Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 Hi I've been taking Copaxone since March 2001 and have definitely gone downhill since then. My main difficulties are stiffness in my legs, low energy levels (I tire out quickly) and balance difficulties. I started to take LDN around August of 2005 and although I haven't yet noticed any improvements, I am hopeful that in time I will - plus if it stops the progression of MS, it's worth it's weight in gold! I'm coming off Copaxone as soon as I finish my current stash which will be in about 2 weeks so I'm a bit nervous for some reason, but happy to do it. I don't think Copaxone is anything special. It is certainly no cure, does nothing for current symptoms and has not stopped the progression of the illness - so why bother to turn your body into a human pin cushion or waste any more of your money?! Good luck to you! Sincerely, >From: " Shackley " <cshackl1@...> >Reply-low dose naltrexone ><low dose naltrexone > >Subject: [low dose naltrexone] question? >Date: Thu, 26 Jan 2006 11:00:04 -0500 > >Hello- > >Is anyone currently taking copaxone with LDN? I know the science indicates >it should not pose any problems.. but, just checking further. > >Also- is anyone with PPMS or SPMS on copaxone as a therapy? I began taking >it in Sept. 05, and honestly, seem to be a little worse? May or may not be >copaxone, just wondering if anyone else had a similar experience. > >I have a skd appt with Dr. Bihari next Thurs to begin LDN. I am very >hopeful!! > >Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2006 Report Share Posted January 27, 2006 > > Hello- > > Is anyone currently taking copaxone with LDN? I know the science indicates it should not pose any problems.. but, just checking further. > > Also- is anyone with PPMS or SPMS on copaxone as a therapy? I began taking it in Sept. 05, and honestly, seem to be a little worse? May or may not be copaxone, just wondering if anyone else had a similar experience. > > I have a skd appt with Dr. Bihari next Thurs to begin LDN. I am very hopeful!! > > Chris > I have been been on copaxone for 2 yrs but only inject everyother day as i couldn't tell a difference from everyday and my 3 yr MRI was good. I have about 1 major relpase a year otherwise mild symptoms everday with MAJOR fatigue which I hope LDN helps me with. I have only been on LDN 2 days with the Copaxone. Jeanief Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2006 Report Share Posted January 27, 2006 Jeanief, If after a few weeks the fatigue does not let up with LDN, then try DLP for fatique, also I can send you older chats discussing fatigue if you would like me to. My best Aletha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2006 Report Share Posted January 27, 2006 What is DLP? Re: [low dose naltrexone] Re: question? Jeanief,If after a few weeks the fatigue does not let up with LDN, then try DLP for fatique, also I can send you older chats discussing fatigue if you would like me to.My bestAletha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2006 Report Share Posted January 28, 2006 I will send you a couple of items on DLP ( DL-Phenylalanine). Aletha Re: [low dose naltrexone] Re: question? Jeanief,If after a few weeks the fatigue does not let up with LDN, then try DLP for fatique, also I can send you older chats discussing fatigue if you would like me to.My bestAletha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2006 Report Share Posted January 28, 2006 Thanks!! Akiba Re: [low dose naltrexone] Re: question? Jeanief,If after a few weeks the fatigue does not let up with LDN, then try DLP for fatique, also I can send you older chats discussing fatigue if you would like me to.My bestAletha No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.375 / Virus Database: 267.14.23/243 - Release Date: 1/27/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2006 Report Share Posted January 28, 2006 Thanks! Re: [low dose naltrexone] Re: question? Jeanief,If after a few weeks the fatigue does not let up with LDN, then try DLP for fatique, also I can send you older chats discussing fatigue if you would like me to.My bestAletha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 My daughter doesn't do this, but my nephew did when he was little (6mo?). He's 16 now and very healthy. You should still ask your ped if you're worried, but I don't think it is a problem. -christine mom to sydney/ 8.5 mo/ starband 5-31-06 > > I have noticed when Chadwick gets really excited his legs tighten up > and stick straight out his little hands tense up as well. Has anyone > noticed this in there children? I'm probably being paranoid! I'm going > to talk to his pediatrician on Monday.. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 Yes, same w/our son too (actually both of our boys did/do this). I think he has high muscle tone (see my post on " baby has high muscle tone " . I'm going to take our son to see an OT friend of a friend to see if she has any insight... > > I have noticed when Chadwick gets really excited his legs tighten up > and stick straight out his little hands tense up as well. Has anyone > noticed this in there children? I'm probably being paranoid! I'm going > to talk to his pediatrician on Monday.. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 Thank you I will read your post Thanks againcltmom_2005 <aws2@...> wrote: Yes, same w/our son too (actually both of our boys did/do this). I think he has high muscle tone (see my post on "baby has high muscle tone". I'm going to take our son to see an OT friend of a friend to see if she has any insight...>> I have noticed when Chadwick gets really excited his legs tighten up > and stick straight out his little hands tense up as well. Has anyone > noticed this in there children? I'm probably being paranoid! I'm going > to talk to his pediatrician on Monday..> Mommy to Chadwick 3-7-06 Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 How old is he? A lot of babies do that b/c they startle themselves. They forget they're capable of doing certain things and then get surprised when they do it. It's always good to ask your pediatrician when you're unsure of something. That's what they are there for. Candace, AZ mommy to Tiernan, 4 mos tort, plagio"cs.crawford" <cs.crawford@...> wrote: I have noticed when Chadwick gets really excited his legs tighten up and stick straight out his little hands tense up as well. Has anyone noticed this in there children? I'm probably being paranoid! I'm going to talk to his pediatrician on Monday.. Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2006 Report Share Posted September 17, 2006 He is 6.5 months old. Thanks for the response.Candace Mayer <mommyluvset@...> wrote: How old is he? A lot of babies do that b/c they startle themselves. They forget they're capable of doing certain things and then get surprised when they do it. It's always good to ask your pediatrician when you're unsure of something. That's what they are there for. Candace, AZ mommy to Tiernan, 4 mos tort, plagio"cs.crawford" <cs.crawford > wrote: I have noticed when Chadwick gets really excited his legs tighten up and stick straight out his little hands tense up as well. Has anyone noticed this in there children? I'm probably being paranoid! I'm going to talk to his pediatrician on Monday.. Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Mommy to Chadwick 3-7-06 Get your own web address for just $1.99/1st yr. We'll help. Small Business. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2007 Report Share Posted March 15, 2007 What is the theory behind soaking nuts and how should it be done?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2007 Report Share Posted March 15, 2007 Also, From a chinese medicine/macrobiotic point of view, it releases dormant energy (Chi) and just allows for easier digestion! > What is the theory behind soaking nuts and how should it be done?? > > > > Suzi > What is a weed? A plant whose virtues have not yet been discovered. > > > health/ > http://suziesgoats.wholefoodfarmacy.com/ > http://360./suziesgoats > > > > > > > > > > > > > > > > --------------------------------- > Now that's room service! Choose from over 150,000 hotels > in 45,000 destinations on Travel to find your fit. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2007 Report Share Posted March 17, 2007 Not to mention, removing the bitter tannins from walnuts. :-) TerriLynne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2011 Report Share Posted April 6, 2011 Hi Kass, Everyone speaks highly of Dr. Kolb as a surgeon and with her detox protocol. http://www.plastikos.com/testimonials.htm You can learn a lot at her website, but going for a first appointment with her or one of her excellent staff would be good too. Do phone and chat with her RN (probably have to wait for a call back) to discuss the options. Hugs of support, > > Hi Ladies,I was thinking about making an appointment to head to Atlanta to possibly be treated from dr.Kolbs.I don't know weather I had fungus or mold or both but was wandering if she would treat me.I can't just go to my regular doctor and ask her to treat me.Does anyone have any suggestions?Thanks,Kass > Quote Link to comment Share on other sites More sharing options...
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