Re: Rich: recommendation supplemental regime

[Guest guest]

Hi rich

just quick one.

We all are very grateful for your tireless enthusiasm to help people

with CFS - with your new knowledge from DAN. How far do you think you

are in recommended a standard supplmental protocol to help people with CFS ?

my regime:

1) Whey protein Isolate

2) lactoferrin

3) Coconut oil & lauricidin

4)Probiotics

5)Protein enzymes

6) Sea Salt or Recup

7) Calcium

8) CoQ10

9) Vit B complex & Vit C

10) Licorice

11) Low Carb diet - no wheat and dairy - seeds/yoghurts / veg/ salads

12 ) Looking into SAM-e

Reagrds

CS

[Guest guest]

Hi, CS.

I think it will always be tough to recommend a standard supplemental

protocol in CFS as it is currently defined, because there are so

many subsets in the CFS population. I'm hopeful that as we learn

more, we will be able to divide the population into meaningful

subsets, and that will help us to come up with a supplement protocol

for each of them.

I'm hopeful that the gene variation measurements will help with

that. I think Amy Yasko is already pretty far along with this,

though she is focusing on autism, not CFS. In my view, much of what

she is doing will apply to CFS as well.

We may also have to come up with a limited set of other tests to

help separate the subsets. I don't know enough yet to list all of

them at this point.

I do think that we should do arterial blood gases testing if carbon

monoxide poisoning is a possibility, to separate out that subset.

I also think that Dr. Shoemaker's visual contrast sensitivity test

should be used to separate out the subsets with biotoxins, which

would include the people with mold sensitivity, Lyme disease, and

some others.

Lyme disease testing (as well as testing for the other tick-borne

diseases) is also important, even though all the cases can't be

identified with current tests, even the best ones.

I'm not sure yet about the two vitamin D tests. If there is enough

data to support them (which I haven't seen yet), perhaps they could

be used to separate out those who have intracellular bacterial

infections that are dominating their illness.

I think that when the SAMe/SAH ratio test becomes available, that

will separate out the subset with methylation cycle block.

I like glutathione testing and the BioLab Medical Unit testing of

ATP Profile, which seem to be able to discriminate between some

subsets. I also like the urinary organic acids test and the

chelator-provoked urine collection for heavy metals.

There may be others that have slipped my mind right now. I haven't

done a lot of careful thinking about this yet, because I think it's

too soon to be able to arrive at a complete set. Eventually, we

should be able to get it down to a decision-tree format.

Rich

>

> Hi rich

>

> just quick one.

>

> We all are very grateful for your tireless enthusiasm to help

people

> with CFS - with your new knowledge from DAN. How far do you think

you

> are in recommended a standard supplmental protocol to help people

with CFS ?

>

> my regime:

>

> 1) Whey protein Isolate

> 2) lactoferrin

> 3) Coconut oil & lauricidin

> 4)Probiotics

> 5)Protein enzymes

> 6) Sea Salt or Recup

> 7) Calcium

> 8) CoQ10

> 9) Vit B complex & Vit C

> 10) Licorice

> 11) Low Carb diet - no wheat and dairy - seeds/yoghurts / veg/

salads

> 12 ) Looking into SAM-e

>

>

> Reagrds

> CS

>

>

>