Guest guest Posted December 25, 2002 Report Share Posted December 25, 2002 In a message dated 12/25/2002 6:06:55 PM Eastern Standard Time, gayu_pwc7@... writes: > Hi Don, > > I read your previous posts in the archives about AMP. I was > disappointed to know that its no longer available. Are you still in > remission? What else have helped your dramatically? > Hi Gayathri. No, I am not in remission. I have been unable to acquirer AMP. However, I beleive if I knew then, what I know now about nutrition reguarding herpes. The answer may have been different... I learned over the years, that a high lysine low arginine diet is imperative. It keeps the virus from replicating... While I was taking AMP, no one advised me of the nutritional needs of this illness... So my answer to you reguarding what has helped dramatically, would be nutritional diet. You have to monitor yourself, and see what foods take you in one direction, or the other. Read and learn what foods to eat, and not, reguarding herpes... Reguarding AMP, I was told by Dr. Sklar that once it gets things under control, you continue taking it, but less frequently. He explained to me that once you have a herpes virus, you have it for life, but that AMP will let you continue to have a normal life... When I was taking AMP, after the first month I had tremendous improvement, in 3 months total remission. Seven month later I had a relapse, this is when I returned to Dr Sklars office, and when he explained to me what I said above, about taking it less frequently...but not to stop taking it. Another researcher, from another list, had told me that AMP interfers with the virus, and stops it from replicating. I know Dr Sklar also told me that whenever he had a cold coming on, he would give himself a shot of AMP, and it would stop it in its tracks. He also explained to me that while you are on AMP, you will never catch a cold... He treated his brotherinlaw for over 30 with AMP for MS. He explained to me also that, MS is also herpes driven...By the way his brotherinlaw lived into his 80's, and had a normal life. As you can see, DR Sklar was ahead of his time... So you see, with the knowledge of nutrition that I have know, reguarding herpes, I dont beleive I would have relapsed. In addition life changes should of taken place as well, instead I went back to the same life style that brought this on in the first place... Respectfully, Don Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2002 Report Share Posted December 25, 2002 Hi Don, I read your previous posts in the archives about AMP. I was disappointed to know that its no longer available. Are you still in remission? What else have helped your dramatically? Rich, Don and all, Also, since AMP is converted into ATP, wont ATP injections help as well? Dr.Salvator's injection has glutathione and ATP in it. And in her study, she found the glutathione injection itself was not very helpfull, it needed to be combined with ATP to be more efficient. Thanks Gayathri. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2002 Report Share Posted December 25, 2002 > Also, since AMP is converted into ATP... Gayathri -- I not sure AMP is converted into ATP. I read that when someone first contracts CFS, the body activates a metabolic pathway that increases the rate of conversion of ATP to cyclic AMP, which is used for immune system stimulation. Apparently, CFS patients have difficulty shutting down this pathway, when it is no longer required. This inability to properly regulate the pathway leads to ATP loss. - don Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2002 Report Share Posted December 25, 2002 > I learned over the years, that a high lysine low arginine diet is imperative... Why? I thought that both amino acids are necessary for the production of AMP? BTW, what foods are high in lysine and low in arginine? thanks, don Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2002 Report Share Posted December 26, 2002 Gayathri, Yes, I'm aware of Dr. Salvato's use of glutathione combined with ATP. I don't understand how the ATP works in this treatment. ATP is primarily an intracellular substance, made and used inside the cells. There is some outside the cells that is used in signalling. Perhaps that's what it does in this treatment. It's true that AMP can be phosphorylated twice and can become ATP. I'm also not clear on how AMP works as a treatment for CFS. This is one possibility. It may also be operating directly on the herpes viruses, as Dr. Sklar found. It may have other roles in stimulating parts of the metabolism. I think there are still quite a few unknowns about how these things work in CFS. Rich --- In , " gayu_pwc7 > > Rich, Don and all, > > Also, since AMP is converted into ATP, wont ATP injections help as > well? Dr.Salvator's injection has glutathione and ATP in it. > And in her study, she found the glutathione injection itself was not > very helpfull, it needed to be combined with ATP to be more > efficient. