(No subject)

[Guest guest]

--How do I kindly ask you all to please stop sending me stuff?I wrote one letter of inquirey and now I am getting my email stuffed with letters of support....too many really....and it has been nearly a month....please don't send anything to copykat41@...scriptdoc@... nor to ppbrady2@... just don't have the space in ourboxes.....thanks for all the support you have already given.

--------- Original Message ---------

DATE: Thu, 22 Apr 2004 20:59:51

From: Baboola57@...

Cc: what is the age group in here anyways just curious????bj

[Guest guest]

,

I will check to see what you signed up for...if you

joined the group, you can change your membership

delivery options yourself. If you don't know how to do

that, let me know and I can change it for you if you'd

like.

Patty

--- Gordon <copykat41@...> wrote:

> --How do I kindly ask you all to please stop sending

> me stuff?

> I wrote one letter of inquirey and now I am getting

> my email

> stuffed with letters of support....too many

> really....and it

> has been nearly a month....please don't send

> anything to copykat41@...

> scriptdoc@...

> nor to ppbrady2@... just don't have the

> space in our

> boxes.....thanks for all the support you have

> already given.

>

> --------- Original Message ---------

> DATE: Thu, 22 Apr 2004 20:59:51

> From: Baboola57@...

>

> Cc:

>

> what is the age group in here anyways just

> curious????bj

>

>

[Guest guest]

I am 62.

Lynda

At 06:33 PM 4/22/2004, you wrote:

>I will be 40 in August, eek!

>

>

>

>

>

>

>In , Lynda <coss@p...> wrote:

> > I think you guys are a lot younger than I am.

> >

> > Lynda

> >

> >

> > At 05:46 PM 4/22/2004, you wrote:

> > >Patty and I are probably the oldest ones on here, maybe Rogene and

> > >Dimonds, but she may have used other nicknames hee hee, sorry to

>give

> > >you away girl! ha, anyhow we have not all known eachother all that

> > >long, but mostly we have supported each other through surgeries and

> > >common illness that has bonded us together. Patty and I have a very

> > >special relationship, as she was the very first woman who told me

>the

> > >implants were making me ill, I read her story and just about passed

> > >out, it was just like me. Anyhow that was way back when this group

> > >was founded. I love it and will always feel a bond with the women

> > >here.

> > >Hugs

> > >

> > >

> > >

> > >

> > >

> > >

> > >In , PACCOAST@a... wrote:

> > > > How long have you all been communicating on this site that you

>know

> > >each

> > > > other so well??? Just curious.

> > >

> > >

> > >

> > >

> > >

[Guest guest]

I am going to be 33 Tuesday.

Barby

[Guest guest]

In a message dated 4/23/2004 12:55:33 PM Eastern Standard Time, BARBY4271@... writes:

I am going to be 33 Tuesday.Barby

LET ME BE THE FIRST TO SAY HAPPY EARLY BIRTHDAY BARBY...........be proud cuz honey you look like your in your twenties......boy miss those days lol love BJ

[Guest guest]

BJ,

Thanks for the b-day wish and the compliment!

BARBY

[Guest guest]

I'm 25. - Colleen

From: Lynda <coss@...>

Reply-

Date: Thu, 22 Apr 2004 21:40:38 -0600

Subject: Re: Re: (no subject)

I am 62.

Lynda

At 06:33 PM 4/22/2004, you wrote:

>I will be 40 in August, eek!

>

>

>

>

>

>

>In , Lynda <coss@p...> wrote:

> > I think you guys are a lot younger than I am.

> >

> > Lynda

> >

> >

> > At 05:46 PM 4/22/2004, you wrote:

> > >Patty and I are probably the oldest ones on here, maybe Rogene and

> > >Dimonds, but she may have used other nicknames hee hee, sorry to

>give

> > >you away girl! ha, anyhow we have not all known eachother all that

> > >long, but mostly we have supported each other through surgeries and

> > >common illness that has bonded us together. Patty and I have a very

> > >special relationship, as she was the very first woman who told me

>the

> > >implants were making me ill, I read her story and just about passed

> > >out, it was just like me. Anyhow that was way back when this group

> > >was founded. I love it and will always feel a bond with the women

> > >here.

