I'm back

[Guest guest]

I've been without my PC for about 5 months now and have finally settled in Texas. It's a big change from Orange, VA. Mostly for the good. Love the weather here, no more ice, snow and bitter cold. A real improvement for old bones. Hope everyone has been well and happy and eating good nurishing food. I have missed this list. Anne Bird

[Guest guest]

OMG Anne.. I was just thinking about you the other nite.. wondering how you were doing.. this is so cool.. I am glad to hear things are going good. We've missed you too! SuziAnne Bird <irishfox99@...> wrote: I've been without my PC for about 5 months now and have finally settled in Texas. It's a big change from Orange, VA. Mostly for the good. Love the weather here, no more ice, snow and bitter cold. A real improvement for old bones. Hope everyone has been well and happy and eating good nurishing food. I have missed this list. Anne Bird Suzi What is a weed? A plant whose virtues have not yet been discovered. health/ http://suziesgoats.wholefoodfarmacy.com/ http://360./suziesgoats

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[Guest guest]

Dear Terry,

I'm very happy to see you back on the board. Congratulations on

your marriage and on finally getting your SSD approved.

I'm sorry about the insurance situation (Do you qualify for COBRA?

Just be careful -- it's important not to let your insurance lapse

for too long, otherwise a future potential insurer can deny you

coverage for pre-existing conditions. I can't remember what the

exact rule is, but I think you can't let it lapse for 3 months or

something like that. Maybe someone else can weigh in.)

I'm also sorry that you and your bride are experiencing pain from

the accident. You have a macabre definition of a honeymoon. : )

Anyway, great to have you back. I've missed your dark sense of

humor.

Warmest regards.

>

> Greetings!!

> My name is Terry and I was a member of this group in the past and

now that

> my life has gotten more order in it I have decided to return.

> For those new or do not remember me I will give you some info.

> I am 40 years old and was dx'ed in April of 04, have been on

400mg's of

> gleevec since and been in remission since as well. Aside from many

of the

> side effects I am doing well, I finally have the ride combo on

pain meds and

> other meds to manage the side effects. Unfortuantely I am unable

to work. I

> have been finally approved for SS disabilty but my former employer

Bank of

> America decided to cut me off their retiree insurance because I

had not

> worked there for 10 years. I was a former credit card fraud

investigator.

> Recent events in my life have been mixed but over all very good. I

got rid

> of a girlfriend that was using me for money, and found a lovely

woman and

> got married June 15th of this year. It was on her birthday so it

will be

> easy for me not to forget our anniversary..lol. The bad thing was

on our way

> home we were in a car accident(T-boned by a ford explorer) We both

have neck

> and back injuries as well as I have a bad left shoulder. But we

are being

> treated for that. Also the social worker from my Onco's office is

helping me

> get my Gleevec free so I will not have to pay almost 3 grand a

month for it

> since I lost my RX coverage. So things are looking up a bit even

with the

> bad stuff that has happened. I rejoined because I missed many in

the group

> especially my big sis K, as well as , and also I wanted to be

as much

> help as I can to anyone new to our little disease. So I am back

folks. I

> have a dark sense of humor so be warned..rotfl.

>

> Terry

>

>

>

[Guest guest]

First off thanks , I missed you man:) Glad to know your still on the

boards and I will remain so as well. I have medicare A and B but I may be

screwed on the suplimental insurance because Bank of A decided I was termed

a month sooner than they told me, but I am calling Monday to talk to the

supplimental insurance so I will see then.

Maxine,

From what I was told by the company that helped me get SSD(Allsup) it is

difficult for those of us to get disability sometimes for CML because if

your in remission they do not bother to take in consideration any side

effects you may suffer from being on Gleevec. (don't get me wrong I will not

EVER stop the gleevec treatments unless it begins to fail) My side effects

are I guess what would be considered moderate, but I have fatigue, bone

pain, and nausea. I was being paid benefits from Aetna insurance before I

was approved for SSD and they standard they use is if you are not able to

perform the functions of the job you were doing, or something to that

extent. Ever quarter I have to fill out a form and my Docs have to was well

stating I have not improved in order for Aetna to continue my payments. When

my case went before the judge he signed off on it quickly. In other words at

first you have to go through paper pushers that just see " remission " and

think that means cured, and deny the claim, until it goes in front of

someone that actually looks at everything. So if you are trying for SSD hang

in there and keep appealing you should get it eventually, but again that

depends on your side effects some of us with CML do not suffer side effects

at all on our medications, and some of us suffer allot of side effects, I

personally land I think somewhere in the middle. I hope that helped answer

your question.

