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Re: first day

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Some parents have reported an increase in bowel movements when their

child first starts the enzymes. Which ones is your child taking?

You could try reducing the number of doses per day, say, just give a

half to one capsule with the largest meal of the day the first

several days. Then, gradually increase the dosage up to two capsules

per meal. The increase in bowel movements and/or diarrhea should not

last more than two weeks.

I know this is probably distressing for your son. My son was upset

by the diarrhea at first, but it did get better by the second week.

> I gave my 8 year old son the enzymes and he has had 5 BMs within 12

hours, is

> this normal?

> please email me at: dawcfp@a...

> thanks.

>

>

>

>

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  • 8 years later...
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Hi Lottie: No its not something I go to on a regular basis. That day is over

with,and I have moved on with life. I plan on having many more years with QOL.

The reason I remember it so well was the fact that I was secretary to the

Oncologist who found my CML. We were friends as well as co-workers for 13

years. Neither one of us ever thought we would be sitting and discussing ME!

I let all the newbies know they can expect a very long life with CML, and thats

why I mention that I am starting my 12th year, and that there are others with

many more years than me who are still going strong. God Bless Everyone and the

Battle we are winning.

>

> Dear ,

>

> When I read your post about your first day after being diagnosed, I thought to

myself, " I must have moved on, because I rarely go there anymore, and when I do,

it is no longer and emotional place. " There is so much positive news in our

community that I think we have all been energized by it and for the most part

can look ahead to the future and " see " where we will be 10 years down the road.

The landscape has changed dramatically. We are living better and longer now. I

don't mean to intone that we can live worry free, but we are certainly are at a

better place than we were the day when we were diagnosed, are we not, would you

concede to that? We certainly have more assurance that we will even have a

future, who woudda thunk it then? It was so bleak, I could not venture beyond 5

years and it has been nearly as long as Bobby's venture into CML land.

>

> I have a great affinity for this group, because I think we have the ability to

inspire each other and to reach out to our fellows in an uplifting way.

> Hands & hearts,

> Lottie Duthu

>

>

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