(No subject)

[Guest guest]

Oh Deb, I have no words to say to you...what you are going through is very

unfair the memories of your dad's suffering I know only add to the fear and

frustration..but your path may not be the same...you are in my thoughts

daily...keep those Chicago thoughts spinning...remember the concerts in the

park...I was the one sitting on the horse statute in the park....marge

[ ] (no subject)

> Well, a new day a new way to get screwed by the medical community. Went

to

> see the ortho with bags packed and everything in tow only to find out that

> the ortho has changed his mind once again and no he is not going to take

out

> the infected knee joint. He thinks that the hole on the top of my knee is

> getting better so therefore, the infection must be getting better also.

So

> now maybe I can go see a plastic surgeon in 3-4 days and see if they are

> willing to close this lovely gap in my skin or I can try steri strips.

The

> hole goes down deep enough to see my knee cap. I am sure that this is

going

> to help the sepsis no end. When I suggested this procedure, he said it

was

> not a good option as he might miss a portion of the infection and if he

> removed the entire prosthesis there would be no way that the infection

would

> be left in my body. Sooooooo, I have now put steri strips on the hole and

in

> about 9 months this thing should look like something I used to have in my

> knee area. I suppose that as long as he feels that the infection is gone,

> there is no longer a need for the IV antibiotics that I am torturing

myself

> with. I will never trust another medical professional again if their

tongue

> came notarized. I think I have pretty much cried my tears out but every

so

> often, I find a spot that still has a few left. This is all doubly hard

to

> swallow because this is just how my Dad's problems started. He had an

> infection, they " thought " it was cured only to have it lie dormant and

then

> it reappeared and settled in his heel and within a few

weeks............dead.

> The pain from this non infection problem is unrelenting and that is what

> part of today's admission was to be was better pain control in preparation

> for the removal of the prosthesis.

>

> Thanks for reading thru my saga or if you lost interest and deleted, no

> problem. You have no idea the pain that this causes in addition to the

pain

> that we had originally sought help for. It will be a very very long time,

> before I am even a shadow of my former self.

>

> Debs in FL

>

>

>

[Guest guest]

<PRE>hope this works for you debs. you are definatly in my thoughts and prayers.

get better soon. kathy in il

[Guest guest]

Hi Deb,

I'm so glad you're home and feeling optimistic. You really need to get some

rest this weekend. You've been through so much.

Sending tons of love your way,

Carol

[ ] (no subject)

Hi all,

I have returned home once again with a very clean knee. No sign of

infection

and my C reactive protein has gone down to the normal range. Sed rate is

still elevated but the real infection seems to be subsiding.

I am extremely tired and weak (5 surgeries in 6 weeks), but very optimistic.

Thank you all for your good wishes and prayers.

Debs in FL

[Guest guest]

Hi Deb,

Glad you are home and there is no sign of infection. Hope you can just rest

and each day feel better. Being with your family is the best medicine.

Lynn (MeMom)

Auntblabbie2000@... wrote:

> Hi all,

>

> I have returned home once again with a very clean knee. No sign of infection

> and my C reactive protein has gone down to the normal range. Sed rate is

> still elevated but the real infection seems to be subsiding.

>

> I am extremely tired and weak (5 surgeries in 6 weeks), but very optimistic.

> Thank you all for your good wishes and prayers.

>

> Debs in FL

>

>

>

[Guest guest]

Congratulations and GodBless for continued good health.

Love,

[Guest guest]

Lucy: So glad to see you home again....please rest and recover....we

miss you....am praying this is your last trip for awhile....and am

waiting in anticipation for the day you have gone dancing in pink high

heeled sandals...love and hugs Kathi in OK

> Hi all,

>

> I have returned home once again with a very clean knee. No sign of

infection

> and my C reactive protein has gone down to the normal range. Sed

rate is

> still elevated but the real infection seems to be subsiding.

>

> I am extremely tired and weak (5 surgeries in 6 weeks), but very

optimistic.

> Thank you all for your good wishes and prayers.

>

> Debs in FL

[Guest guest]

Hi Carol,

Thank you for your kind wishes for my contiued recovery. It has been a very

long and rough road to try to get back my ability to walk. At times, , I

have receved very few encouragement letters, so this has been extra special

for me and coming from you, makes them all the more heartfelt. I do believer

that I have made the correct decision in this instance and can now see the

glass is half full instead of half of empty. I just have to be patient,

which has NEVER been my srong suit!!!! LOL.