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2002 Report Share Posted December 26, 2002 Don, Nuts and chocolate are both high in arginine. Animal-based proteins are high in lysine. Lysine is an essential amino acid. Arginine is not, since the body can make it from other amino acids. Rich > > I learned over the years, that a high lysine low arginine diet is > imperative... > > Why? I thought that both amino acids are necessary for the > production of AMP? BTW, what foods are high in lysine and low in > arginine? > > thanks, > don Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2002 Report Share Posted December 26, 2002 In a message dated 12/26/2002 2:33:07 AM Eastern Standard Time, don@... writes: > Why? I thought that both amino acids are necessary for the > production of AMP? BTW, what foods are high in lysine and low in > arginine? > > thanks, > don > Hi Don, I was told many years ago by a Dr, that the whites of the egg produces high levels AMP... I have several raw a day in my nutritional drinks... Not just the whites, but the entire egg... You always want to have, what ever you are eating, in its whole live form. Also they should be preferly free range and organic.. I have my own chickens, I never refrigerate my eggs, it changes the molecular structure. A egg left out of the frig can last for 2 months, if they are turned over every 3 days... I have sold some to a fellow who crossed the Atlantic on his sailboat following my instructions. When he returned, he confirmed that all the eggs never spoiled... The food we eat becomes metabolized, and produces AMP. . Remember AMP is produced by our metabolism... PS: Free range eggs will not give you cholesterol...dispite the myths... Go to WestonAPrice.org and learn all about great nutrition Respectfully, Don Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2002 Report Share Posted December 26, 2002 AMP is still available. It is sold as a pure USP powder. I would assume it is not injectable grade , however. Too, I do not know what the " gel " was, that slowed down the absorbtion of the injection that was used originally. There is a fellow on the internet by the name of Goodshape. He runs a site about his wife, who has MS. I think you could learn something about getting AMP there. Type in Goodshape and histamine into a search engine and it should pull something up. Ah! Got it http://www.goodshape.net Alternatively, a place on the net called Dancing Bee Acres has info. about it. I think you would have to call them. Anyway, the pure powder is available. I have not tried it. Zippy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2002 Report Share Posted December 27, 2002 Hi, could you tell me exactly where you found the information about the AMP powder. On the Goodshape site there is mention of it in a heading at his message forum, and mention of his wife's using it, but that's it. Nothing about where to acquire it. I also searched the Dancing Bees site, which is interesting, but zero mention of AMP. Perhaps I missed it so if you know exactly where to look, would you let me know. Thanks, Re: glutathione/ATP , AMP injection AMP is still available. It is sold as a pure USP powder. I would assume it is not injectable grade , however. Too, I do not know what the " gel " was, that slowed down the absorbtion of the injection that was used originally. There is a fellow on the internet by the name of Goodshape. He runs a site about his wife, who has MS. I think you could learn something about getting AMP there. Type in Goodshape and histamine into a search engine and it should pull something up. Ah! Got it http://www.goodshape.net Alternatively, a place on the net called Dancing Bee Acres has info. about it. I think you would have to call them. Anyway, the pure powder is available. I have not tried it. Zippy This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2002 Report Share Posted December 27, 2002 In a message dated 12/26/02 7:41:50 AM Eastern Standard Time, writes: > I learned over the years, that a high lysine low arginine diet is > imperative... > I tried taking large doses of lysine--500 mg in b/t meals 5 times day and I did not feel better and in fact felt worse during the quick experiment that I soon ended w/i a few days of not feeling bad (not that I know the lysine was what was making me feel bad as indeed perhaps I might have felt that bad had I not been taking lysine at the time), but all in all I can say I certainly did not feel better. I have also been taking 1 gram of BHT every day to combat EBV. Has it worked? I had MDL testing and the PCR came back negative but I never had PCR before I began so I don't know other than I had very high levels of antibodies, IgG/IgM and nuclear. Btw, I still don't understand what the hell nuclear is. Rich or anyone here, can you explain this? My EBV couple months ago for instance showed 200 nuclear when below 20 is negative. Anyway, I should probably have antibodies redone in 2-3 weeks perhaps and see if the BHT really did eradicate EBV. If it did then I sure don't feel like a new man from it and would be hard pressed to blame my CFS on EBV. I also have completed my 2nd month as of this morning of the Chisolm TF which treats for EBV. I understand it takes 3 months to really give TF a good trial and so I will be on it for one more month before taking a break from it. I cannot say TF is a waste of money as it seems to help some perhaps but I'm not too sure of this either. I started BHT and TF at relatively the same time. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2002 Report Share Posted December 28, 2002 There are several theories that antibiotics could be helping for reasons other than killing off bacteria (at least mycoplasma or staph or the other bacteria we have talked about mostly.) One is that it kills of bad bacteria in the gut, which helps. Another theory is that some antibiotics, doxycycline in particular, may prevent gene rearrangement which may be going on in CFS. To your other email about gluathione not being the answer... I don't for a minute question that we get viruses and bacteria, and they are responsible for a lot of our symptoms. But I have a hard time believing they are the cause, because a) why don't other people get these chronic infections? and too many times I have had a specific virus or bacteria and gotten rid of it, only to get sick again later with another one. There has to be something that makes us susceptible. I don't know if it is glutathione that is responsible, but I can say for myself that I was taking 8 Tylenol on average per day for years before I got CFS, and tylenol depletes glutathione. (Not to mention a mouth full of mercury that depletes glutathione.) On the other hand, there may have been something wrong with me (some intracellular bacteria for example) that made me have the sinus problems and headaches in the first place and that was why I needed the Tylenol. Thanks, Doris ----- Original Message ----- From: " Bob " <blue74730@...