> > >Hugs

> > >

> > >

> > >

> > >

> > >

> > >

> > >In , PACCOAST@a... wrote:

> > > > How long have you all been communicating on this site that you

>know

> > >each

> > > > other so well??? Just curious.

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Thanks Patty for the B-day wish.

Barby

[Guest guest]

Patty: there is a lady in our office who has had silicone implants for 20 years and her left one has been slowly leaking for 5 years. You can tell it is deflating. She says she has no symptoms at all and doesnt feel the need to have it removed mainly because she doesnt want them replaced with saline. She is 63 years old!!!

VickiePACCOAST@... wrote:

Has anyone ever had ruptured implants and no symptoms of any problems? I'm just curious. If you have ruptured silicone implants and silicone has gotten into your lymph nodes, will you eventually run into problems? Or, perhaps not? Any input out there will be appreciated!

[Guest guest]

I think there may well be silicone deposits in my lymph nodes under my arm. I called Dr. Feng's office about this and the nurse said since I'm improving so well not to worry about another surgery right away but I should've had silicone mappings before the surgery, so they would've been able to see where the silicone was before they went in. If I do still have these deposit how iwll I know, any suggestions. She said a lot of people can do the silicone mapping, but are they doing it well? is the question. just wondering, michelleVickie <gracie17db@...> wrote:

Patty: there is a lady in our office who has had silicone implants for 20 years and her left one has been slowly leaking for 5 years. You can tell it is deflating. She says she has no symptoms at all and doesnt feel the need to have it removed mainly because she doesnt want them replaced with saline. She is 63 years old!!!

VickiePACCOAST@... wrote:

Has anyone ever had ruptured implants and no symptoms of any problems? I'm just curious. If you have ruptured silicone implants and silicone has gotten into your lymph nodes, will you eventually run into problems? Or, perhaps not? Any input out there will be appreciated!

[Guest guest]

Thank you! I sometimes wonder why that is missed so often. It is about

helping, and not about feelings. But, feelings are always a part of

life. If one feels they can help no more and feel they need no more help,

then maybe they do not need to be here anymore.

Lynda

At 08:54 PM 10/12/2004, you wrote:

>Everyone seems to be missing the important picture here on this

>site.....it's not about personal feelings towards other anonymous people -

>it's about implants and our stories to help one another. I'm sorry that

>this is taking on another forum -- let's be bigger than all of

>that!! Ladies, we need to focus on what is important......not that your

>feelings are not important - but there is a job and a message to

>carry! Don't forget that.....carry on!

>

>

>

[Guest guest]

What is a Matching Site?

Biocompare News - Gene Linked To Myelin Repair In The Brain - ... the School of Veterinary Medicine at the University of Cambridge and the Dana-Farber Institute at Harvard University, report that the gene Olig 1, thought to ... http://news.biocompare.com/newsstory.asp?id=62036 BBC NEWS | Health | MS damage repair mechanism found - ... Researchers at Cambridge and Harvard Universities have discovered a gene called Olig 1 can stimulate the re-growth of myelin. It ... http://news.bbc.co.uk/1/hi/health/4100721.stm OLIG-1 and 2 gene expression and oligodendroglial tumours. - ... khe.hoang-xuan@... OLIG 1/2 genes encode basic helix-loop-helix transcription factors that play a critical role in motor neurone and ... http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=PubMed & cmd=Retrieve & list_uids=11972795 & dopt=Citation OLIG-1 and 2 gene expression and oligodendroglial tumours. - OLIG 1/2 genes encode basic helix-loop-helix transcription factors that play a critical role in moto... Neuropathol Appl Neurobiol. 2002 Apr;28(2):89-94. ... http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=PubMed & list_uids=11972795 & dopt=Abstract [More results from www.ncbi.nlm.nih.gov] VIET NAM NET - ... Nhóm nghiên c?u dã phát hi?n ra r?ng, gien Olig 1 có th? kích thích myelin sinh tru?ng tr? l?i. Tru?c ... http://www.vnn.vn/khoahoc/suckhoe/2004/12/358198/ MS damage repair mechanism found - ... Researchers at Cambridge and Harvard Universities have discovered a gene, called Olig 1, that can stimulate the re-growth of myelin. ... http://www.worldroom.com/pages/health/dailynews/print12200420c.phtml Betterhumans > Brain "Insulation" Gene Found - ... American researchers from the Dana-Farber Cancer Institute at Harvard University in Massachusetts say that the gene, Olig 1, is essential for the myelin-repair ... http://www.betterhumans.com/News/news.aspx?articleID=2004-12-17-3 National Multiple Sclerosis Society - Current Funded Research - ... , PhD, is investigating the role of a protein called Olig 1 in the production of myelin in the brain. Olig 1 appears ... http://www.nationalmssociety.org/Research-.asp MS Trust | In the News - ... of Cambridge and American researchers from the Dana-Farber Cancer Institute at Harvard University in Massachusetts say that the gene, Olig 1, is essential for ... http://www.mstrust.org.uk/news/recentstories/article.jsp?id=159 Identifying the stem cell of the olfactory mucosa - ... Recently we have shown that a bHLH transcription factor called olig-1 is critically important in this process; remyelination is significantly impaired in olig ... http://www.brc.cam.ac.uk/documents/Robinproject2.doc