Please let me know when the stork makes his delivery and I pray that our Lord

keeps a watchful eye over Mom and the new baby. I also pray that He keeps

another little wish to watch you, my dear sweet friend, for a safe trip. I,

too, will be going on no mail, perhaps permanently, so PLEASE try to keep in

touch!

I love you, my friend. Please feel better!

Deb

[Guest guest]

Debs,

I¹m so glad you¹re back home and hope this time it is for good. You¹ve been

through enough. It sounds like you¹re on the road to recovery and you sure

do deserve it. It sounds very encouraging especially your lab results.

Your body has been in a major battle and it will take awhile to get your

strength back. You need lots of R & R. I hope the pain is tolerable and

you can now get some sleep.

Hugs,

a

> Hi all,

>

> I have returned home once again with a very clean knee. No sign of infection

> and my C reactive protein has gone down to the normal range. Sed rate is

> still elevated but the real infection seems to be subsiding.

>

> I am extremely tired and weak (5 surgeries in 6 weeks), but very optimistic.

> Thank you all for your good wishes and prayers.

>

> Debs in FL

>

>

[Guest guest]

Shirl,

I will keep you and your daughter in my prayers. I¹m glad that your RA is

under control with your meds. I¹ve heard that the doctors were considering

giving Enbrel more often than twice a week, but you're the first that I¹ve

heard of getting more than twice. I¹m happy it is working for you.

a

> Dear Judi: Prayers coming your way for you and your daughter, everything

> will be ok, as that is God's plan.

>

> Pray for me too, daughter is in custody battle for her daughter and she is a

> wreck, went to court and now we have to go back as it was continued. Pray

> for us too!!

> Shirl In Casper, WY, I belong to the rheumatoid group, but haven't been

> online for a long time. Love to hear from all of you.

>

> My RA is doing pretty well now I am on three shots of embrel per week, plus

> prednisone, vioxx and a bunch of other meds.

>

> Shirl

>

>

[Guest guest]

I dunno know. She called yesterday and said that her Mom wanted to have a

little party for her and she was planning to take off early this afternoon.

She has a college test tomorrow that she HAS to be home for. Maybe Aunt

Blabbie's hearing is also going along with the other body parts. Oh well,

why not celebrate a birthday month? Maybe you get more presents that

way???????

Enjoy your evening!

Debs

[Guest guest]

Great to see you posting Debs! Talking to us will help beat the boredom of

being confined to bed. You will continue to be in my prayers.

a

> Thank you my friends & family on this board for the beautiful flowers, love

> and special prayers once again, during my knee escapades! The flowers were

> lovely, the prayers were heard by God, I am sure and the love always felt

> like a mink coat around my heart.

>

> You have all meant so much to me and I will always keep YOU in my heart and

> prayers.

>

> Love,

>

> Debs in FL

>

>

[Guest guest]

BBL,

I have to state that I find this to be quite lame, but here is part of the

hypothesis from their site.

--------------------------------------------------------------------------------

<SNIP> Also, the Board has been monitoring the emerging body of evidence related

to the immune system and its interactive messengers: interleukins and cytokines.

It appears that a dysregulated immune system state, whether triggered by a

virus, genetic disposition, intrauterine, prenatal, neonatal stress or trauma,

may account for the cognitive processing and other deficits seen in some

children with autism. This concept is supported by the lack of consistent

neurological/anatomical abnormalities and metabolic abnormalities in these

children. >>>We now know that neuro-polypeptides called cytokines can and do

restrict brain blood flow under certain conditions. In these children, we may be

looking at an immune system continually sending out signals to restrict brain

blood flow. <<<Whether this continues as an " auto-immune " reaction (whereby the

immune system continues this pathway with no active reason to do so) or is due

to the presence of a retro-viral or other viral process is open to further

research. However, the concept of an immune-related disease process in a large

number of these children appears unquestionable at this point in time. <SNIP>

http://www.nids.net/hypothesis.htm

--------------------------------------------------------------------------------

I don't think you could account for autistic symptoms solely by CNS blood flow,

it is just my opinion, and instead I consider that cytokines in excess as a

result of persistant infection (or perhaps auto-immune disorder) can act on, and

share second messengers that are used in neurotransmission, and influence

cellular processes and gene expression. Just to be clear, I do agree that

circulation might well be altered.

Jon.