> > Don, I am not a dr, scienctist or even biology major. Just a person who has had this illness for 27 years. You mentioned in prior post about working with some dr or sceinctist and I was wondering what your backgroud is? What I am wondering about is why is it that researchers do not seem interested in things that seem to me, they should be? Like I am CFS symptom free now for the 10 days I have been taking an antibiotic for sinus infection, still have the infection. According to what I have read, I will have a relapse. Why wouldn't researchers be looking at what is happening to cause people to go into " remission " for short periods while on AB use, then crash? does tht mean the AB is suppressing a bacterial infection and we feel good but it doesn't kill off all of the bacteria, thus it grows back? I wonder if researchers have studied people that have gone into " remission " to see what is different about them, then look at them when they relapse. Maybe these are just naive thoughts. > > Bob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2002 Report Share Posted December 29, 2002 " Why wouldn't researchers be looking at what is happening to cause people to go into " remission " for short periods while on AB use, then crash? " Antibiotics kill the good bacteria,too.They also createa load on the liver. Don't they?May be that is why we crash afterwards. Thanks Nil Re: Re: glutathione/ATP , AMP injection | There are several theories that antibiotics could be helping for reasons | other than killing off bacteria (at least mycoplasma or staph or the other | bacteria we have talked about mostly.) One is that it kills of bad bacteria | in the gut, which helps. Another theory is that some antibiotics, | doxycycline in particular, may prevent gene rearrangement which may be going | on in CFS. | | To your other email about gluathione not being the answer... I don't for a | minute question that we get viruses and bacteria, and they are responsible | for a lot of our symptoms. But I have a hard time believing they are the | cause, because a) why don't other people get these chronic infections? and | too many times I have had a specific virus or bacteria and gotten rid of | it, only to get sick again later with another one. There has to be | something that makes us susceptible. I don't know if it is glutathione that | is responsible, but I can say for myself that I was taking 8 Tylenol on | average per day for years before I got CFS, and tylenol depletes | glutathione. (Not to mention a mouth full of mercury that depletes | glutathione.) On the other hand, there may have been something wrong with | me (some intracellular bacteria for example) that made me have the sinus | problems and headaches in the first place and that was why I needed the | Tylenol. | | Thanks, | Doris | ----- Original Message ----- | From: " Bob " <blue74730@...> | | > Don, I am not a dr, scienctist or even biology major. Just a person who | has had this illness for 27 years. You mentioned in prior post about working | with some dr or sceinctist and I was wondering what your backgroud is? What | I am wondering about is why is it that researchers do not seem interested in | things that seem to me, they should be? Like I am CFS symptom free now for | the 10 days I have been taking an antibiotic for sinus infection, still have | the infection. According to what I have read, I will have a relapse. Why | wouldn't researchers be looking at what is happening to cause people to go | into " remission " for short periods while on AB use, then crash? does tht | mean the AB is suppressing a bacterial infection and we feel good but it | doesn't kill off all of the bacteria, thus it grows back? I wonder if | researchers have studied people that have gone into " remission " to see what | is different about them, then look at them when they relapse. Maybe these | are just naive thoughts. | > | > Bob | | | This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. | | Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2002 Report Share Posted December 29, 2002 >I was taking 8 Tylenol on average per day for years before I got CFS, and tylenol depletes glutathione. (Not to mention a mouth full of mercury that depletes glutathione.) Yikes Doris, I have been taking a lot of hydrocodone (which also contains acetaminophen) for years! I figured my mercury fillings (which have been removed) were the major culprit in lowering my glutathione levels--but I never heard that tylenol also depletes it. I have been slowly tappering off this narcotic, but it seems to help with many of my CFS symptoms, so its hard. Now I have more reason than ever to get off it entirely. Thanks, don Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 Dear Don: In reference to acetominopin you can kill yourself / or liver much easier with Tylenol than with aspirin due to the fact that Tylenol uses up glutathione in your liver to process and detoxify it. You mentioned hydrocodone. I must say that the fact that you said it made you feel better helped me understand why I have been taking it. I have been taking some because it seemed to make me feel better - not high or