Re:who is alone to feel them?

August 22, 2008

I am alone in this in our home. My husband, and our three boys, do not

feel them. However, my husband, and my boys, have sat on one

particular couch we have...and say they feel biting. They move...and

the biting stops. I'm just realizing this, lately. And, will be

getting rid of the couch very soon.

I've felt all of this for about 15 months, now. And, for the first 6-8

months or so, I kept myself away from everyone, for fear that they'd

get "it", too. That was the hardest part of all. I'm a cuddling kind

of mom, and it hurt to not be affectionate with them. It was very

difficult on them, too. They always said they didn't care if they got

"it"...they just want to cuddlWell, the past year or so, I've cuddled

with all of them, fallen asleep in our boys beds, with them, and no one

has ever had any signs but me. So, I do not ever hesitate to get close to any of them, anymore. Because after all of this, it doesn't make any difference, anyway. And, for that, we all feel better. I can't understand how I'm the only one, in my family. Yet, I'm happy it's me and NOT any of them. I wouldn't wish this upon anyone. It's the second most difficult thing I've ever endured! The most difficult, and painful experience I've ever had...or will ever have...was the death of my four-year old little boy to cancer. No comparison to this, or anything else in life...as I'd pick this nightmare of a skin ailment over a child's death, anytime. But, having to deal with this, on top of my son's death, is just so very draining, physically and emotionally ... day after day after day. It's hard enough living moment-to-moment, and having non-stop biting, lack of sleep because of it, etc...I'm just

frustrated...and exhausted. It's just different... Not the most emotionally painful situation I've ever endured...but the most frustrating type of situation, that's for certain...especially because there are no answers to be found... What do we have to look forward to...With shared hearts, and hopes for a cure...Beth AnneOur (2/10/88 to 12/7/92)http://www.rememberingkyle.memory-of.com"You are blessed when you have enough faith to hear the gentle whisper of an

angel"ForeverInOurHeartsAfterLeukemia/"Forever

In Our Hearts After Leukemia" (FIOHAL) was created for parents who have

suffered the loss of a child that has died from leukemia.

August 22, 2008

Beth ann,

First off, I am so sorry for your loss and you are so right the death of a child is in no way comparison to dealing with a mite problem. I, like you am the only one that feels these things. My daughter was the first to show signs but for the last couple of months has no bites. It is exhausting and hard to deal with when you have children and a family to take care of. Have you tried any treatments in your house? Do you think you have birdmites or some other parasite. I sometimes think they attack people with a lower immune system, I think in my case it was because I have been dealing with the constant stress of having 2 special needs children,it's not that i blame them for this but I had stopped really taking care of myself because I'm always running from one doc appoinment to the other with them, I wasn't eating or sleeping well. I'm sure the same is true of you!I'm so glad you reached out for help by coming here. You will find a lot of useful

information here and many helpful,friendly and understanding people.

Re:who is alone to feel them?

I am alone in this in our home. My husband, and our three boys, do not feel them. However, my husband, and my boys, have sat on one particular couch we have...and say they feel biting. They move...and the biting stops. I'm just realizing this, lately. And, will be getting rid of the couch very soon.I've felt all of this for about 15 months, now. And, for the first 6-8 months or so, I kept myself away from everyone, for fear that they'd get "it", too. That was the hardest part of all. I'm a cuddling kind of mom, and it hurt to not be affectionate with them. It was very difficult on them, too. They always said they didn't care if they got "it"...they just want to cuddlWell, the past year or so, I've cuddled with all of them, fallen asleep in our boys beds, with them, and no one has ever had any signs but me. So, I do not ever hesitate to get close to any of them,

anymore. Because after all of this, it doesn't make any difference, anyway. And, for that, we all feel better. I can't understand how I'm the only one, in my family. Yet, I'm happy it's me and NOT any of them. I wouldn't wish this upon anyone. It's the second most difficult thing I've ever endured! The most difficult, and painful experience I've ever had...or will ever have...was the death of my four-year old little boy to cancer. No comparison to this, or anything else in life...as I'd pick this nightmare of a skin ailment over a child's death, anytime. But, having to deal with this, on top of my son's death, is just so very draining, physically and emotionally ... day after day after day. It's hard enough living moment-to-moment, and having non-stop biting, lack of sleep because of it, etc...I'm just frustrated.. .and exhausted. It's just different... Not the most emotionally

painful situation I've ever endured...but the most frustrating type of situation, that's for certain...especiall y because there are no answers to be found... What do we have to look forward to...With shared hearts, and hopes for a cure...Beth AnneOur (2/10/88 to 12/7/92)http://www.remember ingkyle.memory- of.com"You are blessed when you have enough faith to hear the gentle whisper of an angel"http://health.

groups.. com/group/ ForeverInOurHear tsAfterLeukemia/"Forever In Our Hearts After Leukemia" (FIOHAL) was created for parents who have suffered the loss of a child that has died from leukemia.

August 22, 2008

I am so sorry to hear that Beth Anne, you don't deserve this thing in any way with what you have to go trough with this lost day after day. I just hope god will help you with that and give you a peace time for what you have to go trough already, Love and hope, Fannou xx Re:who is alone to feel them?