post again. Laurion Quote Link to comment Share on other sites More sharing options...
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