Guest guest Posted June 11, 2006 Report Share Posted June 11, 2006 I'm having more of a problem with drowsiness than with fatigue. I used to do fine on 5-6 hours sleep a night, but since this flare started, I'm sleeping 8-11 hours, then getting so drowsy within a few hours that I have to sleep for about 10-15 minutes. After no more than 4 hours, I must nap again. I thought it might just be the Naproxen, but I've been off that 4 days now and the drowsiness continues to overtake me. I can see that this disease is going to be one WEIRD trip! SZ > > I would be interested in reading some accounts of what persons consider > adequate rest periods each day when contending with PA. > > > > [Editor's Note: I think that is an impossible question to answer as the amount of sleep individuals need varies widely. Some do well on 5 hours a night, while some people seem to need 12. If you are fatigued all the time, you probably need more sleep than you are getting. Kathy F.] > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2006 Report Share Posted June 11, 2006 Hi, I have to agree with Kathy, but I sleep 12-14 hours, and then also am still tired, but I have Fibromyalgia also. I used to only need 8 hours. Jeanette [ ] rest I would be interested in reading some accounts of what persons consider adequate rest periods each day when contending with PA. [Editor's Note: I think that is an impossible question to answer as the amount of sleep individuals need varies widely. Some do well on 5 hours a night, while some people seem to need 12. If you are fatigued all the time, you probably need more sleep than you are getting. Kathy F.] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 The question is not impossible to answer-I was asking persons to share their own experiences with sleep, not to supply a standard for everyone. [Editor's Note: That being the case, I sleep about 6-7 hours a night but wish it could be a couple of hours longer. I'm looking forward to sleeping longer when I retire at the end of next month. Kathy F.] Re: [ ] rest Hi, I have to agree with Kathy, but I sleep 12-14 hours, and then also am still tired, but I have Fibromyalgia also. I used to only need 8 hours. Jeanette [ ] rest I would be interested in reading some accounts of what persons consider adequate rest periods each day when contending with PA. [Editor's Note: I think that is an impossible question to answer as the amount of sleep individuals need varies widely. Some do well on 5 hours a night, while some people seem to need 12. If you are fatigued all the time, you probably need more sleep than you are getting. Kathy F.] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 Hi Fr. , It most likely will vary from one person to another. I was one of those people who functioned very well on 5-6 hours a night prior to having PA. Now, I need at least 8 hours most nights to stay well. Sure, I can cheat some, but if I do it for too long, I end up with a flare of some joint. Last month I took a red eye flight to Europe and only got a few winks on the plane,with a full day planned upon arrival. I considered myself fortunate to have escaped without a flare. My best advice is to listen to your body. It and you know how much sleep is necessary to not have flares. Stay Well, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 Hi SZ You've been lucky to get away with only 5-6 hours for as long as you have. Some recent studies show that *on average* the " normal " sleep cycle is 8-11 hours - which means that when more sleep than normal is needed it can easily turn into more than 11 hours. Inflammation, as well as recovering from illness, is more work than one would think. E.g. getting over a moderately bad case of pneumonia energy wise is like running a marathon *non stop* until you are better. So when things are acting up your body needs to expend more energy than normal. Happens to me too when I flare a bit. Eg this weekend I had a 4 hour nap each afternoon. Sat down to read and there I go again(g). I started a small flare a week ago. BTW, as a young man I lived on 4-5 hours a night on average. If I do that now I feel tired for 2-3 days. Cheers - > > I'm having more of a problem with drowsiness than with fatigue. I > used to do fine on 5-6 hours sleep a night, but since this flare > started, I'm sleeping 8-11 hours, then getting so drowsy within a > few hours that I have to sleep for about 10-15 minutes. After no > more than 4 hours, I must nap again. I thought it might just be the > Naproxen, but I've been off that 4 days now and the drowsiness > continues to overtake me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 I do better on 10 right now but I wonder if the reason some of us need more sleep might be due to the fact that our nightly sleep is of a poor quality because of our pain and discomfort. -Betz Betsy Jack itsbetsy@... [ ] Re: rest I'm having more of a problem with drowsiness than with fatigue. I used to do fine on 5-6 hours sleep a night, but since this flare started, I'm sleeping 8-11 hours, then getting so drowsy within a few hours that I have to sleep for