Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 I disagree with Bernie, I have known a Lot of people with CFIDS over the years who have had serious health repercussions from being administered anesthesia during surgeries. I think many of us are at different stages of this illness or have different tolerances. Soon after I first got sick, over 20 yrs ago, I was able to handle some anesthesia for surgery for a burst appendix, I was also able to handle some to have root canals done. But then the second time I went back to finish the root canals, I reacted to the anesthesia. I know having been so ill for so long & my health worsening & having many more symptoms & health complications, I would not be able to handle anesthesia safely. I just hope I never have to have surgery. I know my body is very sensitive to most drugs & even herbs. So I think it is up to the individual to take their general level of health & sensitivities under consideration when exploring the affects of anesthesia. C J Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 Somewhere I have Dr Cheney's letter about what is best for anesthesia. I'm down with a head ache and will try to get the information to you. Do you or your friend have a fax? I could have my husband fax it from work. Let me know if that is possible. Blessings - L On Apr 13, 2006, at 5:17 PM, Du Pre wrote: > > Hello, > > This friend has a question regarding upcoming arthroscopic surgery I > & anesthesia . I > would like to get some feedback from you folks . Her questions are > listed below in her > e-mail . > Du Pre > Website: http://www.angelfire.com/poetry/soareagle/index.html > " By words the mind is winged. "  Aristophanes > > " I'm going to have some arthroscopic surgery on my right shoulder to > remove a fairly > large calcium deposit that is causing pain, pain, pain. > > My question is do you know of any documentation I can present to the > anesthesiologist > so I can inform him or at least try to communicate that CFIDS > patients do not recover > like the normal patient. Is there any drugs he should not use? > > The surgery is an outpatient thing and my Ortho said I'd be down one > or two days. > It's been my experience that I take much longer to recover from > procedures of any > type. I'm just trying to go in armed and ready. > > Thanks for any thoughts you might have. > > Create a great day! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 > > > Hello, > > This friend has a question regarding upcoming arthroscopic surgery I & anesthesia . I > would like to get some feedback from you folks . Her questions are listed below in her > e-mail . ***Hi - I know of several people with CFS who have had surgery in the past couple of years and have not had a problem with anesthesia. The drugs that have been recommended in the past for CFS patients are now obsolete. I think it is somewhat of a " myth " that CFS patients cannot tolerate anesthesia. Take care. Bernie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 I think it is somewhat of a " myth " that CFS patients cannot tolerate anesthesia. Take care. Bernie I 'wish'. My last surgery my heart stopped on the table because the 'did' use all the drugs Cheney had on the do not use list. I don't think one can be 'too' careful. That kinda messed my heart up for awhile and took months to get over the anesthesia for me. marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 On Apr 13, 2006, at 5:56 PM, bernieanneca wrote: > ***Hi - I know of several people with CFS who have had surgery > in the past couple of years and have not had a problem with > anesthesia. The drugs that have been recommended in the past for CFS > patients are now obsolete. I think it is somewhat of a " myth " that > CFS patients cannot tolerate anesthesia. I have a horrible time with anesthesia. Right now, I'm in my ninth month of avoiding a needed knee surgery than go through with it: it is literally so bad that I'd rather never kneel or climb a staircase foot-over-foot again than brave the hell I know is coming. They almost lost me on the table the last time I had surgery, while trying to wake me up. I think they used an epinepherine-type drug to revive me. I don't do epi AT ALL well: my BP shot up over 200, shooting extra blood into the surgery site causing clots that complicated healing. It gave the surgeon a hell of a scare, and he apologized mightily for the bruises. Rich has recently speculated (due to my reaction to SAMe) that I have a genetic issue that makes it hard for me to clear epinepherine, opiates, steroids, and other drugs commonly used to manage surgery. It would explain a lot. I always tell the anesthesiologists up front that I've got this little problem, and they need to use a light hand with me. They always ignore me. And so I always wake up panic-stricken and in pain; and am good and sick for at least a couple weeks afterward. This has gone on through half a dozen various surgeries over the past 20 years, and I don't count on this next one being one whit different. You're free to think it's a " myth " , Bernie. For me, it's a stone cold reality that is keeping me off the operating table unless my life is on the line. Sara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 They almost lost me on the table the last time I had surgery, thats what happened to me last time too, I just 'pray' Inever need another surgery! Rich has recently speculated (due to my reaction to SAMe) that I have a genetic issue that makes it hard for me to clear epinepherine, opiates, steroids, and other drugs commonly used to manage surgery. It would explain a lot. that might explain my prob too, and a lot of others. I always tell the anesthesiologists up front that I've got this little problem, and they need to use a light hand with me. They always ignore me. WOW, they did the same to me!!!! I told them about the problem and they went ahead and used those drugs anyway and nearly killed me, sorry to hear that happened to you too and that its 'not' such an isolated problem. You're free to think it's a " myth " , Bernie. For me, it's a stone cold reality that is keeping me off the operating table unless my life is on the line. Same here Sara!!! They nearly killed me last time, so they aren't getting any more chances if I can help it ! Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 HI , I certainly don't mean to discount anyone else's experience or research, but I can share with you my personal experiences with surgeries. I have had several since being diagnosed. The only trouble I have ever had with anesthesia is that I was once told I was combative. Also, I always get nauseated, but if you tell the anesthesiologist that beforehand, they can give you Zofran, which is very effective at preventing nausea. Your friend's concern of the recovery taking longer, however, is a very valid one. I will give you this example. I had a left knee arthroscopy in Dec 2000 (before I was sick). After the surgery, I took nothing more than Advil for pain and was walking again in less than a month. In Nov 2003 (after being diagnosed), I had another left knee arthroscopy. It was even the same surgeon. There were no other variables. After the surgery, I needed percocet and steroids for pain and swelling. I needed to get a refill on my percocet, which I had never before done. I ended up needing PT with more steroids just to get the swelling down and didn't walk normally for months. So, I am not sure that I have offered anything helpful, but your friend said she wanted to be prepared. I hope that things go well for her. I think that while it is true that some pwc's do react to anesthesia, not everyone will. Take care, Dawn M Hello,> > This friend has a question regarding upcoming arthroscopic surgery I & anesthesia . I > would like to get some feedback from you folks . Her questions are listed below in her > e-mail .> Du Pre> Website: http://www.angelfire.com/poetry/soareagle/index.html> " By words the mind is winged. " Aristophanes> > " I'm going to have some arthroscopic surgery on my right shoulder to remove a fairly > large calcium deposit that is causing pain, pain, pain.> > My question is do you know of any documentation I can present to the anesthesiologist > so I can inform him or at least try to communicate that CFIDS patients do not recover > like the normal patient. Is there any drugs he should not use?> > The surgery is an outpatient thing and my Ortho said I'd be down one or two days. > It's been my experience that I take much longer to recover from procedures of any > type. I'm just trying to go in armed and ready.> > Thanks for any thoughts you might have.> > Create a great day!> > It's the future, it's here, and it's free: Windows Live Mail beta http://www2.imagine-msn.com/minisites/mail/Default.aspx?locale=en-us Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2006 Report Share Posted April 14, 2006 Interesting to hear this about CFS and anesthesia as I, too, have had terrible reactions to it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2006 Report Share Posted April 14, 2006 , til you get 's letter, there are some basic guidelines on the website of the National CFIDS Foundation. The main consistant thing I recall is to avoid Histamine releasers. Katrina In , " Du Pre " <isaiah40@...> wrote: > > > Hello, > > This friend has a question regarding upcoming arthroscopic surgery I & anesthesia . I > would like to get some feedback from you folks . Her questions are listed below in her > e-mail . > Du Pre > Website: http://www.angelfire.com/poetry/soareagle/index.html > " By words the mind is winged. " Aristophanes > > " I'm going to have some arthroscopic surgery on my right shoulder to remove a fairly > large calcium deposit that is causing pain, pain, pain. > > My question is do you know of any documentation I can present to the anesthesiologist > so I can inform him or at least try to communicate that CFIDS patients do not recover > like the normal patient. Is there any drugs he should not use? > > The surgery is an outpatient thing and my Ortho said I'd be down one or two days. > It's been my experience that I take much longer to recover from procedures of any > type. I'm just trying to go in armed and ready. > > Thanks for any thoughts you might have. > > Create a great day! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2006 Report Share Posted April 16, 2006 Bernie, It is NOT a myth. I have seen the consequences of overloading the livers P450 enzyme system. It's not an experience you want. Mel Re: Re: Surgery Question? I think it is somewhat of a " myth " that CFS patients cannot tolerate anesthesia. Take care. Bernie I 'wish'. My last surgery my heart stopped on the table because the 'did' use all the drugs Cheney had on the do not use list. I don't think one can be 'too' careful. That kinda messed my heart up for awhile and took months to get over the anesthesia for me. marcia Quote Link to comment Share on other sites More sharing options...
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