Page: 1 2 3 next >>

Mike

[Guest guest]

I am spms... using ldn and mannatach to overcome.

[low dose naltrexone] (no subject)

Anyone who is secondary progressiveon Tysabri?

[Guest guest]

In a message dated 3/25/2005 8:15:33 AM Central Standard Time, jenkews@... writes:

Hello everyone,

I have recently started LDN for MS, and would like to know what improvements any of you have experienced and in what sort of timescale. I know every 'body' is different, but I am in dire need of some positive [hopefully] anecdotal evidence, which will encourage me to carry on fighting this pernicious disease and give me heart to face tomorrow.

Regards,

.

,

LDN is the only thing to help me at all. I have better bladder control and more energy. It happened very quickly after starting.

Hang in there!

Marcie

[Guest guest]

Larry,

Does every one see a return of symptoms in reverse order? Your return

of each symptom that went away certainly did not last long. Hope you

continue experiencing the benefits of LDN.

[Guest guest]

,

Been on LDN four days and no longer have tingles in my hands or feet, less stiffness

in my legs, experiencing an elevated mood, and also, no bladder urgency. Did not

know when or what to expect in its reduction of MS symptoms. But so far so good!

Hope you have much success with LDN!

[Guest guest]

http://www.larrygc.com/mystory will take you to my thread with my history on my LDN EZboard ... compares how I was doing on Day 220 compared to my first few weeks, and some other follow ups after that.

[low dose naltrexone] (no subject)

Hello everyone,

I have recently started LDN for MS, and would like to know what improvements any of you have experienced and in what sort of timescale. I know every 'body' is different, but I am in dire need of some positive [hopefully] anecdotal evidence, which will encourage me to carry on fighting this pernicious disease and give me heart to face tomorrow.

Regards,

.

[Guest guest]

Hi ,

My husband had more energy after the first day. Within the first week we noticed better bladder control.

His dexterity has returned but that was a slow improvement. He has been on LDN now for about 3 months.

He still had strong depression until he began a diet (low fat, no beef, no glutens (wheat), no dairy), he started taking a lot of supplements, he changed his anti-depression medication to time release and he started taking DL-Phenylalanine.

I can send you a list of what has been taking. Just let me know. Please be patient, for some it takes a while to see benefits. But you are on the right tract.

Hang in there , we are all with you.

Aletha

[low dose naltrexone] (no subject)

Hello everyone,

I have recently started LDN for MS, and would like to know what improvements any of you have experienced and in what sort of timescale. I know every 'body' is different, but I am in dire need of some positive [hopefully] anecdotal evidence, which will encourage me to carry on fighting this pernicious disease and give me heart to face tomorrow.

Regards,

.