about 10-15 minutes. After no more than 4 hours, I must nap again. I thought it might just be the Naproxen, but I've been off that 4 days now and the drowsiness continues to overtake me. I can see that this disease is going to be one WEIRD trip! SZ > > I would be interested in reading some accounts of what persons consider > adequate rest periods each day when contending with PA. > > > > [Editor's Note: I think that is an impossible question to answer as the amount of sleep individuals need varies widely. Some do well on 5 hours a night, while some people seem to need 12. If you are fatigued all the time, you probably need more sleep than you are getting. Kathy F.] > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 , For years I functioned on 5-6 hours sleep. I still feel better if I get that amount at night. If I stay in bed longer I don't feel more rested and often feel more stiffness. However, since PA entered my life, immediately after work I take an hour nap before tackling dinner and the rest of the evening. I also pace myself throughout the day. Work an hour, rest 5-10 minutes. Because I work almost exclusively on the computer, these breaks are mandated. During some of my breaks I have been know to " Power Nap. " Five minutes stretched out in my chair with feet on a pulled out drawer is almost as good as my 5-6 hours. Sandy swOhio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 A nap, the day after any serious activity - is a necessity for me with my level of arthritis. Hiker > > I would be interested in reading some accounts of what persons consider > adequate rest periods each day when contending with PA. > > > > [Editor's Note: I think that is an impossible question to answer as the amount of sleep individuals need varies widely. Some do well on 5 hours a night, while some people seem to need 12. If you are fatigued all the time, you probably need more sleep than you are getting. Kathy F.] > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2006 Report Share Posted June 14, 2006 For me, rest is a very serious issue. You see, in addition to P, PsA, OA, FMS/CMP, etc, I also have PVC (heart condition) and Narcolepsy. It appears I also have fluid retention now. GRRRRR. Does anyone else here with PsA have fluid retention? ADVISE PLEASE. Narcolepsy? It is a CNS & Sleep disorder. We can fall asleep in a slpit second no matter what we are doing. Sitting. Standing, Chatting, eating, laughing, etc. Not adequate sleep, or erratic sleep schedules, or shifts in emotions (from normal relaxed to excited, or upset, for example) can trigger attacks. A Narcoleptic has to be on stimulants such as Provigil and Dexedrine (what I am on). Anyway, due to the above conditions, I DEFINETLY need to force myself to take naps. I have noticed that, for me, a nap is usually between 20 to 45 minutes up to an hour for best results. Occassionally I get a lot more, but problem is, thses naps really screw up my sleep schedule at nights. It is very hard trying to get myself on a schedule to get in bed by 1 am. It is so frustrating because at night, I feel so much better! GRRRRRRRRRRRRRRRRR. So my advice: play around a bit, test, see what amount of sleep at night and daytime naps suit you the best. For some, two thirty minute naps spaced apart is best--that is what I probably should be doing, but you know, it is hard. There is never enough time in the day, eh? Just give it some experimentation. Also if you have not had any adjustments in meds lately, work on that as well. Eventually you will find your niche. Right now I am flaring and not sure if it is PsA, Fibro, OA, or all that is on the flare. Feel like I need Prednisone again. <WHINE> but trying to hold out on that cuz that causes the Fibro to flare! May need it anyway because next week is extremely busy and the next I leave for Houston for a two and half week visit with my Mom. Good luck and hope you find the adequate rest you need. LeAnn & Furbrats Blossom & Meriko Born Deaf-Blind due to Congenital Rubella Syndrome (CRS), dx'ed with FMS/CMP, Psoriasis, Psoriatic Arthritis (PsA), Osteoarthritis (OA), Major Depression, Schuermanns Kyphosis, Glaucoma, GERD, Endometrosis, IBS, PVC--Premature Ventricular Contractions and Narcolepsy Oklahoma City, OK " There is no psychiatrist in the world like a puppy licking your face. " Ben Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2006 Report Share Posted June 16, 2006 > Anyway, due to the above conditions, I DEFINETLY > need to force myself to > take naps. I have noticed that, for me, a nap is > usually between 20 to 45 > minutes up to an hour for best results. Hi LeAnn, I have narcolepsy too, but haven't been put on any medication for it yet.... The sleep clinic has me use a CPAP machine thinking that if I rest better at night I won't have sleep episodes during the day. But, I still do, particularly when I'm driving or working on my computer. I also nap when I get home from work, but I have become " conditioned " to sleep when I put on my mask. Driving drowsy is terrifying. They actually told me that when I'm drowsy I should take a cab home...where in this rural northland do they think I'm going to find a cab?? I'd be more likely to hitch a ride on a tractor warm blessings, jane --- DeafEskie <DeafEskie@...