Re: Need help with Dr G\'s protocol

[Guest guest]

On Wed, 16 Aug 2000 14:40:42 -0400 Ann Lovell <lovell@...> wrote:

>I'm wondering if our situation is unique; hopefully some might be willing to

share their experiences.

>

>1. Our son tests positive for HH6. We've tried both antivirals suggested

(Valtrex and famvir) and our son definitely responded to both. He

>ultimately became nothing short of a violent, angry child. I went through 4

weeks of " die off " with one of the drugs, and two weeks on

>another. He only became worse with time. He became so bad that he was

threatened with removal from school. We now have to have a full time

>personal aid with him because of his behavior on these drugs (which he is off,

but I guess the school is still concerned). Has anyone else had

>a HH6 positive kid who could not take antivirals? If so, what did you do?

>

>2. Our son also tested very positive for yeast. After 4 months straight on

nizoral, I can a CDSA through Great Smokies with him still taking

>the Nizoral; it still came back positive! In addition, he had been getting 1

culturelle a day; he cam back with NO acidophillus at all.

>

>We're scheduled to speak with Dr. Goldberg in another couple of weeks, but I

guess I just need to hear from someone on whether this is typical

>or atypical. It is clear he can not handle the antivirals; since the nizoral

doesn't seem to be helping, I'm wondering why I should keep him

>on something which is so hard on the liver. Are we just a " non-responder " to

the protocol?

>

>Thanks for any input.

>ann

>Hi Ann, I just feel I have to respond to you. I feel badly that you have

experienced this with your child. My son has responded to the Valtrex, butnot

as positively so we moved on to Famvir which he did have an adversive reaction

to. He became really involved in more repeititive activities. It was pretty

depressing, but I can't imagine going through what you are going through. I

guess maybe these medications do not agree with your child chemically and maybe

you need to try Kutapressin. I think that is where we are headed. I wish you

all the luck and my heart goes out to you. Good luck. Kathy

>

>--------------------------------------------------------------------<e|-

>Failed tests, classes skipped, forgotten locker combinations.

>Remember the good 'ol days

>1/8012/12/_/472608/_/966451322/

>--------------------------------------------------------------------|e>-

>

>Responsibility for the content of this message lies strictly with

>the original author, and is not necessarily endorsed by or the

>opinion of the Research Institute.

>

>

>

_______________________________________________

Get your free e-mail at http://www.ourhouse.net

[Guest guest]

Dr. G has been doing this for over a decade and a half and I am sure that he

has come across other kids with similar problems. Unfortunately you do have

to do a bit of trial and error with drugs and that takes TIME and it is

FRUSTRATING. However, I have never known him to give up on any child so

please be patient. If we could just get the money to make Peptide-T available

I think that your problems would be solved! Kathy R