Rene,

I am so sorry to hear about your grandson. I know my disease has cost me

dearly, but it kills me(not literally) to hear of younger people with

Leukemia. The form I have and most of us here have is a Chronic Form so it

is a long drawn out disease. I honestly do not have allot of info on ALL but

I pray everything turns out well for your grandson. You are at the right

place for people to talk to though and as far as BMT's go...my docs are not

even thinking in that direction and personally I would not consider it as

long as I am kept in remission by Gleevec. Keep in touch and let us know how

your grandson is doing, take care,

Terry

On 7/8/07, ireneo bueno <ibbueno2001@...> wrote:

>

> Hello, Greetings to all of you people, I join this

> group even though i am not the one suffering with this

> illness, it is my grandson...Just for the reason

> having someone to taLK to. He is suffering from

> leukemia as well, and its almost 1 and half years now

> he is on treatment, Right now at this moment he is on

> his way home because the Doctors have advised us that

> its useless to have him a BMT, actually he is ALL

> leukemia (Acute Lymphoblastic Leukemia) Very difficult

> folks to accept but we just trust in the Lord for all

> this things,,Strengthen us in your prayers.. Rene

> --- maxsdandies <maxsdandies@... <maxsdandies%40>> wrote:

>

> >

> > >

> > > Greetings!!

> > > My name is Terry and I was a member of this group

> > in the past and

> > now that

> > > my life has gotten more order in it I have decided

> > to return.

> > > For those new or do not remember me I will give

> > you some info.

> > > I am 40 years old and was dx'ed in April of 04,

> > have been on

> > 400mg's of

> > > gleevec since and been in remission since as well.

> > Aside from many

> > of the

> > > side effects I am doing well, I finally have the

> > ride combo on pain

> > meds and

> > > other meds to manage the side effects.

> > Unfortuantely I am unable to

> > work. I

> > > have been finally approved for SS disabilty but my

> > former employer

> > Bank of

> > > America decided to cut me off their retiree

> > insurance because I had

> > not

> > > worked there for 10 years. I was a former credit

> > card fraud

> > investigator.

> > > Recent events in my life have been mixed but over

> > all very good. I

> > got rid

> > > of a girlfriend that was using me for money, and

> > found a lovely

> > woman and

> > > got married June 15th of this year. It was on her

> > birthday so it

> > will be

> > > easy for me not to forget our anniversary..lol.

> > The bad thing was

> > on our way

> > > home we were in a car accident(T-boned by a ford

> > explorer) We both

> > have neck

> > > and back injuries as well as I have a bad left

> > shoulder. But we are

> > being

> > > treated for that. Also the social worker from my

> > Onco's office is

> > helping me

> > > get my Gleevec free so I will not have to pay

> > almost 3 grand a

> > month for it

> > > since I lost my RX coverage. So things are looking

> > up a bit even

> > with the

> > > bad stuff that has happened. I rejoined because I

> > missed many in

> > the group

> > > especially my big sis K, as well as , and

> > also I wanted to be

> > as much

> > > help as I can to anyone new to our little disease.

> > So I am back

> > folks. I

> > > have a dark sense of humor so be warned..rotfl.

> > >

> > > Terry

> > >

> > >

> > > [Non-text portions of this message have been

> > removed]

> > >

> > Hi there. I am a new comer and I just have a couple

> > of questions, If

> > you don't mind.......How did you actually get the

> > ssi? I mean what

> > symptoms did they take in to consideration? what

> > side effects to you

> > have? and what causes the pain? and also how long

> > did it take to get

> > it and did you have to hire an attorney? thank you

> > very much, maxine

> >

> >

>

> __________________________________________________________

> Fussy? Opinionated? Impossible to please? Perfect. Join 's user

> panel and lay it on us.

