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I find that walking outdoors helps alot, both mentally and physically.

I meditate every day, and have been doing so for almost 30 years. I

think it helps to keep me mentally stable and keep the spirits up. It

was good discipline during the worst of the infestation, to meditate

with bugs crawling all over me.

I just keep trying to work through this problem. I don't believe this

is a permanent affliction. Keep trying, don't give up.

myrtle

> >

> > Hi Marguerite,

> >

> > How are you doing, now that you've moved to a new place? Are things

> > better now? I hope so.

> >

> > aloha,

> > myrtle

> >

>

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Thanks for all the ideas about keeping one's spirits up. They were

all good.

> > >

> > > Hi Marguerite,

> > >

> > > How are you doing, now that you've moved to a new place? Are

things

> > > better now? I hope so.

> > >

> > > aloha,

> > > myrtle

> > >

> >

>

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  • 6 months later...

and Vivi and anyone else in a bad place right now:

Ladies, hope is a funny thing sometimes, it comes and goes at it's own

pace, whenever it feels like it on a whim. Staying positive, at times

isn't easy but it's very important. Try this:

Close your eyes (after you read this please) and think about the

sunshine inside of you. As it grows brighter, the dark clouds of

dispare disappear leaving more room for a brighter sun to warm you from

the inside out. Don't forget to breathe deeply while you're doing this

to help the dark clouds blow away. OK, now go try it, you might be

surprised.

Take care and be well.

Ellen

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It's funny how such a simple thing as taking a few deep breaths and clearing

your mind a bit can help. Of course, kicking the cat works too... shame I'm

too lame to actually catch him. ;) (kidding, I love my cat... sometimes)

I started with the MTX on Sunday. Tell me something... do you usually take

folic acid on every day BUT Sunday, or alternate days that are not Sunday

(like Mon, Wed, Fri). My poor resident is French, and he sometimes is a bit

confusing. lol

And please tell me that my hair won't fall out. I'm not terribly vain, but

there is a limit. :P

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It's funny how such a simple thing as taking a few deep breaths and clearing

your mind a bit can help. Of course, kicking the cat works too... shame I'm

too lame to actually catch him. ;) (kidding, I love my cat... sometimes)

I started with the MTX on Sunday. Tell me something... do you usually take

folic acid on every day BUT Sunday, or alternate days that are not Sunday

(like Mon, Wed, Fri). My poor resident is French, and he sometimes is a bit

confusing. lol

And please tell me that my hair won't fall out. I'm not terribly vain, but

there is a limit. :P

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It's funny how such a simple thing as taking a few deep breaths and clearing

your mind a bit can help. Of course, kicking the cat works too... shame I'm

too lame to actually catch him. ;) (kidding, I love my cat... sometimes)

I started with the MTX on Sunday. Tell me something... do you usually take

folic acid on every day BUT Sunday, or alternate days that are not Sunday

(like Mon, Wed, Fri). My poor resident is French, and he sometimes is a bit

confusing. lol

And please tell me that my hair won't fall out. I'm not terribly vain, but

there is a limit. :P

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Dear Mellisa,

My hair didn't all fall out although it thinned. I used to however, get

spotty bald spots. That was loverly to have quarter size bald spots on the

top of my head but my mother assured me it was inherited from my grandmother

and this area always grew back although it happened like four times over the

years. I freaked when that happened. So, don't lose heart, I don't think it

will happen to you or that you will lose that much of your hair. Good luck

with the new medication dear.

_____

And please tell me that my hair won't fall out. I'm not terribly vain, but

there is a limit. :P

____________________________________________________________

Click here to find the rental car that fits your needs.

http://thirdpartyoffers.netzero.net/TGL2241/fc/Ioyw6i4uHs8RUZZlx2CKPIluuxrPEbdod\

1FU6HZz9jZcl3mqYk28VI/

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Dear Mellisa,

My hair didn't all fall out although it thinned. I used to however, get

spotty bald spots. That was loverly to have quarter size bald spots on the

top of my head but my mother assured me it was inherited from my grandmother

and this area always grew back although it happened like four times over the

years. I freaked when that happened. So, don't lose heart, I don't think it

will happen to you or that you will lose that much of your hair. Good luck

with the new medication dear.

