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kathy, i agree with you so much about the stress and keep thinking that i need to get a handle on it, i'm just not sure how. 9 yr. old twin boys, a 2yr. old girl, a husbnd thats not home alot because "he" has a job.(oops! scarcasm) i never seem to get caught up with the daily stuff, much less take care of myself, which i know i need to. anyway, it's a perplexing problem that i know all woman of today have. i guess i am not a very good juggler. lisamikat828 <mikat828@...> wrote:

-ShariI think you are under a tremendous amount of stress. The stress of your illness, your job, your child and household are too much. Heck, most of us can't even handle the stress of a job that demands too much when we are well. And believe me, stress can make you sick and keep you from getting well once you are sick. Stress is terrible for the immune system. Studies bear this out. Not that this helps you feel better about things. I hope that your disability works out. If not, is it possible to get a less stressful part time job and make enough for you guys while you get your health back? Even on a temporary basis? I know that I had to quit my job for awhile because I was so sick. Pray for God to work this out for you and trust in Him.I know there were many many months that I thought I was dying and nothing seemed to

help. It was the worse time of my life. This was two years after my husband died at age 43. I was only working just 3 mornings a week due to my fms and suddenly I was the sole support of my 2 children. I didn't know what to do. But God saw me through the deep waters. I have perservered the last six years and I would have never thought I could. I was in a deep depression for much of it. I had to quit my job for a while when I got really sick in 2001. Finally, things started to turn around for me. I found this group and it gave me the courage to get an explant. That was 2 years ago. I started on antibiotic therapy and had many setbacks. But I knew something was changing! I had hope. Dimonds can attest to the fact that she was still very very sick after explant. She tried everything and nothing seemed to help. But, after a long time, she started to finally see some improvements. So never give up hope. Our bodies are just so

awesomely complex that is hard to hit on the combination of things that will jumpstart it back to wellness. What works for one, may not work for another. And it may be a long arduous process. I think most of us would do whatever we could to get well, it is just we don't know what is that will make us well. When things don't work, or seem to be helping and then we backslide, we get afraid that nothing will ever help and that takes away our hope. Then depression can really get bad. So we have to remain firm that we will do whatever it takes, and we will hit on what it takes because God will guide us to it, and we may have to wait and tough it out alot longer than we ever thought possible. Additionally, I am sure that the depression alot of us suffer is not just because of our situation, it is also from the disease process itself. Whatever is inflaming our muscles, joints, skin, etc, is also inflaming our nerves, brain tissue,

etc. The same process that causes brain fog and dizziness causes depression and rage and irritabiltiy and fatigue. I have long observed that when I have a reaction to detox, my depression comes back vehemently. And for some strange reason, this depression is always a feeling of not wanting to live. Fortunately, it almost never lasts the whole day, or for more than a day or two in a row without giving me a breather. For me, this is one of the last symptoms to get better. But that may be because I am 49 and probably headed into menopause and many women suffer depression, irritabiltiy and aches, fatigue etc that don't have our problems. But despite this, I have seen immense improvements in even my depression and every day there are little evidences that I am returning to the person I was before my husband died and I got so sick. My heart goes out to you and to everyone who belongs to this website. I wish I could wave a magic

wand and make it all go away for all of you. If nothing else, this illness has taught us all alot about empathy and compassion. Take care and God bless.kathy-- In , halvey70@a... wrote:> PATTY> > thank you so much for your post. I am sorry to be whining here but things are sooo bad. I have a very demanding, stressful job as does mu husband and it is very hard to manage everything these days. I can't remember stuff all of the time and I am so tired. I want to be there for everyone and my son, especially but I can't help but feel like I am dying and there is nothing I can do about it. I have tried so hard to see the doctors, had the 2 sinus surgeries, detox, everything and it is all just too much to handle. I can't stay focused at work and i seem to be making more mistakes. it is so scary - some people believe me and some don't but nobody (at home)

