Re: Anyone have luck with antibiotics?

[Guest guest]

> Hi, I've had CFIDS/FMS for about 3 years, and I'm currently

> researching bacterial causes for this illness. Has anyone gotten

> diagnosed with any bacterial problems, or had symptom improvement

> after taking antibiotics? Thanks.... Jean

Hello

I'm on my 3rd try w/abx, as have had positive PCR for Mycoplasma

Pneumonia & have C. Pneumonia antibodies. The 1st two times I made it

to about ~3 months, worsening steadily (unfortunately) - stopped abx -

but then rebounded at a bit higher functioning than before starting

the abx (was able to stand longer and use the electric scooter more on

" good " days). I'm almost 2 months in now (w/the 3rd try) - have

worsened again as before - but am going to try to make it to a

semi-arbitrary/reasonable 6 months, as there have have apparently been

cases of 2 to 5 years on abx, with attributions of improvement.

All 3 times I've gone thru recurrent/multiple Herx rx, which some seem

to believe that that means the abx are working - but it's unclear (in

the research) whether that's really an indicative correlation and/or

that there'll ultimately be improvement

I think the hope w/abx is to partially address the cormodity and

co-debilitation that bacterial infections might bring to this disease.

I wish I had better news - it's just something I'm giving a go at -

with hopes of moderate improvement

Lance

[Guest guest]

Hi Lance,

I'm curious, which antibiotics are you using? And are you rotating

them?

penny

> > Hi, I've had CFIDS/FMS for about 3 years, and I'm currently

> > researching bacterial causes for this illness. Has anyone gotten

> > diagnosed with any bacterial problems, or had symptom improvement

> > after taking antibiotics? Thanks.... Jean

>

> Hello

>

> I'm on my 3rd try w/abx, as have had positive PCR for Mycoplasma

> Pneumonia & have C. Pneumonia antibodies. The 1st two times I made

it

> to about ~3 months, worsening steadily (unfortunately) - stopped

abx -

> but then rebounded at a bit higher functioning than before starting

> the abx (was able to stand longer and use the electric scooter more

on

> " good " days). I'm almost 2 months in now (w/the 3rd try) - have

> worsened again as before - but am going to try to make it to a

> semi-arbitrary/reasonable 6 months, as there have have apparently

been

> cases of 2 to 5 years on abx, with attributions of improvement.

>

> All 3 times I've gone thru recurrent/multiple Herx rx, which some

seem

> to believe that that means the abx are working - but it's unclear

(in

> the research) whether that's really an indicative correlation and/or

> that there'll ultimately be improvement

>

> I think the hope w/abx is to partially address the cormodity and

> co-debilitation that bacterial infections might bring to this

disease.

> I wish I had better news - it's just something I'm giving a go at -

> with hopes of moderate improvement

>

> Lance