_____

And please tell me that my hair won't fall out. I'm not terribly vain, but

there is a limit. :P

____________________________________________________________

Click here to find the rental car that fits your needs.

http://thirdpartyoffers.netzero.net/TGL2241/fc/Ioyw6i4uHs8RUZZlx2CKPIluuxrPEbdod\

1FU6HZz9jZcl3mqYk28VI/

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Dear Mellisa,

My hair didn't all fall out although it thinned. I used to however, get

spotty bald spots. That was loverly to have quarter size bald spots on the

top of my head but my mother assured me it was inherited from my grandmother

and this area always grew back although it happened like four times over the

years. I freaked when that happened. So, don't lose heart, I don't think it

will happen to you or that you will lose that much of your hair. Good luck

with the new medication dear.

_____

And please tell me that my hair won't fall out. I'm not terribly vain, but

there is a limit. :P

____________________________________________________________

Click here to find the rental car that fits your needs.

http://thirdpartyoffers.netzero.net/TGL2241/fc/Ioyw6i4uHs8RUZZlx2CKPIluuxrPEbdod\

1FU6HZz9jZcl3mqYk28VI/

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MTX is a Folic Acid analog. (yes Ellen, I do like using words

like " analog " ) It binds somewhat to the same receptors as Folic Acid,

so you do want to let some of the Folic Acid through so the thought

is to take extra when the MTX is not doing its thing.

I found these remarks at http://www.aafp.org/afp/20001001/1607.html

" Folate supplementation with 1 mg daily or 7 mg once weekly should

be considered for all patients. Studies show that low-dose folate

does not interfere with the efficacy of methotrexate. Most

rheumatologists advise patients to avoid taking the folate dose on

the same day as the methotrexate dose. "

However, following good patient practices and verifying with your

doc, you need to learn French, I am afraid.

Tom

>

> It's funny how such a simple thing as taking a few deep breaths and

clearing

> your mind a bit can help. Of course, kicking the cat works too...

shame I'm

> too lame to actually catch him. ;) (kidding, I love my cat...

sometimes)

>

> I started with the MTX on Sunday. Tell me something... do you

usually take

> folic acid on every day BUT Sunday, or alternate days that are not

Sunday

> (like Mon, Wed, Fri). My poor resident is French, and he sometimes

is a bit

> confusing. lol

>

> And please tell me that my hair won't fall out. I'm not terribly

vain, but

> there is a limit. :P

>

>

>

>

>

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MTX is a Folic Acid analog. (yes Ellen, I do like using words

like " analog " ) It binds somewhat to the same receptors as Folic Acid,

so you do want to let some of the Folic Acid through so the thought

is to take extra when the MTX is not doing its thing.

I found these remarks at http://www.aafp.org/afp/20001001/1607.html

" Folate supplementation with 1 mg daily or 7 mg once weekly should

be considered for all patients. Studies show that low-dose folate

does not interfere with the efficacy of methotrexate. Most

rheumatologists advise patients to avoid taking the folate dose on

the same day as the methotrexate dose. "

However, following good patient practices and verifying with your

doc, you need to learn French, I am afraid.

Tom

>

> It's funny how such a simple thing as taking a few deep breaths and

clearing

> your mind a bit can help. Of course, kicking the cat works too...

shame I'm

> too lame to actually catch him. ;) (kidding, I love my cat...

sometimes)

>

> I started with the MTX on Sunday. Tell me something... do you

usually take

> folic acid on every day BUT Sunday, or alternate days that are not

Sunday

> (like Mon, Wed, Fri). My poor resident is French, and he sometimes

is a bit

> confusing. lol

>

> And please tell me that my hair won't fall out. I'm not terribly

vain, but

> there is a limit. :P

>

>

>

>

>

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MTX is a Folic Acid analog. (yes Ellen, I do like using words

like " analog " ) It binds somewhat to the same receptors as Folic Acid,

so you do want to let some of the Folic Acid through so the thought

is to take extra when the MTX is not doing its thing.