really knows how I feel. My head hurts so bad sometimes that I can hardly function and I hate that. I have trouble cleaning my house, caring for a 2 year old. All this with the feeling that I am dying and nobody will do anything about it (docs). the feeling of leaving my son without a mommy is too much to take and i can think of nothing else these days. My husband is very supportive and helpful but the thoughts and fears running through me are taking over. every time I try to take off of work I catch crap from my boss and it is stressing as I can't afford to lose my job but the stress is killing me. all of the deadlines, added responsibiities,(work) etc., I just want to scream. I want to keep my house and we are horribly in debt from all the doc bills and rx's but I don't now how much longer I can take it. the brain fog is getting worse and lately I am pretty much a zombie 24/7. maybe if I could get disability we could manage

but it is so scary. my stomach is always upset. I just want to stay home and rest but i try to act normal. Lately all I do is cry - cry for no reason at all. i have been having dizzy spells, too. I am just a mess. thanks for listening> love> shari

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-

Wow shari. I didn't know you had twin boys too! I really don't

know how you do it. I admire you so much for even hanging in there

in this situation. I will keep you in my prayers.

kathy

-- In , lisa robinson <jzamom2001@y...>

wrote:

> kathy, i agree with you so much about the stress and keep thinking

that i need to get a handle on it, i'm just not sure how. 9 yr. old

twin boys, a 2yr. old girl, a husbnd thats not home alot

because " he " has a job.(oops! scarcasm) i never seem to get caught

up with the daily stuff, much less take care of myself, which i know

i need to. anyway, it's a perplexing problem that i know all woman

of today have. i guess i am not a very good juggler. lisa

>

> mikat828 <mikat828@y...> wrote:-

> Shari

>

> I think you are under a tremendous amount of stress. The stress of

> your illness, your job, your child and household are too much.

> Heck, most of us can't even handle the stress of a job that

demands

> too much when we are well. And believe me, stress can make you

sick

> and keep you from getting well once you are sick. Stress is

> terrible for the immune system. Studies bear this out. Not that

> this helps you feel better about things. I hope that your

> disability works out. If not, is it possible to get a less

> stressful part time job and make enough for you guys while you get

> your health back? Even on a temporary basis? I know that I had to

> quit my job for awhile because I was so sick. Pray for God to work

> this out for you and trust in Him.

> I know there were many many months

> that I thought I was dying and nothing seemed to help. It was the

> worse time of my life. This was two years after my husband died at

> age 43. I was only working just 3 mornings a week due to my fms

and

> suddenly I was the sole support of my 2 children. I didn't know

> what to do. But God saw me through the deep waters. I have

> perservered the last six years and I would have never thought I

> could. I was in a deep depression for much of it. I had to quit my

> job for a while when I got really sick in 2001. Finally,

> things started to turn around for me. I found this group and it

> gave me the courage to get an explant. That was 2 years ago. I

> started on antibiotic therapy and had many setbacks. But I knew

> something was changing! I had hope. Dimonds can attest to the fact

> that she was still very very sick after explant. She tried

> everything and nothing seemed to help. But, after a long time, she

> started to finally see some improvements. So never give up hope.

> Our bodies are just so awesomely complex that is hard to hit on

the

> combination of things that will jumpstart it back to wellness.

What

> works for one, may not work for another. And it may be a long

> arduous process. I think most of us would do whatever we could to

> get well, it is just we don't know what is that will make us well.

> When things don't work, or seem to be helping and then we

backslide,

> we get afraid that nothing will ever help and that takes away our

> hope. Then depression can really get bad. So we have to remain

> firm that we will do whatever it takes, and we will hit on what it

> takes because God will guide us to it, and we may have to wait and

> tough it out alot longer than we ever thought possible.

> Additionally, I am sure that the depression alot of us suffer is

not

> just because of our situation, it is also from the disease process

> itself. Whatever is inflaming our muscles, joints, skin, etc, is

> also inflaming our nerves, brain tissue, etc. The same process

that

> causes brain fog and dizziness causes depression and rage and

> irritabiltiy and fatigue. I have long observed that when I have a

> reaction to detox, my depression comes back vehemently. And for

> some strange reason, this depression is always a feeling of not

> wanting to live. Fortunately, it almost never lasts the whole day,

> or for more than a day or two in a row without giving me a

> breather. For me, this is one of the last symptoms to get better.