> wrote: > > Narcolepsy? It is a CNS & Sleep disorder. We can > fall asleep in a slpit > second no matter what we are doing. Sitting. > Standing, Chatting, eating, > laughing, etc. Not adequate sleep, or erratic sleep > schedules, or shifts in > emotions (from normal relaxed to excited, or upset, > for example) can trigger > attacks. A Narcoleptic has to be on stimulants such > as Provigil and > Dexedrine (what I am on). > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2006 Report Share Posted July 13, 2006 In a message dated 7/12/2006 9:14:27 PM Eastern Standard Time, drumthis2001@... writes: I am taking the day off and abstaining from my usual cardio. I had been told by some people that one can do cardio everyday without a break once a week. They said one can do the weightlifting every other day or even take a week off at a time. Does anyone here know about what works for them when it comes to resting and what to do to keep the muscles from getting burned out? I've heard of protein powders. I get enough protein though and I don't need a protein supplement. I've also heard of plain old, ordinary rest but, I get enough of that too. You can take time off from workouts without a problem. You can do cardio a few times per week and still get good benefits from it. Weightlifting should have at least a day of rest between exercises for each muscle group. So, if you had an upper body day, you should take at least one day of rest before you next upper body day. You can do a lower body routine or cardio on the off day. It also depends on what you are going for. If you just want to keep in shape and healthy, then a few times per week is fine. If you are going for some kind of competition go by what the trainer says to do. That training will probably be much more intense that what people will normally need to keep healthy. As for myself, I workout about 3 times per week. Mostly I do full body routines rather than focussing on particular groups. Sometimes I will run a cardio heavy routine for a few weeks and then switch to a heavier strength building routine for a few weeks. At time I will do a body weight only routine for a few weeks. I'm not trying to be super athletic or anything. I'm looking to keep in shape and develop functional strength. But most people don't really need to do heavy workouts every day. Indeed the muscles need some time off to recover and rebuild, which is why you should take a day of rest as I described. The pro athletes that do work out every day have trainers and really know in depth what they are doing. Its a lot more work than I am really interested in putting into it, 3 or 4 hours per day working out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2006 Report Share Posted July 13, 2006 In a message dated 7/12/2006 9:14:27 PM Eastern Standard Time, drumthis2001@... writes: I am taking the day off and abstaining from my usual cardio. I had been told by some people that one can do cardio everyday without a break once a week. They said one can do the weightlifting every other day or even take a week off at a time. Does anyone here know about what works for them when it comes to resting and what to do to keep the muscles from getting burned out? I've heard of protein powders. I get enough protein though and I don't need a protein supplement. I've also heard of plain old, ordinary rest but, I get enough of that too. You can take time off from workouts without a problem. You can do cardio a few times per week and still get good benefits from it. Weightlifting should have at least a day of rest between exercises for each muscle group. So, if you had an upper body day, you should take at least one day of rest before you next upper body day. You can do a lower body routine or cardio on the off day. It also depends on what you are going for. If you just want to keep in shape and healthy, then a few times per week is fine. If you are going for some kind of competition go by what the trainer says to do. That training will probably be much more intense that what people will normally need to keep healthy. As for myself, I workout about 3 times per week. Mostly I do full body routines rather than focussing on particular groups. Sometimes I will run a cardio heavy routine for a few weeks and then switch to a heavier strength building routine for a few weeks. At time I will do a body weight only routine for a few weeks. I'm not trying to be super athletic or anything. I'm looking to keep in shape and develop functional strength. But most people don't really need to do heavy workouts every day. Indeed the muscles need some time off to recover and rebuild, which is why you should take a day of rest as I described. The pro athletes that do work out every day have trainers and really know in depth what they are doing. Its a lot more work than I am really interested in putting into it, 3 or 4 hours per day working out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2007 