I found these remarks at http://www.aafp.org/afp/20001001/1607.html

" Folate supplementation with 1 mg daily or 7 mg once weekly should

be considered for all patients. Studies show that low-dose folate

does not interfere with the efficacy of methotrexate. Most

rheumatologists advise patients to avoid taking the folate dose on

the same day as the methotrexate dose. "

However, following good patient practices and verifying with your

doc, you need to learn French, I am afraid.

Tom

>

> It's funny how such a simple thing as taking a few deep breaths and

clearing

> your mind a bit can help. Of course, kicking the cat works too...

shame I'm

> too lame to actually catch him. ;) (kidding, I love my cat...

sometimes)

>

> I started with the MTX on Sunday. Tell me something... do you

usually take

> folic acid on every day BUT Sunday, or alternate days that are not

Sunday

> (like Mon, Wed, Fri). My poor resident is French, and he sometimes

is a bit

> confusing. lol

>

> And please tell me that my hair won't fall out. I'm not terribly

vain, but

> there is a limit. :P

>

>

>

>

>

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 you will be bald in less then the time it takes to read this ------NOT--- I

never have lost hair from it just from being a male darn it and I was hoping I

could blame some thing on my skull cap on the back of my head   o well. I also

have never taken adjusted any thing because of taking MTX so far it was 3 years

at the start and I am on my second year now and same thing .I do take it Friday

nights because i get a bit tied from it for a day or two and do not always

function really well then so this way i am not home alone then so far it works

for me

hugs

 

the  rednecks

Marty & G.

the redneck's my space http://www.myspace.com/martyg58

 To learn about Stills Disease  http://www.stillsdisease.org/stills_info

For conservitive minded people  http://www.americac2c.org " If  we ever forget

that we're one nation under God, then we will be a nation gone  under. " ~

Reagan

 

 In the old days a man who saved money was a miser; nowadays he's a wonder. 

~Author Unknown

 

 

A nation can survive its fools and even the ambitious. But it cannot survive

treason from within.~Cicero

                                                   

" The  most terrifying words in the English language are: I'm from the

government  and I'm here to help. "    ~  Reagan 

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 you will be bald in less then the time it takes to read this ------NOT--- I

never have lost hair from it just from being a male darn it and I was hoping I

could blame some thing on my skull cap on the back of my head   o well. I also

have never taken adjusted any thing because of taking MTX so far it was 3 years

at the start and I am on my second year now and same thing .I do take it Friday

nights because i get a bit tied from it for a day or two and do not always

function really well then so this way i am not home alone then so far it works

for me

hugs

 

the  rednecks

Marty & G.

the redneck's my space http://www.myspace.com/martyg58

 To learn about Stills Disease  http://www.stillsdisease.org/stills_info

For conservitive minded people  http://www.americac2c.org " If  we ever forget

that we're one nation under God, then we will be a nation gone  under. " ~

Reagan

 

 In the old days a man who saved money was a miser; nowadays he's a wonder. 

~Author Unknown

 

 

A nation can survive its fools and even the ambitious. But it cannot survive

treason from within.~Cicero

                                                   

" The  most terrifying words in the English language are: I'm from the

government  and I'm here to help. "    ~  Reagan 

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 you will be bald in less then the time it takes to read this ------NOT--- I

never have lost hair from it just from being a male darn it and I was hoping I

could blame some thing on my skull cap on the back of my head   o well. I also

have never taken adjusted any thing because of taking MTX so far it was 3 years

at the start and I am on my second year now and same thing .I do take it Friday

nights because i get a bit tied from it for a day or two and do not always

function really well then so this way i am not home alone then so far it works

for me

hugs

 

the  rednecks

Marty & G.

the redneck's my space http://www.myspace.com/martyg58

 To learn about Stills Disease  http://www.stillsdisease.org/stills_info

For conservitive minded people  http://www.americac2c.org " If  we ever forget

that we're one nation under God, then we will be a nation gone  under. " ~

Reagan

 

 In the old days a man who saved money was a miser; nowadays he's a wonder. 

~Author Unknown

 

 

A nation can survive its fools and even the ambitious. But it cannot survive

treason from within.~Cicero

                                                   

" The  most terrifying words in the English language are: I'm from the

government  and I'm here to help. "    ~  Reagan 

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honey,

You're not taking MTX in such a high dose that you're will fall out in

large amounts and be noticable. The possibility is there, of course

but the likelihood is that it'll happen slowly if at all. More like

your shedding than anything else. At least that's what happened to me

and what my doctor had said.