> But that may be because I am 49 and probably headed into menopause

> and many women suffer depression, irritabiltiy and aches, fatigue

> etc that don't have our problems. But despite this, I have seen

> immense improvements in even my depression and every day there are

> little evidences that I am returning to the person I was before my

> husband died and I got so sick. My heart goes out to you and to

> everyone who belongs to this website. I wish I could wave a magic

> wand and make it all go away for all of you. If nothing else, this

> illness has taught us all alot about empathy and compassion. Take

> care and God bless.

> kathy

>

>

>

>

>

>

>

> -- In , halvey70@a... wrote:

> > PATTY

> >

> > thank you so much for your post. I am sorry to be whining here

> but things are sooo bad. I have a very demanding, stressful job as

> does mu husband and it is very hard to manage everything these

> days. I can't remember stuff all of the time and I am so tired. I

> want to be there for everyone and my son, especially but I can't

> help but feel like I am dying and there is nothing I can do about

> it. I have tried so hard to see the doctors, had the 2 sinus

> surgeries, detox, everything and it is all just too much to

handle.

> I can't stay focused at work and i seem to be making more

mistakes.

> it is so scary - some people believe me and some don't but nobody

> (at home) really knows how I feel. My head hurts so bad sometimes

> that I can hardly function and I hate that. I have trouble

cleaning

> my house, caring for a 2 year old. All this with the feeling that

I

> am dying and nobody will do anything about it (docs). the feeling

> of leaving my son without a mommy is too much to take and i can

> think of nothing else these days. My husband is very supportive

and

> helpful but the thoughts and fears running through me are taking

> over. every time I try to take off of work I catch crap from my

boss

> and it is stressing as I can't afford to lose my job but the

stress

> is killing me. all of the deadlines, added responsibiities,(work)

> etc., I just want to scream. I want to keep my house and we are

> horribly in debt from all the doc bills and rx's but I don't now

how

> much longer I can take it. the brain fog is getting worse and

> lately I am pretty much a zombie 24/7. maybe if I could get

> disability we could manage but it is so scary. my stomach is

always

> upset. I just want to stay home and rest but i try to act normal.

> Lately all I do is cry - cry for no reason at all. i have been

> having dizzy spells, too. I am just a mess. thanks for listening

> > love

> > shari

>

>

>

>

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kathy

actually that wasn't me - I only have one 2 1/2 year old which is enough work -

I can't imagine having twins in the middle of all of this!! I am not sure who

had the twins - maybe ?

love shari

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  • 1 year later...

Gretchen,

I definatly have had more stress. I have had 3 children in the past 3

years and I have read that pregnancies can exasberate symptoms. When I

think about it I know that over the past 3 years symptoms have gotten

worse. I think about how I was 3 yrs ago and compare it to how I am

now and there is a difference. I believe it isn't in my mind, but I

don't think I would have recognized most of the changes with out

knowing that I have CMT.

I would probably have contributed them to other things, like being tired because

of the pace of life, being older, etc.

Thank you for posting the link. I have been to 's site and have

learned so much from the things I have read there. (Thank you !)

,

No, my doctor didn't put me on any new medications. The only advice

she gave me was to live with it. :)

MomOfMany

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Hello all.

Can I please give my view on stress. I worked as a Police radio dispatcher here

in the UK for 10 yrs, unfort I retired on 30th Sept due to my CMT. All I know

is since retiring my CMT is much improved, the pain is more controlled, it is

prob a combination of less work, stress etc, I still fall over etc ha ha and

balance is still bad but I feel more able to deal with it. I felt for a long

time I was 'giving in' but in retrospect I realise that I could not deal with

the 'job' anymore and the public deserved the best from me, yes I miss working

but it is now 'my time' I hope I don't come cross as selfish, but I

had got to the point of wanting to end it all, now I am living again - all I can

say is, sometimes you need to look after No. 1.

Love to all.

Jill (UK)

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Jill,

Thanks for that. I'm exactly there myself and stopped working on Jan. 5.

Trying to get disability but it looks like doctors aren't the best at

documentation and wording so...

