Guest guest Posted March 18, 2006 Report Share Posted March 18, 2006 I really like this terse list off the site of these specialty centers kindly posted and listed below. Has anyone a copy of any really cutting-edge research articles or power point presentations on cause and treatment? If yes, and ethical to forward a copy, would love to read: jschaller@... While they probably would also add some things themselves, it is a very nice starting list that is manageable. Thanks, Schaller, MD http://www.fibroandfatigue.com/clinical.htm THEY POST: CFIDS/Fibromyalgia a.. Basic Dysfunctions b.. Associated Conditions c.. New Standard of Treatment d.. Multi-faceted Treatment Approach is Best e.. Are all CFS/FM patients low thyroid? f.. Neurotoxins g.. Mitochondria Dysfunction h.. RNAse-L i.. Hypercoagulable State j.. Irritable Bowel Syndrome (IBS) and CFS/FM k.. Immune Support Interview #1 - Dr. Kent Holtorf l.. Immune Support Interview #2 - Dr. Kent Holtorf and Bob Baurys m.. Immune Support Interview #3 - Dr. Larry Sharp n.. Lyme Disease o.. The 2004 eFibro FMS/CFIDS Annual Survey Results p.. Studies with Comments a.. Cardiac dysfunction and EBV/CMV b.. Thyroid Resistance c.. Adrenal Function d.. NK Cell Function e.. Multifaceted Treatment #1 f.. Multifaceted Treatment #2 g.. Acetylchoinesterase Inhibitor h.. Pyridostigmine Re: Are All Chronic Fatigue Syndrome/Fibromyalgia Patients Low Thyroid? > Not everyone (immunesupport.com has a board that talks about it a > lot. Feedback is 90% positive, I would say) > > I would recommend it even though I don't agree with absolutely > everything they do. Many patients are treated " out of state " if you > are interested. > > I drive only 1/2 hour and there are folks there from the other side > of Michigan (4 hour drive) and Indiana. > > Also, it's VERY expensive. Worth it in my book. > > >> >> > Newbie question. What does FFC stand for please? >> >> Sorry. Fibromyalgia And Fatigue Centers. They're a new and growing >> national network of clinics specializing in CFS. Dr. Kent Holtorf > of >> LA is the founder. >> >> Several people on this list are clients at their various clinics, > and >> we're having an ongoing discussion about the network's approach to >> CFS and the similarities and differences between the various > clinics. >> >> Their website is <www.fibroandfatigue.com>. >> >> Sara >> >> >> >> This list is intended for patients to share personal experiences > with each >> other, not to give medical advice. If you are interested in any > treatment >> discussed here, please consult your doctor. >> Quote Link to comment Share on other sites More sharing options...
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