[Guest guest]

Day 13 here. Yes, I definitely see this revisiting pattern thing

with old symptoms, I am currently revisiting the drop foot era, just

watching my step and believing it too will subside. It seems not so

much reverse order as severity. This is useful imfo, thanks for

bringing it up. Liza

> Larry,

>

> Does every one see a return of symptoms in reverse order? Your

return

> of each symptom that went away certainly did not last long. Hope

you

> continue experiencing the benefits of LDN.

>

>

[Guest guest]

> Hello everyone,

> I have recently started LDN for MS, and would like to

> know what improvements any of you have experienced and in what sort of

> timescale. I know every 'body' is different, but I am in dire need of some

positive

> [hopefully] anecdotal evidence, which will encourage me to carry on fighting

> this pernicious disease and give me heart to face tomorrow.

> Regards,

> .

=============

,

You do know that LDN's main purpose is to halt MS or disease progression, not

improve symptoms? If one does get symptom improvement then that is an added

plus. Approximately two-thirds of people who go on LDN will possibly see some

symptom improvement.

My 14 straight year chronic progressive MS progression was halted dead in its

tracks by 4.5mg of LDN with lactose filler for 1 year and 8 1/2 months as of

today. No signs of any worsening at all.

[Guest guest]

HI JENNY,

I AM NOT ON THE BBD DIET. IWAS ON THE ROY SWANK DIET BUT NOW I AM MOSTLY JUST STAYING AWAY FROM THE FOODS THAT I FOUND OUT THAT I WAS ALLERGIC TO. I HAD AMAZING ENERGY BEFORE I TOOK MY FALL.. MAYBE I HAVE NOT GIVEN MYSELF ENOUGH TIME TO HEAL. THANKS FOR YOUR HELP

MARIE

[low dose naltrexone] (no subject)

Hi Marie,

Sorry to hear of your accident,hope you heal well.Are you on the 'bbd' as I have found that since being gluten,sugar,dairy product and legume free my energy levels have improved tremendously. If you are already doing the 'bbd' I'm afraid I cannot help except to think that the shock to your system will take time to heal.

Regards,

[Guest guest]

Sue,

I wish I could borrow your body long enough to get you

through the detoxes too! . . . I know you've had all

you want of being sick!

Have you tried eating a gluten free diet? . . . It can

make a huge difference if the villa in your intestines

are damaged . . . check for Celiac diets. That's what

is doing and has her son on. She said he was a

different child after five days on the diet. This

means absolutely no wheat or gluten products. Not an

easy diet to follow, but worth a try.

There's something called an " Elimination Diet " where

you cut back to just a few foods and slowly add other

foods. It can help determine which type of food your

body isn't handling well.

I'm doing pretty well, except that the pollen count is

extremely high, and I'm reacting for the first time

ever to outdoor allergens. Benedryl is doing the job

though. I don't particularly like how I feel on it,

but it's considerably better than without. We live in

a forest, so there are all kinds of pollen right now.

One of our silicone sisters has been sending me a ton

of reference information regarding implants, detoxing,

etc. I'm reluctant to post everything at once because

everyone would go into overload and not read it!

There's some very important information there!

I'm so glad you husband is supportive! That makes all

the difference! I feel so bad for the women who have

lost their husbands, homes and sometimes even kids

over all this!

Are you going to contact the doctor in England? Is he

anywhere nearby?

I'm so glad your son's foot is doing better! I think

you got on it just in time!

Be good to yourself! . . . Do what you are comfortable

with, and try not to stress. Stress alone is one of

the worst things for us! The fact that your hair is

regrowing is an excellent indication your body is

responding! Tell it " Thank You " and listen to the

clues it gives you!

Have you tried any homeopathic medicines? They contain

a miniscule amount of active ingredient, but often can

help.

Hugs and prayers,

Rogene

[Guest guest]

I ordered a copy of it.

Janet

[Guest guest]

> Subj: Janet s UIll from Mold at the Portsmouth Naval

Shipyard. 

> Date: 4/22/2005 2:15:49 PM Pacific Standard Time

> From: Gingersnap1964

Janet. Have you got Mold Warriors yet?

You desperately need it.

-

[Guest guest]

Serena,

Thank you for your thoughtfullness.

Janet