anything but better, and I thought I was imagining it. Thank you for validating what my body already knew. Of course the hydrocodone I take is for my migraines and then I end up with none when I have a headache, but I just can't seem to help myself because I have so much energy on it. Otherwise I just lay on the couch and read or if I have to do something it is a major effort. Of course I must stop using it for what it isn't prescribed to me for, but at least I know now why I was attracted to taking it. Any comments? Best Regards, Teena Re: glutathione/ATP , AMP injection >I was taking 8 Tylenol on average per day for years before I got CFS, and tylenol depletes glutathione. (Not to mention a mouth full of mercury that depletes glutathione.) Yikes Doris, I have been taking a lot of hydrocodone (which also contains acetaminophen) for years! I figured my mercury fillings (which have been removed) were the major culprit in lowering my glutathione levels--but I never heard that tylenol also depletes it. I have been slowly tappering off this narcotic, but it seems to help with many of my CFS symptoms, so its hard. Now I have more reason than ever to get off it entirely. Thanks, don This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 Hi Teena, It's nice to hear someone else has had the same experience with CFS and Hydrocodone. For a long time, it was the only thing that seemed to pump up my energy level and, strangely enough, my immune system, without leading to a crash. Although I took a pharmacology course about narcotics back in college, I don't recall how opiates affect the body. My guess is that they must stimulate the adrenal glands, but how does that explain the immune system boost? Maybe the drug somehow stimulates my immune system, making it go into hyper-drive. I certainly never got sick. I came down with CFS in 1992, and eventually got quite a bit better (from 10% to 90% on the Functionality scale). Then, in 1999, I pushed way too hard for way too long (--almost six months of long days writing a book). After a major crash on Christmas Eve in 99, not even the Hydrocodone did much for me for a long time. Perhaps I had finally exhausted my poor adrenal glands and immune system? After three years of setbacks, I'm now slowly recovering, with lots of rest, moderate anaerobic exercise, and all kinds of supplements. BTW, I felt guilty too when I using Hydrocodone for CFS instead of back pain. But, for many years, nothing else helped relive the CFS symptoms. It allowed me to stay working. - don > Dear Don: > > In reference to acetominopin you can kill yourself / or liver much easier with Tylenol than with aspirin due to the fact that Tylenol uses up glutathione in your liver to process and detoxify it. You mentioned hydrocodone. I must say that the fact that you said it made you feel better helped me understand why I have been taking it. I have been taking some because it seemed to make me feel better - not high or anything but better, and I thought I was imagining it. Thank you for validating what my body already knew. Of course the hydrocodone I take is for my migraines and then I end up with none when I have a headache, but I just can't seem to help myself because I have so much energy on it. Otherwise I just lay on the couch and read or if I have to do something it is a major effort. Of course I must stop using it for what it isn't prescribed to me for, but at least I know now why I was attracted to taking it. Any comments? > > Best Regards, > > Teena > Re: glutathione/ATP , AMP injection > > > >I was taking 8 Tylenol on average per day for years before I got > CFS, and tylenol depletes glutathione. (Not to mention a mouth full > of mercury that depletes glutathione.) > > Yikes Doris, I have been taking a lot of hydrocodone (which also > contains acetaminophen) for years! I figured my mercury fillings > (which have been removed) were the major culprit in lowering my > glutathione levels--but I never heard that tylenol also depletes it. > > I have been slowly tappering off this narcotic, but it seems to help > with many of my CFS symptoms, so its hard. Now I have more reason > than ever to get off it entirely. > > Thanks, > don > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 Raw egg whites contain a protein called avidin that binds to and destroys biotin. If you regularly eat raw eggs you need to supplement biotin. ++PLS Re: Re: glutathione/ATP , AMP injection In a message dated 12/26/2002 2:33:07 AM Eastern Standard Time, don@... writes: > Why? I thought that both amino acids are necessary for the > production of AMP? BTW, what foods are high in lysine and low in > arginine? > > thanks, > don > Hi Don, I was told many years ago by a Dr, that the whites of the egg produces high levels AMP... I have several raw a day in my nutritional drinks... Not just the whites, but the entire egg... You always want to have, what ever you are eating, in its whole live form. Also they should be preferly free range and organic.. I have my own chickens, I never refrigerate my eggs, it changes the molecular structure. A egg left out of the frig can last for 2 months, if they are turned over every 3 days... I have sold some to a fellow who crossed the Atlantic on his sailboat following my instructions. When he returned, he confirmed that all the eggs never spoiled... The food we eat becomes metabolized, and produces AMP. . Remember AMP is produced by our metabolism... PS: Free range eggs will not give you cholesterol...dispite the myths... Go to WestonAPrice.org and learn all about great nutrition Respectfully, Don Quote Link to comment Share on other sites More sharing options...
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