(no subject)

Hi,

Thanks for the great article. Once again, I'd love to hear from anyone with

an idea re what transpires after the autoimmune response? What are the

things that actually may occur to lead those of us to have an aautism

spectrum disorder? thanks- BBL

[Guest guest]

Doris,

Please keep us posted on what happens. I can understand them wanting to

avoid paying for a bunch of phone calls for doctors in your area but if there

is no other doctor anywhere near you that can help it seems they may be

somehow talked into making an exception in some legitimate cases.

Gaylen

[Guest guest]

Aren't they the same thing?

(no subject)

Hi all,

do you think that whey proteins are problematic to our kids, as are casein

proteins? thanks- b.Lief

[Guest guest]

Hi Debs,

Well you answered my post. I hadn't seen you post and was a little

worried. I am so happy that they are using the HOME word. You have had a

terrible time. My prayers are with you,my friend.

Lynn (MeMom)

Auntblabbie2000@... wrote:

> Good Evening my very dear friends.

>

> I am sending you my phone number and address direct to my room. Best times

> to call is after 3:00 pm until 9:00 pm. As of today, they are actually

> saying the word HOME! Probably within the next 7-10 days. THERE IS NO

> PLACE LIKE HOME, THERE IS NO PLACE LIKE HOME, THERE IS NO PLACE LIKE

> HOME..........

> All I need are my red slippers, click them and Toto and I will be home in no

> time. From my fingers to God's ears!

>

> North Broward Medical Center

> 201 East Sample Road

> Pompano Beach, FLl 33064

> 954-545-5348 (direct to my private room)

>

> You have no idea how much I have missed all of you!

>

> As Always........................

>

> Debs

>

>

[Guest guest]

yes it looks interesting. let me know how it is. i also sent the link to my

mom. maybe she will get it for me. kathy in il

[Guest guest]

Hi Kathy,

I saw that book review on the about.com site, and followed the link and

ordered it. I think it looks really interesting. I'll let you know

how it is after I get it and read it.

How are you doing?

Love and hugs,

Carol

[ ] (no subject)

Date: 2/26/03 1:40:46 PM Central Standard Time

From: <A

HREF= " mailto:arthritis.guide@... " >arthritis.guide@...</A>

<A HREF= " mailto:kringlemom@... " >kringlemom@...</A>

Sent from the Internet (Details)

Arthritis

<A HREF= " #a " >In the Spotlight</A> | <A HREF= " #c " >More Topics</A> | <A

HREF= " #d " >Top Picks</A> | <A HREF= " #e " >What next?</A>

from Carol Eustice, your Editor and Guide

Is it human nature for people to always want what they don't have? For

disabled and chronically ill persons, the question is more complicated.

The

limitations imposed by disability steal away normalcy, even to the point

of

people being unable to work. What happens to their confidence? Does it

erode

rapidly when they are not working?

In the Spotlight

<A HREF= " http://glclk.about.com/?zi=8/GWD " >I'd Rather Be Working</A>

Book Review: It has been said that a person's self-esteem and self-worth

are

tied to their work. Imagine then what happens to good feelings about

" self "

when one becomes unable to work. More than 60 million Americans of

working-age live with a chronic illness or disability which makes

getting or

keeping a job very difficult. The vast majority of this group would

rather be

working than unemployed or underemployed.

[Guest guest]

Hey Kathy,

I'm so sorry you aren't feeling well right now.

You're in my prayers,

Hugs,

Heidi

[ ] (no subject)

i went to my rheumi yesterday, we are not going to change anything. despite

my few minor setbacks i have decided to keep going forward. this last weekend

being home and sick reminded me just what my life was like this time last year.

i wrote a 4 page letter to my dr about how miserable my life was. she is

suggesting i get another nerve conduction study on my legs as my feet and legs

have been going numb about to my knees. i told her i think it's from sitting at

the desk and i try to put my feet up as often as possible.she is thinking

peripheral neuropathy. i was checked with that before and was ok. so now to

find

one that will accept medicare. i am also following up with my gyne next

tuesday about the bleeding. it's time for another period, or not.....kathy in il

[Guest guest]

thanks heidi, i am hanging in there and again i realize how much different my

life is this year. last year i sat in the house sick all the time. watching

the world go by through my window and being very depressed. so even though i

had a rough week. it's still much better. boy you must be getting huge by now,

how are you feeling?? kathy in il

[Guest guest]

no pay yet,my boss is still out of town until tomorrow afternoon. so who

knows. my rheumi is out of town too. so today i only took 12.5 mgs. now this

evening i am running 99.3 normal for me is about 97.7. kathy in il

[Guest guest]

Kathy,

It's to bad your parents are going back to Florida. Have you ever

considered moving to Florida with them?

