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Rich: Re: leg symptoms

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Rich,

So sorry to hear of your recent deluge of bad luck. I know we all feel for you.

I have long questioned whether the high protein diet the doctor has us on may be

contributing to our debilitating symptoms. I will try cutting down as an

experiment and see if there is any improvement.

So other than reducing protein intake, what else can a person do to counteract

this? What is effective in addressing the ammonia and hydrogen sulfide?

As always,

Thanks Rich

bf

From: rvankonynen

Sent: Thursday, March 02, 2006 1:15 PM

Subject: Re: leg symptoms

This is a bad one, and the effects of it are worse if the person

consumes a lot of protein, because that produces more ammonia and

hydrogen sulfide.

Rich

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Hi, Barbara.

Thank you.

I want to emphasize that this CBS C699T genetic variation affects

only a subset of PWCs. I don't know how large this subset is, but I

suspect it's not too large. But for people who do have this genetic

variation, Amy Yasko suggests a low-protein diet, minimization of

foods and supplements that contain a lot of chemically reduced

sulfur (such as garlic, onions, the brassica family of vegetables,

MSM, glutathione, whey protein, NAC, SAMe, ALA, L-cysteine, and

sulfur-based chelating agents such as DMSA and DMPS), use of oral

activated charcoal or bentonite clay to bind ammonia in the gut and

carry it out in the stools, efforts to knock out ammonia-producing

bacteria in the gut, to further decrease the ammonia load, and use

of " Ammonia Support RNA. " This is available from Garry Gordon's

website:

http://www.longevityplus-rna.com/store/product.php?productid=46

She also recommends taking a small amount of P5P. I'm not sure what

dose yet. She also uses a mitochondrial support formula, which

includes carnitine, coenzyme Q-10, NADH, and ATP, and she says that

helps, also. I think she sells that on her website

http://www.holisticheal.com.

As you can see, this protocol rules out many of the things a person

might use for other subsets of CFS, so it is important to determine

whether a person has this genetic variation so as not to make them

worse instead of better.

Rich

>

> Rich,

>

> So sorry to hear of your recent deluge of bad luck. I know we all

feel for you.

>

> I have long questioned whether the high protein diet the doctor

has us on may be contributing to our debilitating symptoms. I will

try cutting down as an experiment and see if there is any

improvement.

>

> So other than reducing protein intake, what else can a person do

to counteract this? What is effective in addressing the ammonia and

hydrogen sulfide?

>

> As always,

> Thanks Rich

> bf

>

>

> From: rvankonynen

>

> Sent: Thursday, March 02, 2006 1:15 PM

> Subject: Re: leg symptoms

>

>

>

> This is a bad one, and the effects of it are worse if the person

> consumes a lot of protein, because that produces more ammonia

and

> hydrogen sulfide.

>

> Rich

>

>

>

>

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