Like you I'm not vain (I have no reason to be) but for some reason that

was the first thing that I asked about. The other question I had was

about my voice. When my mother was on MTX for her cancer her voice

deepened, that's when he explained the amount of injection versus what

my mother had for her breast cancer.

Take care and be well.

Ellen

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Ok, your hair won't fall out. Truthfully, you may lose a bit, but it will come

back. Mine came back curly...and I didn't lose all of it. It just thinned out.

I was told that the MTX depletes your body of folic acid so it's futile to take

it on the same day. I take mine on Saturday, then every other day I take the

folic acid. It's always best to clarify with your dr though.

Hope you're feeling ok.

in tx

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Ok, your hair won't fall out. Truthfully, you may lose a bit, but it will come

back. Mine came back curly...and I didn't lose all of it. It just thinned out.

I was told that the MTX depletes your body of folic acid so it's futile to take

it on the same day. I take mine on Saturday, then every other day I take the

folic acid. It's always best to clarify with your dr though.

Hope you're feeling ok.

in tx

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Ok, your hair won't fall out. Truthfully, you may lose a bit, but it will come

back. Mine came back curly...and I didn't lose all of it. It just thinned out.

I was told that the MTX depletes your body of folic acid so it's futile to take

it on the same day. I take mine on Saturday, then every other day I take the

folic acid. It's always best to clarify with your dr though.

Hope you're feeling ok.

in tx

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Hi ,

I was worried about my hair too.It is almost to my waist.While it did not fall

out I did lose some .I now have re growth which makes me look a little ''wild "

on humid days.The regrowth has come in thicker and darker but usually you can

not tell.I should probly get a good cut but am just not ready to chop my golden

tresses.lol

One thing that did happen however is that I have developed what I feel sure is a

very stubborn fungal infection on my scalp & shoulder.Steroid creams aren't

working(4 yrs now) and my dermatologist isn't too worried about it.I guess he

feels that with the melanomas and the stills ,a few scaly patches are the least

of my worries.But oh vanity!I don't want bald patches on top of every thing else

either! I also took folic acid every day while on MTX.

GL !

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Hi ,

I was worried about my hair too.It is almost to my waist.While it did not fall

out I did lose some .I now have re growth which makes me look a little ''wild "

on humid days.The regrowth has come in thicker and darker but usually you can

not tell.I should probly get a good cut but am just not ready to chop my golden

tresses.lol

One thing that did happen however is that I have developed what I feel sure is a

very stubborn fungal infection on my scalp & shoulder.Steroid creams aren't

working(4 yrs now) and my dermatologist isn't too worried about it.I guess he

feels that with the melanomas and the stills ,a few scaly patches are the least

of my worries.But oh vanity!I don't want bald patches on top of every thing else

either! I also took folic acid every day while on MTX.

GL !

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Hi ,

I was worried about my hair too.It is almost to my waist.While it did not fall

out I did lose some .I now have re growth which makes me look a little ''wild "

on humid days.The regrowth has come in thicker and darker but usually you can

not tell.I should probly get a good cut but am just not ready to chop my golden

tresses.lol

One thing that did happen however is that I have developed what I feel sure is a

very stubborn fungal infection on my scalp & shoulder.Steroid creams aren't

working(4 yrs now) and my dermatologist isn't too worried about it.I guess he

feels that with the melanomas and the stills ,a few scaly patches are the least

of my worries.But oh vanity!I don't want bald patches on top of every thing else

either! I also took folic acid every day while on MTX.

GL !

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I've taken 2mg folic acid every day since around September 2004.

That's when I started MTX. When i stopped MTX and switched to Arava,

they kept me on the folic acid. Most people need it anyways.

Houston, TX

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I've taken 2mg folic acid every day since around September 2004.

That's when I started MTX. When i stopped MTX and switched to Arava,

they kept me on the folic acid. Most people need it anyways.

Houston, TX

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Hi, I take Folic acid every day, and I take 2 mg now because I seemed to be

especially effected by MTX. I do have hair loss, but I did not lose hair at

first so who knows :)

Hang in there.

Alli

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