Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 thanks paula, i am going to work on that!!! i want to feel happy again. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 i am just comming home from therapy tonight (for my arm) i left about 12 hours ago for therapy on my feet. i have ran many places in between and met the roofer (finally)i am exhausted!!! i have to start all over again in 12 hours at the foot dr!!!! have a good night. kathy from il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 I hope so Kathy. I've got the winter blahs and should probably go back on an antidepressant. This cold weather is killing me. It's hard to be happy with so much pain, but we have to try to find things that take our mind off of it. a Re: [ ] (no subject) thanks paula, i am going to work on that!!! i want to feel happy again. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 i went to the pain management class. i was so dizzy and i couldn't keep my head up. it was dark and rainy and i had a hard time driving home. when i finally arrived, i almost hit my sons car while trying to park. i managed to sit on the couch for about 1/2 hour with heat packs but then i just crawled into bed. clothes on and everything. i think it is from the therapy on my neck. it is just like i was a couple years ago. when it started over the weekend i remember saying to my son. how did i live like this for 3 years? driving, working?? i remember i called my mom many days to pick me up from work because i was too afraid/dizzy to drive. she moved to florida now, so guess i'm glad i really don't have to go anywhere. part of me wants to go to the chiro, but i said i'd try to sty away while in therapy. otherwise they don't know if they are causing the problem or what. seems like the class was mainly talking about epidurals. he was bad with the equiptment. every time he'd say follow my arrow it would switch ahead about 5 pictures, then he'd go back. this would happen about 4-5 times before he'd just finish saying what he was saying. i couldn't sit still and felt i was disturbing everyone. moving around, trying to hold up my head with my hands. i wanted to reach around and give myself a massage but figured the ladies behind me would get upset. does anyone else ever feel this way? affect your neck?? they told me my muscles are really weak and can't hold up my torso anymore. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 Oh Kathy, Sorry you had such a miserable day!! I'm not familiar with pain management classes. Is this a tie in with seeing a pain management specialist? I can imagine how miserable you felt, dizzy, in pain, crawling into bed. Does you neck bother you like this all the time? If you've been told the muscles in your neck are weak and can't hold up your torso any more, is anyone suggesting a solution? Seems like physical therapy, or chiropractic, or something could work on strengthening thos muscles. Here's to better days, Suzanne Re: [ ] (no subject) > i went to the pain management class. i was so dizzy and i couldn't keep my > head up. it was dark and rainy and i had a hard time driving home. when i > finally arrived, i almost hit my sons car while trying to park. i managed to > sit on the couch for about 1/2 hour with heat packs but then i just crawled > into bed. clothes on and everything. i think it is from the therapy on my > neck. it is just like i was a couple years ago. when it started over the > weekend i remember saying to my son. how did i live like this for 3 years? > driving, working?? i remember i called my mom many days to pick me up from > work because i was too afraid/dizzy to drive. she moved to florida now, so > guess i'm glad i really don't have to go anywhere. part of me wants to go to > the chiro, but i said i'd try to sty away while in therapy. otherwise they > don't know if they are causing the problem or what. seems like the class was > mainly talking about epidurals. he was bad with the equiptment. every time > he'd say follow my arrow it would switch ahead about 5 pictures, then he'd go > back. this would happen about 4-5 times before he'd just finish saying what > he was saying. i couldn't sit still and felt i was disturbing everyone. > moving around, trying to hold up my head with my hands. i wanted to reach > around and give myself a massage but figured the ladies behind me would get > upset. does anyone else ever feel this way? affect your neck?? they told me > my muscles are really weak and can't hold up my torso anymore. kathy in il > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2002 Report Share Posted February 22, 2002 i have just started physical and water therapy, the same thing happened about 8pm all week. i just can't hold myself up anymore. again 8:15 last night i went to bed, feeling so wierd, dizzy, my stomach hurt. i kinda feel like a drunk, teetering around.shaky. my rheumi put me on the cancellation list and they are getting me in on monday morning. my appt at 9 and i think i should cancel my neck therapy that is at 10 that day. the nurse mentioned maybe they would up my prednisone. i am only on 5 mg. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2002 Report Share Posted February 22, 2002 duh suzanne, the pain mgmt class was offered by the hospital. it was a free class. i am guessing most of the people there had back pain since he was talking about epidurals. he was going to talk about opioids and surgery, but i never made it that far. i was so out of it, i left my notebook and pen there. i got the notebook back in the mail yesterday. i had about a paragraph of notes. 