I'm only 43 but the fatigue got to be too much. That, and the fact that I've

started being afraid that my company might fire me because I couldn't do my job

adequately -- they would never have understood it as a health issue and would

have assumed that I was just

substandard (after 20 years with the company). It never got to that point (I

recently got a bonus) but I was getting more concerned about it. If they fired

me, I'd have no chance at company disability insurance.

Anyway, I haven't yet noticed any benefits to my stopping work but I'm hoping

that I'll see improvements soon.

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  • 1 year later...
Guest guest

To Handle Stress You Must First Understand the Basics Stress – the final frontier. The final health frontier, that is! Stress is unavoidable. It goes by many different names: tension, apprehension, anxiety, or that "uptight" feeling. Whatever you call it, stress is a "built in" response that has been with us since the days of the cave men. Medically, stress involves the presence of either emotional or physical tension. Each of us has a different set of triggers for emotional stress. Meeting a deadline at work may trigger tension in one person; speaking before a group of people may trigger an emotional response in another. Even though stress many times evokes simply an

emotional response, it produces very real physical symptoms in your body. Your body responds to each stressful situation as if it were in danger. Your heart rate speeds up and you breathe faster. These intense physical reactions give your body a burst of energy known in medical circles as "the fight-or-flight" syndrome. Other symptoms to recognize and understand when your body responds to stress include increased sweating and a sudden rush of strength. Lesser symptoms include dilated pupils and a slowed digestive system. Stress is a normal – and even a very useful – fact of life. The increased energy your body generates when it's under stress can be exactly what you need to meet that deadline or to heighten that reaction time under demanding

circumstance. However, stress can be also harmful if your body is exposed to it too often, or for too long of a period. Prolonged exposure to tense situations can not only cause headaches, an upset stomach, and back pain – they can even disturb your sleep. And that's just the short-term effects of stress. Longer lasting effects on your body include a weakened immune system which makes it more difficult to fight off a cold or other health problems. If you already suffer from a health condition, additional stress can worsen it. Emotionally speaking, stress can also have detrimental affects. If you're under a great deal of tension, you may also find that you're moodier than

usual, with the smallest of problems setting you off. You may feel more tense than usual and you may even experience depression. Some Stress Good News and How to Control Stress But the good news is that stress is manageable – and it's relatively easy to control. First, you need to identify exactly what it is that's causing the stress in your life. Are there work-related or school-related activities that are triggering your anxiety, financial problems at home, or are you distressed about a personal problem or a relationship? Once you identify the stressors, then you can create a plan of dealing more effectively with them. If you can't change the situation, then you'll have to

discover more effective ways to cope with it. If it's a lifestyle that is over-scheduled with events, then you'll want to look at ways of "unscheduling" some events. Next, you may want to look at some stress management techniques. The medical establishment now recognizes several methods for dealing with anxiety, including meditation and yoga. Keep in mind that stress management has no "once-size-fits-all" cure. What works for your neighbor may be ineffective for you. You may need to try out several solutions until you find one that helps. Just keep searching for a solution that suits your needs, you'll find one. Suzi What is a weed? A plant whose virtues have not yet been discovered. health/ http://suziesgoats.wholefoodfarmacy.com/ http://360./suziesgoats

Take the Internet to Go: Go puts the Internet in your pocket: mail, news, photos more.

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  • 11 months later...
Guest guest

The pain medications may possibly causing depression, which just

compounds stress. Please talk this over with your doctors and get some

referrals for help with managing your stress.

Gretchen

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Ed,

You sound just like my husband. I usually talk to him and we get to the bottom

of what is bothering him. Its usually the same ole problem.

Just talking about the problem seems to help him a lot.

In a message dated 6/29/2008 9:42:23 A.M. Pacific Daylight Time,

speedythebigcat@... writes:

I was on antidepressants and still did it, who do I talk to about it?

Can someone help. Has it swomething to do with the pain meds. that i

take

Ed

**************Gas prices getting you down? Search AOL Autos for

fuel-efficient used cars.

(http://autos.aol.com/used?ncid=aolaut00050000000007)

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