Guest guest Posted June 15, 2006 Report Share Posted June 15, 2006 HI Deb, You might try GT-EX, its made by Thorne. This did help me increase my blood pressure. It also supposed to increase blood volume. You can get it at: www.vitamins4you.com Janet in San Diego twobenergy <twobenergy@...> wrote: Hi, I need some help again. There are no doctors or much information around that can help with this blood volume problem. My blood pressure has been dropping steadily and started low. It was 98/54 yesterday at the doc's after activity. I do also have NMH. I saw a brilliant clinician today who told me that my bone marrow isn't making any cells and that's why my immune system is flatlined as well. I told him about PWCs often having up to 50% reduced blood volume. He told me that concurs with his opinion. So, it isn't lack of water causing the low volume since I drink tons. It's as if my body is just shutting down. I can't assimilate nutrients or water. Blood tests come out with normal levels because my BV is low, so what nutrition I have appears to be more on tests due to condensation in less blood. Does any one know any solutions for increasing blood volume or getting the bone marrow to start producing more cells? Happy summer days, Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2006 Report Share Posted June 16, 2006 Hi, Deb. I'm sorry about your lowering blood volume and blood pressure. Although I can't claim to have the last word on this, I don't think the primary problem is with the bone marrow. Instead, I think the sequence of events is more like the following: I think it starts with a genetic predisposition that involves the early part of the sulfur metabolism, including the methylation cycle. Then there are some circumstances in the person's life that place demands on glutathione. These can be physical, chemical, biological or psychological/emotional, or some combination of those. When the glutathione level gets low enough, it interacts with the genetic variations, and a vicious circle is established, which puts a block in the methylation cycle and holds down the glutathione level chronically. Over the course of time, the depletion of glutathione has some other effects. One of them is a decrease in production of arginine vasopressin by the hypothalamus, by the mechanism that I described not too long ago. This produces diabetes insipidus, which lowers the blood plasma volume. If the blood plasma volume were to go down while the total number of red blood cells remained the same or increased, the viscosity of the blood would go up (this would be evidenced by an elevated red blood cell count, which is the number of RBCs per unit volume of blood). This would make it more difficult to pump the blood through the arterial system, and would raise the blood pressure, and it would increase the risk of having a stroke. Accordingly, I suspect that the kidneys, which regulate the maturation of red blood cells by secretion of erythropoeitin (which signals the bone marrow to produce more red blood cells) decrease the production of red blood cells to keep this from happening. The evidence for this is that we don't usually hear of an elevated red blood cell count in PWCs, even though they have diabetes insipidus and resulting low blood volume. Therefore, the kidneys must be compensating. Another consequence of the glutathione depletion, in my opinion, is diastolic dysfunction of the heart, as observed by Dr. Cheney and now Dr. Enlander as well. This accounts for the low cardiac output first reported by Dr. Peckerman and confirmed by Dr. Cheney. I think that the low blood pressure is a combined result of diastolic dysfunction and the low blood volume, which means a low venous return and preload to the heart. The reason I've said all this is to make the case that I think that in order to remedy the low blood volume and the low blood pressure, it will be necessary to correct the glutathione depletion, and to do that, in many cases it will be necessary to compensate for the genetic variations involving the methylation cycle, in order to break the vicious circle and allow the glutathione level to rise. If you want to test whether this hypothesis applies to your case, you might start by getting the red blood cell total glutathione test from http://www.immuno-sci-lab.com. If it comes out low, then I think the best next step is to look into your genetic variations by getting the panel offered at http://www.testing4health.com. When you know your genetic variations, you can target them with the appropriate supplements. Hopefully, that will break the vicious cycle, and then you can bring your glutathione level up. When that comes up, there should be a lot of improvements, including correction of the low blood volume and low blood pressure. This will take some time, though. And I need to emphasize that this is a hypothesis. I think there is quite a bit of evidence for it in many cases, but we have a heterogeneous population, and the same model will not fit everyone. At least this gives you something to consider. Rich > > Hi, > > I need some help again. There are no doctors or much information around that can help with > this blood volume problem. My blood pressure has been dropping steadily and started low. It > was 98/54 yesterday at the doc's after activity. I do also have NMH. > > I saw a brilliant clinician today who told me that my bone marrow isn't making any cells and > that's why my immune system is flatlined as well. I told him about PWCs often having up to > 50% reduced blood volume. He told me that concurs with his opinion. > > So, it isn't lack of water causing the low volume since I drink tons. It's as if my body is just > shutting down. I can't assimilate nutrients or water. Blood tests come out with normal levels > because my BV is low, so what nutrition I have appears to be more on tests due to > condensation in less blood. > > Does any one know any solutions for increasing blood volume or getting the bone marrow to > start producing more cells? > > Happy summer days, Deb > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2006 Report Share Posted June 16, 2006 Rich-- So does that mean I'm weird? On my latest blood work, my RBC and Hematocrit were both high. Only a little though: RBC 5.14 (ref. 3.90-5.10), Hematocrit 48.9 (ref. 36.0-48.2). Thanks! Trina rvankonynen <richvank@...> wrote: The evidence for this is that we don't usually hear of an elevated red blood cell count in PWCs, even though they have diabetes insipidus and resulting low blood volume. Therefore, the kidneys must be compensating. We Made Changes Your email is all new. Learn More Share Feedback Recent Activity 17 New Members Visit Your Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2006 Report Share Posted June 16, 2006 --Dr. Cheney has a recipe " Homebrew " to help increase blood pressure which I have been using since I read about it 2 years ago. It is 1/8 tsp Sea Salt, 1/8 tsp No Salt (contains Potassium) and and whatever else u need to make it palatable. I also add lemon juice, Splenda, and no-sugar lemon flavoring. No Nutrasweet. He says to drink 4-6 glasses a day. I drink about 5 glasses a day. Start slowly. Zuzu - In , " twobenergy " <twobenergy@...> wrote: > > Hi, > > I need some help again. There are no doctors or much information around that can help with > this blood volume problem. My blood pressure has been dropping steadily and started low. It > was 98/54 yesterday at the doc's after activity. I do also have NMH. > > I saw a brilliant clinician today who told me that my bone marrow isn't making any cells and > that's why my immune system is flatlined as well. I told him about PWCs often having up to > 50% reduced blood volume. He told me that concurs with his opinion. > > So, it isn't lack of water causing the low volume since I drink tons. It's as if my body is just > shutting down. I can't assimilate nutrients or water. Blood tests come out with normal levels > because my BV is low, so what nutrition I have appears to be more on tests due to > condensation in less blood. > > Does any one know any solutions for increasing blood volume or getting the bone marrow to > start producing more cells? > > Happy summer days, Deb > Quote Link to comment Share on other sites More sharing options...
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