Re: autoimmune tourettes autism connection?

[Guest guest]

janneane, I would look at several websites and print out as much

information as you can. My 10yo progressed into OCD when he was seven. He

was diagnosed as ADHD prior to that.(but I now realize that high functioning

autism/aspergers, would have fit much better). When not doing well, he had

major, major mood swings/meltdowns. He acted just like the kids on show

about childhood onset bipolar.(that isn't what he has) He responds to

anti-virals, anti-fungals, and now seems to be responding to anti-biotics

also.(although this is just a part of what we are doing). Once their immune

system is dysregulated, they can have a hard time completely suppressing,

many different types of infections.

Dr. Goldbergs site is

http://www.neuroimmunedr.com

in his conference area you are able to post questions

http://www.nids.net

I would print out the hypothosis statement from either, the what's new

section on Dr. Goldberg's site, or from the nids site. There is also the

conference highlights available at the site or Summer 99 newsletter at

our parents site

http://www.mat.org

I hope that helps.

Cheryl

autoimmune tourettes autism connection?

> From: janneane7@...

>

> My 14 year old son has PANDAS (pediatric autoimmune neuro disorder

associated with strep) which is strep induced tourettes. He developed this

at age 10. He developed autism at about 2 1/2, before that he was normal. At

the same time he started showing characteristics of autism he also developed

constipation and became very gassy. There is also some family history of

immune problems.

> I am now assuming his autism is an autoimmune disorder too.

> We treat his tourettes flair-ups with amoxil. I am hoping there is some

way to find out if his immune system is not functioining properly and if

there is a way to treat it. I have yet to find anyone who has a clue about

this. I am also trying to get his pediatrician involved and his psychiatrist

(he has bipolar too).

> Any thoughts or ideas would be appreciated.

>

> ---------------------------

[Guest guest]

Have you not made arrangements to take him to Dr. Goldberg? Kathy

[Guest guest]

FYI:

Lyme disease, a common tick-borne bacterial illness, can present with

neurologic and neuropsychiatric manifestations resembling Tourette's, OCD,

ADD/ADHD, Bipolar depression, and apparently (now) autism.

I have heard of a recent case of pediatric Lyme disease (LD) that presented

w/symptoms of autism. To my knowledge, the patient was treated w/antibiotics

and symptoms resolved. This case is in process of being written up. And I

will post info when article is available.

More information on Lyme disease presenting as TS, OCD, etc.,:

Lancet 1998 Feb 7;351(9100):418-9

Lyme disease presenting as Tourette's syndrome.

Riedel M, Straube A, Schwarz MJ, Wilske B, Muller N

The Neuropsychiatric Manifestations of Lyme Borreliosis

http://www.sky.net/~dporter/1falon.htm

Lyme disease Misdiagnosed as...

http://www.geocities.com/HotSprings/Spa/6772/lyme-misdiagnosed-as.html

Frequently Asked Questions about Lyme disease

http://www.geocities.com/HotSprings/Oasis/6455/newsgroup-faq.html

[Guest guest]

Thanks Cheryl

I am researching as much as I can to find out more. I hope I can help my son

because he is now having another terrible bout of severe tourettes, (tics and

OCD) and his temper is on hair trigger.

Thanks for your help and input. Wish I lived on the west coast so I could

take Andy to Dr. Goldberg.

JAN

[Guest guest]

Jan,

I believe Dr. Goldberg goes to the east coast once a month to see patients

there. But best to check with his office @ 1(818)343-1010

Tina