Guest guest Posted January 12, 2004 Report Share Posted January 12, 2004 Thanks for outing me Peg Zippy is indeed in Tennessee. Unfortunately, I don't know of any doctors in East Tennessee, who are good CFS docs. I felt I had to fly to Dallas/ Fort Worth to recieve adequate care. http://www.cfidsdoc.com Over the years, I have had a very difficult time finding a local doctor who would even see a case of CFS, much less try to do anything for me. I was told (by a doctor) that most doctors don't know as much about CFS as their patients do. They find this personally embarrassing. Too, due to financial concerns they have to see a patient every 15 minutes. Thus, they don't want to have to deal with complicated cases like CFS. In fact, they can't afford to. When I saw Dr. Cheney/ Dr. Sharp they spent ~ 3 hours with me/ visit. I think this is what is required for a case of CFS. But, naturally, it is expensive. I would add one other thing, that others have hinted at. Unless you can get to a top doc, who will spend hours with you at a strech, going over your case (in other words, just let the meter run), then you must remember, this system is almost like being in a court of law. It is an adversarial system. The system, and the people in it, are NOT your friends. You will have to be proactive and vigilante to keep it from taking advantage of, or neglecting you, as the case may be. That is the way things are. Be wary of doctors who run tests from their office. They are almost certainly getting a kick back on this, which doubles the price. Contracting privately with the lab, and then paying up front for the test is usually the cheapest way to go. Also, be wary of doctors who push their supplements on you. It is often better to buy them on them open market, like from Beyond A Century, or NEEDS. However, if you do happen to find a good CFS doc in East Tennessee, I would be pleased to hear about it. You can backchannel me, of course. Best, Zippy (in Tennessee Quote Link to comment Share on other sites More sharing options...
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