> http://surveylink./gmrs/_panel_invite.asp?a=7

>

>

>

[Guest guest]

I will keep him in my thoughts and hope he shows improvement soon!

:{

Re: [ ] Re: I'm Back

Hello, Greetings to all of you people, I join this

group even though i am not the one suffering with this

illness, it is my grandson...Just for the reason

having someone to taLK to. He is suffering from

leukemia as well, and its almost 1 and half years now

he is on treatment, Right now at this moment he is on

his way home because the Doctors have advised us that

its useless to have him a BMT, actually he is ALL

leukemia (Acute Lymphoblastic Leukemia) Very difficult

folks to accept but we just trust in the Lord for all

this things,,Strengthen us in your prayers.. Rene

--- maxsdandies <maxsdandies> wrote:

>

> >

> > Greetings!!

> > My name is Terry and I was a member of this group

> in the past and

> now that

> > my life has gotten more order in it I have decided

> to return.

> > For those new or do not remember me I will give

> you some info.

> > I am 40 years old and was dx'ed in April of 04,

> have been on

> 400mg's of

> > gleevec since and been in remission since as well.

> Aside from many

> of the

> > side effects I am doing well, I finally have the

> ride combo on pain

> meds and

> > other meds to manage the side effects.

> Unfortuantely I am unable to

> work. I

> > have been finally approved for SS disabilty but my

> former employer

> Bank of

> > America decided to cut me off their retiree

> insurance because I had

> not

> > worked there for 10 years. I was a former credit

> card fraud

> investigator.

> > Recent events in my life have been mixed but over

> all very good. I

> got rid

> > of a girlfriend that was using me for money, and

> found a lovely

> woman and

> > got married June 15th of this year. It was on her

> birthday so it

> will be

> > easy for me not to forget our anniversary. .lol.

> The bad thing was

> on our way

> > home we were in a car accident(T-boned by a ford

> explorer) We both

> have neck

> > and back injuries as well as I have a bad left

> shoulder. But we are

> being

> > treated for that. Also the social worker from my

> Onco's office is

> helping me

> > get my Gleevec free so I will not have to pay

> almost 3 grand a

> month for it

> > since I lost my RX coverage. So things are looking

> up a bit even

> with the

> > bad stuff that has happened. I rejoined because I

> missed many in

> the group

> > especially my big sis K, as well as , and

> also I wanted to be

> as much

> > help as I can to anyone new to our little disease.

> So I am back

> folks. I

> > have a dark sense of humor so be warned..rotfl.

> >

> > Terry

> >

> >

> > [Non-text portions of this message have been

> removed]

> >

> Hi there. I am a new comer and I just have a couple

> of questions, If

> you don't mind.......How did you actually get the

> ssi? I mean what

> symptoms did they take in to consideration? what

> side effects to you

> have? and what causes the pain? and also how long

> did it take to get

> it and did you have to hire an attorney? thank you

> very much, maxine

>

>

____________ _________ _________ _________ _________ _________ _

Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and

lay it on us. http://surveylink. / gmrs/_ panel_invite. asp?a=7

[Guest guest]

Thank you , and to all the nice people around

who responded, at least it lessen our

sorrows.Incidentally the boy now is in the

Philippines, and with his parents.,and enjoying his

time with his relatives and cousins to name a few.the

last time i heard he got a fever, and we dont know

what comes next.but he is full of spirit, and the will

to survive, and he wants to be a Pastor someday, that

was he says. God Bless to all of You..

--- " lunaemica@... " <lunaemica@...> wrote:

> I will keep him in my thoughts and hope he shows

> improvement soon!