I hope your pay issues have been resolved. Shame on that doctor! He

belongs on 's " Doctor's " I'd Like To Kick " list. I hope you feel

better soon. Maybe you'd better get that hip x-rayed if it feels out of

place. I hope you tell your doctor how the prednisone is affecting you. I

can't see them increasing it when it makes you feel like this.

a

> day 2 of prednisone. yesterday i started out using my cane. my left hip kinda

> out of place. did 15 mgs yesterday. worked 6 hours. came home walked the

> dog. did the dishes, mowed the grass, did 2 loads of laundry, cleaned the

> furnace. i just can't sit idle too long. feels like my heart will jump out of

> my

> chest. can't imagine taking more!! it's like my body is sore but my brain is

> telling me to move. yes my hip still hurts. i think a visit to the

> chiropractor

> would help. but mine is expensive at $75 a visit. i haven't gotten reimbursed

> from medicare from the last visit yet. (he said i'd get about 1/2 back) i've

> done

> 7.5 mgs this morning and may take another 5 later. i tried to sleep at 11:30.

> i know i was still awake at 12:30. up at 5:30. my parents are coming out here

> for their last visit today. i'll see them again at a family part saturday,

> then they go back to florida. it's been nice to see them and they were here

> when

> i wasn't getting paid. don't know how i would have made it without their

> help. she will take me to the pharmacy today and get my 2 scripts out of hock.

> it

> is a beautiful day here. 75 and sunny blue skies. i hope to enjoy it today.

> hope everyone stays comfortable today. kathy in il

>

>

>

[Guest guest]

what is the age group in here anyways just curious????bj

[Guest guest]

Patty and I are probably the oldest ones on here, maybe Rogene and

Dimonds, but she may have used other nicknames hee hee, sorry to give

you away girl! ha, anyhow we have not all known eachother all that

long, but mostly we have supported each other through surgeries and

common illness that has bonded us together. Patty and I have a very

special relationship, as she was the very first woman who told me the

implants were making me ill, I read her story and just about passed

out, it was just like me. Anyhow that was way back when this group

was founded. I love it and will always feel a bond with the women

here.

Hugs

In , PACCOAST@a... wrote:

> How long have you all been communicating on this site that you know

each

> other so well??? Just curious.

[Guest guest]

I think you guys are a lot younger than I am.

Lynda

At 05:46 PM 4/22/2004, you wrote:

>Patty and I are probably the oldest ones on here, maybe Rogene and

>Dimonds, but she may have used other nicknames hee hee, sorry to give

>you away girl! ha, anyhow we have not all known eachother all that

>long, but mostly we have supported each other through surgeries and

>common illness that has bonded us together. Patty and I have a very

>special relationship, as she was the very first woman who told me the

>implants were making me ill, I read her story and just about passed

>out, it was just like me. Anyhow that was way back when this group

>was founded. I love it and will always feel a bond with the women

>here.

>Hugs

>

>

>

>

>

>

>In , PACCOAST@a... wrote:

> > How long have you all been communicating on this site that you know

>each

> > other so well??? Just curious.

>

>

>

>

>

[Guest guest]

I will be 40 in August, eek!

In , Lynda <coss@p...> wrote:

> I think you guys are a lot younger than I am.

>

> Lynda

>

>

> At 05:46 PM 4/22/2004, you wrote:

> >Patty and I are probably the oldest ones on here, maybe Rogene and

> >Dimonds, but she may have used other nicknames hee hee, sorry to

give

> >you away girl! ha, anyhow we have not all known eachother all that

> >long, but mostly we have supported each other through surgeries and

> >common illness that has bonded us together. Patty and I have a very

> >special relationship, as she was the very first woman who told me

the

> >implants were making me ill, I read her story and just about passed

> >out, it was just like me. Anyhow that was way back when this group

> >was founded. I love it and will always feel a bond with the women

> >here.

> >Hugs

> >

> >

> >

> >

> >

> >

> >In , PACCOAST@a... wrote:

> > > How long have you all been communicating on this site that you

know

> >each

> > > other so well??? Just curious.

> >

> >

> >

> >

> >