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I really like this terse list off the site of these specialty centers kindly

posted and listed below. Has anyone a copy of any really cutting-edge

research articles or power point presentations on cause and treatment?

If yes, and ethical to forward a copy, would love to read:

jschaller@...

While they probably would also add some things themselves, it is a very nice

starting list that is manageable.

Thanks,

Schaller, MD

http://www.fibroandfatigue.com/clinical.htm THEY POST:

CFIDS/Fibromyalgia

a.. Basic Dysfunctions

b.. Associated Conditions

c.. New Standard of Treatment

d.. Multi-faceted Treatment Approach is Best

e.. Are all CFS/FM patients low thyroid?

f.. Neurotoxins

g.. Mitochondria Dysfunction

h.. RNAse-L

i.. Hypercoagulable State

j.. Irritable Bowel Syndrome (IBS) and CFS/FM

k.. Immune Support Interview #1 - Dr. Kent Holtorf

l.. Immune Support Interview #2 - Dr. Kent Holtorf and Bob Baurys

m.. Immune Support Interview #3 - Dr. Larry Sharp

n.. Lyme Disease

o.. The 2004 eFibro FMS/CFIDS Annual Survey Results

p.. Studies with Comments

a.. Cardiac dysfunction and EBV/CMV

b.. Thyroid Resistance

c.. Adrenal Function

d.. NK Cell Function

e.. Multifaceted Treatment #1

f.. Multifaceted Treatment #2

g.. Acetylchoinesterase Inhibitor

h.. Pyridostigmine

Re: Are All Chronic Fatigue

Syndrome/Fibromyalgia Patients Low Thyroid?

> Not everyone (immunesupport.com has a board that talks about it a

> lot. Feedback is 90% positive, I would say)

>

> I would recommend it even though I don't agree with absolutely

> everything they do. Many patients are treated " out of state " if you

> are interested.

>

> I drive only 1/2 hour and there are folks there from the other side

> of Michigan (4 hour drive) and Indiana.

>

> Also, it's VERY expensive. Worth it in my book.

>

>

>>

>> > Newbie question. What does FFC stand for please?

>>

>> Sorry. Fibromyalgia And Fatigue Centers. They're a new and growing

>> national network of clinics specializing in CFS. Dr. Kent Holtorf

> of

>> LA is the founder.

>>

>> Several people on this list are clients at their various clinics,

> and

>> we're having an ongoing discussion about the network's approach to

>> CFS and the similarities and differences between the various

> clinics.

>>

>> Their website is <www.fibroandfatigue.com>.

>>

>> Sara

>>

>>

>>

>> This list is intended for patients to share personal experiences

> with each

>> other, not to give medical advice. If you are interested in any

> treatment

>> discussed here, please consult your doctor.

>>

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