Report Share Posted January 30, 2007 it is hard doing nothing... What you resist, persists. If you want to speed up the recovery, just give yourself total permission to do nothing and even better...enjoy it. Can you read, watch tv or get a bunch of videos? Just let it all unfold in it's own time and don't resist "what is". It's time to just "be" and not time to "do". Gloria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2007 Report Share Posted January 31, 2007 Geez girl! Three days out of major surgery and you want to do weight lifting in the Olympics and run a Marathon too. Not ambitious are you? Have you ever heard of recovery time????? Gayla Always Enough RanchAcampo, Californiahttp://bouncinghoofs.com/alwaysenough.htmlBill Barnhill is our Inspiration! Go Bill!!!aeranch@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2007 Report Share Posted January 31, 2007 The first time I broke my arm I did EXACTLY what the doctor said. Instead of 2 casts and 12 weeks, I healed with 1 cast in 8 weeks. He was amazed and when I told him I had done EXACTLY what he said it was like it was the first time anyone had ever taken his advice. And that was before I knew anything about healing, diet, and HAWK!!! Shari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2007 Report Share Posted January 31, 2007 i ALWAYS FOLLOW FOR THE FIRST WEEKS... when I had ear surgeries the dr said doNOT get water in the ear. i didn't... when I went back he was amazed that i took him literally... he said i was his first that did not get any in... of course that made getting the dried blood out painful... but he was proud of me.. no bacteria, moisture etcc. the same with the frankenstien wound.... i've not got a drop of wa ter on it yet... i want those staples out so i can use vit e on it. slept in till 9 this a.m. did walk out to see my goat kids... I think i have 12... lost 4 or 5.. it's so hard... "look but don't touch.." cant go play with them. but my dogs came to see me and knew something was wrong.. they were "just there" no playing with mom today... amazjng how smart animals are...my kitty inside is in my lapp whenever I am sitting. the inside dog is with me wherever I go. n the house.SV <shavig@...> wrote: The first time I broke my arm I did EXACTLY what the doctor said. Instead of 2 casts and 12 weeks, I healed with 1 cast in 8 weeks. He was amazed and when I told him I had done EXACTLY what he said it was like it was the first time anyone had ever taken his advice. And that was before I knew anything about healing, diet, and HAWK!!! Shari Suzi What is a weed? A plant whose virtues have not yet been discovered. health/ http://suziesgoats.wholefoodfarmacy.com/ http://360./suziesgoats Check out the all-new beta - Fire up a more powerful email and get things done faster. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2007 Report Share Posted February 1, 2007 Whip yourself up a concoction of burdock root, myrrh and comfrey to apply as a paste on your franky scar. The myrrh will help with any pain the burdock and comfrey will help with healing. Might also add in some benzoin oil too along with the vit E for scarring. Make sure you only use natural vit E and not the synthetic stuff. Sorry to hear about the loss of your kids. Don Suzanne wrote: > i ALWAYS FOLLOW FOR THE FIRST WEEKS... when I had ear surgeries the dr > said doNOT get water in the ear. i didn't... when I went back he was > amazed that i took him literally... he said i was his first that did > not get any in... of course that made getting the dried blood out > painful... but he was proud of me.. no bacteria, moisture etcc. the > same with the frankenstien wound.... i've not got a drop of wa ter on > it yet... i want those staples out so i can use vit e on it. slept in > till 9 this a.m. did walk out to see my goat kids... I think i have > 12... lost 4 or 5.. it's so hard... " look but don't touch.. " cant > go play with them. but my dogs came to see me and knew something was > wrong.. they were " just there " no playing with mom today... amazjng > how smart animals are...my kitty inside is in my lapp whenever I am > sitting. the inside dog is with me wherever I go. n the house. > > */SV <shavig@...>/* wrote: > > The first time I broke my arm I did EXACTLY what the doctor said. > Instead of 2 casts and 12 weeks, I healed with 1 cast in 8 weeks. > He was amazed and when I told him I had done EXACTLY what he said > it was like it was the first time anyone had ever taken his > advice. And that was before I knew anything about healing, diet, > and HAWK!!! > > Shari > > > > > Suzi > *What is a weed? A plant whose virtues have not yet been discovered.* > > health/ > http://suziesgoats.wholefoodfarmacy.com/ > http://360./suziesgoats > > ------------------------------------------------------------------------ > Check out the all-new beta > <http://us.rd./evt=43257/*http://advision.webevents./mailbeta> > - Fire up a more powerful email and get things done faster. Quote Link to comment Share on other sites More sharing options...
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