> :{

>

>

>

>

> Re: [ ] Re: I'm Back

>

> Hello, Greetings to all of you people, I join this

> group even though i am not the one suffering with

> this

> illness, it is my grandson...Just for the reason

> having someone to taLK to. He is suffering from

> leukemia as well, and its almost 1 and half years

> now

> he is on treatment, Right now at this moment he is

> on

> his way home because the Doctors have advised us

> that

> its useless to have him a BMT, actually he is ALL

> leukemia (Acute Lymphoblastic Leukemia) Very

> difficult

> folks to accept but we just trust in the Lord for

> all

> this things,,Strengthen us in your prayers.. Rene

> --- maxsdandies <maxsdandies> wrote:

>

> >

> > >

> > > Greetings!!

> > > My name is Terry and I was a member of this

> group

> > in the past and

> > now that

> > > my life has gotten more order in it I have

> decided

> > to return.

> > > For those new or do not remember me I will give

> > you some info.

> > > I am 40 years old and was dx'ed in April of 04,

> > have been on

> > 400mg's of

> > > gleevec since and been in remission since as

> well.

> > Aside from many

> > of the

> > > side effects I am doing well, I finally have the

> > ride combo on pain

> > meds and

> > > other meds to manage the side effects.

> > Unfortuantely I am unable to

> > work. I

> > > have been finally approved for SS disabilty but

> my

> > former employer

> > Bank of

> > > America decided to cut me off their retiree

> > insurance because I had

> > not

> > > worked there for 10 years. I was a former credit

> > card fraud

> > investigator.

> > > Recent events in my life have been mixed but

> over

> > all very good. I

> > got rid

> > > of a girlfriend that was using me for money, and

> > found a lovely

> > woman and

> > > got married June 15th of this year. It was on

> her

> > birthday so it

> > will be

> > > easy for me not to forget our anniversary. .lol.

> > The bad thing was

> > on our way

> > > home we were in a car accident(T-boned by a ford

> > explorer) We both

> > have neck

> > > and back injuries as well as I have a bad left

> > shoulder. But we are

> > being

> > > treated for that. Also the social worker from my

> > Onco's office is

> > helping me

> > > get my Gleevec free so I will not have to pay

> > almost 3 grand a

> > month for it

> > > since I lost my RX coverage. So things are

> looking

> > up a bit even

> > with the

> > > bad stuff that has happened. I rejoined because

> I

> > missed many in

> > the group

> > > especially my big sis K, as well as , and

> > also I wanted to be

> > as much

> > > help as I can to anyone new to our little

> disease.

> > So I am back

> > folks. I

> > > have a dark sense of humor so be warned..rotfl.

> > >

> > > Terry

> > >

> > >

> > > [Non-text portions of this message have been

> > removed]

> > >

> > Hi there. I am a new comer and I just have a

> couple

> > of questions, If

> > you don't mind.......How did you actually get the

> > ssi? I mean what

> > symptoms did they take in to consideration? what

> > side effects to you

> > have? and what causes the pain? and also how long

> > did it take to get

> > it and did you have to hire an attorney? thank you

> > very much, maxine

> >

> >

>

> ____________ _________ _________ _________ _________

> _________ _

> Fussy? Opinionated? Impossible to please? Perfect.

> Join 's user panel and lay it on us.

> http://surveylink. / gmrs/_

> panel_invite. asp?a=7

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

Park yourself in front of a world of choices in alternative vehicles. Visit the

Auto Green Center.

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[Guest guest]

Ireneo,

I am glad to hear your grandson is enjoying spending time with his family in

the Philippines.

From the sound of it your grandson's will to live will help him

tremendously! That is the

most important thing for someone is to keep that will to live alive and

strong. He sounds like

a wonderful child.

Terry

On 7/11/07, ireneo bueno <ibbueno2001@...> wrote:

>

> Thank you , and to all the nice people around

> who responded, at least it lessen our

> sorrows.Incidentally the boy now is in the

> Philippines, and with his parents.,and enjoying his

> time with his relatives and cousins to name a few.the

> last time i heard he got a fever, and we dont know

> what comes next.but he is full of spirit, and the will

> to survive, and he wants to be a Pastor someday, that

> was he says. God Bless to all of You..

