Guest guest Posted March 2, 2006 Report Share Posted March 2, 2006 Rich, So sorry to hear of your recent deluge of bad luck. I know we all feel for you. I have long questioned whether the high protein diet the doctor has us on may be contributing to our debilitating symptoms. I will try cutting down as an experiment and see if there is any improvement. So other than reducing protein intake, what else can a person do to counteract this? What is effective in addressing the ammonia and hydrogen sulfide? As always, Thanks Rich bf From: rvankonynen Sent: Thursday, March 02, 2006 1:15 PM Subject: Re: leg symptoms This is a bad one, and the effects of it are worse if the person consumes a lot of protein, because that produces more ammonia and hydrogen sulfide. Rich Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2006 Report Share Posted March 3, 2006 Hi, Barbara. Thank you. I want to emphasize that this CBS C699T genetic variation affects only a subset of PWCs. I don't know how large this subset is, but I suspect it's not too large. But for people who do have this genetic variation, Amy Yasko suggests a low-protein diet, minimization of foods and supplements that contain a lot of chemically reduced sulfur (such as garlic, onions, the brassica family of vegetables, MSM, glutathione, whey protein, NAC, SAMe, ALA, L-cysteine, and sulfur-based chelating agents such as DMSA and DMPS), use of oral activated charcoal or bentonite clay to bind ammonia in the gut and carry it out in the stools, efforts to knock out ammonia-producing bacteria in the gut, to further decrease the ammonia load, and use of " Ammonia Support RNA. " This is available from Garry Gordon's website: http://www.longevityplus-rna.com/store/product.php?productid=46 She also recommends taking a small amount of P5P. I'm not sure what dose yet. She also uses a mitochondrial support formula, which includes carnitine, coenzyme Q-10, NADH, and ATP, and she says that helps, also. I think she sells that on her website http://www.holisticheal.com. As you can see, this protocol rules out many of the things a person might use for other subsets of CFS, so it is important to determine whether a person has this genetic variation so as not to make them worse instead of better. Rich > > Rich, > > So sorry to hear of your recent deluge of bad luck. I know we all feel for you. > > I have long questioned whether the high protein diet the doctor has us on may be contributing to our debilitating symptoms. I will try cutting down as an experiment and see if there is any improvement. > > So other than reducing protein intake, what else can a person do to counteract this? What is effective in addressing the ammonia and hydrogen sulfide? > > As always, > Thanks Rich > bf > > > From: rvankonynen > > Sent: Thursday, March 02, 2006 1:15 PM > Subject: Re: leg symptoms > > > > This is a bad one, and the effects of it are worse if the person > consumes a lot of protein, because that produces more ammonia and > hydrogen sulfide. > > Rich > > > > Quote Link to comment Share on other sites More sharing options...
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