28-30% us population has chronic back pain. 35-78% end up in disability over 1 year onset. the topic was interventional pain management. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2002 Report Share Posted February 22, 2002 i feel like a candy cane!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2002 Report Share Posted February 23, 2002 Kathy, Sorry you've been having such a rough time. Neck pain is really hard to deal with. Yes, I've had bouts of what I call neckitis, but I don't get dizzy. Mine is more like lightning. I can't turn my neck without getting zapped. All I can do is take muscle relaxers and wait for it to pass. It will last anywhere from a few days to a few weeks. It is very debilitating. The doctor was going to give me a collar, but the problem with neck braces is that they weaken the neck muscles. I hope you feel better soon. a kringlemom@... wrote: > i went to the pain management class. i was so dizzy and i couldn't > keep my > head up. it was dark and rainy and i had a hard time driving home. when i > finally arrived, i almost hit my sons car while trying to park. i > managed to > sit on the couch for about 1/2 hour with heat packs but then i just > crawled > into bed. clothes on and everything. i think it is from the therapy on my > neck. it is just like i was a couple years ago. when it started over the > weekend i remember saying to my son. how did i live like this for 3 > years? > driving, working?? i remember i called my mom many days to pick me up > from > work because i was too afraid/dizzy to drive. she moved to florida > now, so > guess i'm glad i really don't have to go anywhere. part of me wants to > go to > the chiro, but i said i'd try to sty away while in therapy. otherwise > they > don't know if they are causing the problem or what. seems like the > class was > mainly talking about epidurals. he was bad with the equiptment. every > time > he'd say follow my arrow it would switch ahead about 5 pictures, then > he'd go > back. this would happen about 4-5 times before he'd just finish saying > what > he was saying. i couldn't sit still and felt i was disturbing everyone. > moving around, trying to hold up my head with my hands. i wanted to reach > around and give myself a massage but figured the ladies behind me > would get > upset. does anyone else ever feel this way? affect your neck?? they > told me > my muscles are really weak and can't hold up my torso anymore. kathy > in il > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2002 Report Share Posted February 24, 2002 Thanks Becky. Since my step daughter is going to be a new mom, this was especially touching. Hope you're having a pain free weekend. a MaBeck742@... wrote: > Thought you girls might enjoy this. It is so true. You all take care and > have a good week-end. > Be Blessed, Becky > > This may make you cry....but in a good way! > > Words about being a Mom > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2002 Report Share Posted March 24, 2002 you have now been un-subbed. Kendra (no subject) Stop sending me e-mails. I am getting over 50 emails a day from this group. I am not a member of your group and don't know why I am getting emails from you.Thank youFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2002 Report Share Posted May 25, 2002 Kate that is ok please resend the spreadsheet, I do not believe I got it...thanks LD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2002 Report Share Posted May 28, 2002 thanks, i'm sure the weather, lack of sleep and stress are causing that!! kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2002 Report Share Posted May 28, 2002 ---Kathy sounds like some of your problems are looking up, just wish you felt better. in WA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 Kathy...couldnt help it had to answer this...I too have really bad itchy rashes....I also test negative for lupus....but when they do cryoglobin....it comes back positive....when they did MRI of brain it showed CNS of lupus....rheumy said there is a criteria for diagnosis of Lupus....I have scleroderma worse then the lupus.... he calls it lupoderma...but just because it is a negative lupus test doesnt mean it is ruled out...I know you probably really didnt want to hear that,and I am sorry...but I dint want you to totally rule that out.....sorry.....Kathi in OK --- kringlemom@... wrote: > i went to my rheumi today and she says my rash is > not from prednisone. today > she told me i have reactive arthritis. they took > more blood to check for > inflammation today. so i read the symptoms and it > sounds like me, but so do > alot of other ones too, she tested me again in april > for lupus and it was > negative (thank god) but nothing else changes for > me. no miracle drugs. no > new treatments to try. i am going to try water > therapy again. she gave me the > script for that today. i made an appt with the > lawyer next monday. i made an > appt with the dermatologist this wednesday. kathy > itchy and blotchy in il > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 i forgot to say, my rheumi also mentioned ankylosing spondylitis. neither of these sound good to me, can i have both? kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 i have called my rheumi's office today and asked if they could run the std's as well. here we go again. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 no i had a bone scan years ago. it just said inflammatory spondylarthropy. i just think with everything going on she is trying to diagnose me. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 Kathy..I am not a doc but my understanding is it is not uncommon for people who have autoimmune diseases to have more than one....they even have names for them ie...lupus and RA is called rhupus....scleroderma and lupus is called lupoderma...it is different than the mixed connective tissue...as the tests for the mixed is neg...but the individual tests come out positive or there is different clinical presentations that will prove what they suspect...I am sure and a can shed more light on this than I as they are the inresident experts....have you had MRI of the spine that indicated ankylosing spondylitis?....if not that is usually the first way they try to confirm there suspicions...hope you are feeling a little less itchy...my rheumy sugested using Aveeno oatmeal soap when I get the itch...I also use Aveeno oil to help my hippo skin caused by the SD....it is pretty good stuff and the soap isnt to expensive...hope you get to feeling a little bettet...the second Kathi --- kringlemom@... wrote: > i forgot to say, my rheumi also mentioned ankylosing > spondylitis. neither of > these sound good to me, can i have both? kathy in il > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 Kathy...for your sake I hope she does...I know at first they diagnosed me with MS...I was never comfortable in that skin....so I drove them all nuts until they decided to do a bunch of tests...the MRIs were the first they did...and from that I got OH and OOO there is something going on here ...so dont give up....Kathi in OK --- kringlemom@... wrote: > no i had a bone scan years ago. it just said > inflammatory spondylarthropy. i > just think with everything going on she is trying to > diagnose me. kathy in il > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 thanks for your help and support!! kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2002 Report Share Posted July 11, 2002 thanks carol, i can't imagine how much more i am supposed to handle at once. it is just getting crazy. i can't even take a bubble bath anymore. i guess my family is going camping without me this weekend. i just don't feel right with all that is going on to be 4 hours from home, about 100 feet up a hill to the bathroom with my feet a hurtin and run a fever. plus maybe someone is still watching me. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 ((((((Kathy)))))) Sometimes it just seems like one more thing and you're going to drown. I'm having the same kind of day. I think I'm starting a flare and I'm so sore I could cry. I don't want to take the prednisone, but will if I'm not better by tomorrow. Hopefully things will get fixed for you with the SSA! Sending you a hug, Carol [ ] (no subject) ok, my life just keeps getting better!!! now today we got notice that dan's last pymt of ssa was last month. we have downloaded the form and will take it to the school, then we will take it right to ssa waukegan tomorrow. not sure if it'll get fixed in time!!!! so now i have no rent next month?!? i don't know how much more we can take here!!! you know i really should've bought stock in calgon!! my arms are so sore from the weight of the white flag. maybe thats why no one can see it. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 : Do you mind if I ask what this is before I download it? Sorry, with all the viruses, I'm a bit concerned! Thanks Debbie Abby'smom MI > > > ,,Jewels,and A.J. > > > > > > > > > > > > > > > > > > > .· ´¨¨)) -:¦:- > ¸.·´ .·´¨¨)) > ((¸¸.·´ ..·´ -:¦:- > -:¦:- Debbie ((¸¸.·´* > > > > > > > > > __________________________________________________ > > Introduce a friend to AOL and get FREE CASH! > <A HREF= " http://friend.aol.com/soaf/index.adp?12999 " >CLICK HERE to learn more.</A> > __________________________________________________ > > > > > > > > > > > > > > > > > > > > > AnGeL > > > > > > dont delete this, this isnt an ordinary chain letter and has nothing to dso > with fortune!!!!!!!!!! > > > > > > > > > > > > > cant remember who i sent this to before... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 I don't blame you, Kathy. I wouldn't want to go camping right now, either. I know we should push ourselves to do more, and I've been having a particularly hard time doing that lately. Nonetheless, when you feel terrible camping would be a little rough. Also, you make a good point about someone possibly watching you. Better to be safe. Hope you have a better day today! Hugs, Carol Re: [ ] (no subject) thanks carol, i can't imagine how much more i am supposed to handle at once. it is just getting crazy. i can't even take a bubble bath anymore. i guess my family is going camping without me this weekend. i just don't feel right with all that is going on to be 4 hours from home, about 100 feet up a hill to the bathroom with my feet a hurtin and run a fever. plus maybe someone is still watching me. kathy in il Quote Link to comment Share on other sites More sharing options...
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