>

> --- " lunaemica@... <lunaemica%40> "

<lunaemica@...<lunaemica%40>>

> wrote:

>

> > I will keep him in my thoughts and hope he shows

> > improvement soon!

> > :{

> >

> >

> >

> >

> > Re: [ ] Re: I'm Back

> >

> > Hello, Greetings to all of you people, I join this

> > group even though i am not the one suffering with

> > this

> > illness, it is my grandson...Just for the reason

> > having someone to taLK to. He is suffering from

> > leukemia as well, and its almost 1 and half years

> > now

> > he is on treatment, Right now at this moment he is

> > on

> > his way home because the Doctors have advised us

> > that

> > its useless to have him a BMT, actually he is ALL

> > leukemia (Acute Lymphoblastic Leukemia) Very

> > difficult

> > folks to accept but we just trust in the Lord for

> > all

> > this things,,Strengthen us in your prayers.. Rene

> > --- maxsdandies <maxsdandies> wrote:

> >

> > >

> > > >

> > > > Greetings!!

> > > > My name is Terry and I was a member of this

> > group

> > > in the past and

> > > now that

> > > > my life has gotten more order in it I have

> > decided

> > > to return.

> > > > For those new or do not remember me I will give

> > > you some info.

> > > > I am 40 years old and was dx'ed in April of 04,

> > > have been on

> > > 400mg's of

> > > > gleevec since and been in remission since as

> > well.

> > > Aside from many

> > > of the

> > > > side effects I am doing well, I finally have the

> > > ride combo on pain

> > > meds and

> > > > other meds to manage the side effects.

> > > Unfortuantely I am unable to

> > > work. I

> > > > have been finally approved for SS disabilty but

> > my

> > > former employer

> > > Bank of

> > > > America decided to cut me off their retiree

> > > insurance because I had

> > > not

> > > > worked there for 10 years. I was a former credit

> > > card fraud

> > > investigator.

> > > > Recent events in my life have been mixed but

> > over

> > > all very good. I

> > > got rid

> > > > of a girlfriend that was using me for money, and

> > > found a lovely

> > > woman and

> > > > got married June 15th of this year. It was on

> > her

> > > birthday so it

> > > will be

> > > > easy for me not to forget our anniversary. .lol.

> > > The bad thing was

> > > on our way

> > > > home we were in a car accident(T-boned by a ford

> > > explorer) We both

> > > have neck

> > > > and back injuries as well as I have a bad left

> > > shoulder. But we are

> > > being

> > > > treated for that. Also the social worker from my

> > > Onco's office is

> > > helping me

> > > > get my Gleevec free so I will not have to pay

> > > almost 3 grand a

> > > month for it

> > > > since I lost my RX coverage. So things are

> > looking

> > > up a bit even

> > > with the

> > > > bad stuff that has happened. I rejoined because

> > I

> > > missed many in

> > > the group

> > > > especially my big sis K, as well as , and

> > > also I wanted to be

> > > as much

> > > > help as I can to anyone new to our little

> > disease.

> > > So I am back

> > > folks. I

> > > > have a dark sense of humor so be warned..rotfl.

> > > >

> > > > Terry

> > > >

> > > >

> > > > [Non-text portions of this message have been

> > > removed]

> > > >

> > > Hi there. I am a new comer and I just have a

> > couple

> > > of questions, If

> > > you don't mind.......How did you actually get the

> > > ssi? I mean what

> > > symptoms did they take in to consideration? what

> > > side effects to you

> > > have? and what causes the pain? and also how long

> > > did it take to get

> > > it and did you have to hire an attorney? thank you

> > > very much, maxine

> > >

> > >

> >

> > ____________ _________ _________ _________ _________

> > _________ _

> > Fussy? Opinionated? Impossible to please? Perfect.

> > Join 's user panel and lay it on us.

> > http://surveylink. / gmrs/_

> > panel_invite. asp?a=7

> >

> >

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

> __________________________________________________________

> Park yourself in front of a world of choices in alternative vehicles.

> Visit the Auto Green Center.

> http://autos./green_center/

>

>

>