Guest guest Posted January 2, 2002 Report Share Posted January 2, 2002 , I think Debbie gave you a great explanation about the difference between passive and dynamic orthotic devices. My daughter wore a passive helmet, but we live in Oklahoma and got it at a local hospital in our area. I think the DOCband is referenced here more often then the passive devices and even the STARband. Cranial Technologies make the DOCband and specialize in this type of orthotic device. Their orthotists specialize in treating babies with the band. STARbands and helmets are made by local orthotists who often make other types of orthotic devices other then helmets/bands and don't necessarily work exclusively with babies. My advice would be to really ask questions of your orthotist and see what kind of experience they have with their device. If your orthotist has lots of experience and is skilled and professional then you should have good luck with your band/helmet. Let us know how things go at Boston Childrens. Good luck! Marci (Mom to ) Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 Hi , We actually go through Boston's Children's Hospital. We originally saw Dr. Madsen (the neuro) and he then sent us to the NOPCO center for the casting, etc. Our Orthotist is Mike Azarian, who is absolutely wonderful and keeps our son laughing the whole visit through. They do use a passive helmet. In the 4 weeks has been wearing it we have seen correction, and we go in every 3 weeks for checks and refittings. Our little guy is growing like crazy so we might have to make the check ups a little closer together, but all in all I have been very happy. The helmet looks just like the band I see in all the pictures of these little cuties. I was concerned because when I heard helmet I pictured this big football type thing, but in actuality it is quite similar in appearance to the band. If you have any questions please feel free to contact me individually and I would be happy to help. Boston Children's has a wonderful reputation all around, and we have had a very positive experience with them thus far. Good luck with everything! ~, ryan's mom (6 months) Massachusetts Trip to Boston Hi, and I are taking our daughter Leanna to Boston Children's Hospital to meet with a doctor and have her fitted for a helmet before we return to London. Has anyone had any experience with Boston Children's Hospital? They make reference to a passive helmet. With all we have seen about the DOC band we are wondering if there are significant differences. Has anyone else had a similar experience. Thanks , father of Leanna For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 Hi , I forgot to ask in my previous post, but will you be traveling back and forth from London for the checks, or is there someone in London that you can see? If you are traveling back to the States please let me know if we can help in any way. We live about 45 minutes outside of the city (that's non-rush hour time of course!). ~, 's mom (6 months) Trip to Boston Hi, and I are taking our daughter Leanna to Boston Children's Hospital to meet with a doctor and have her fitted for a helmet before we return to London. Has anyone had any experience with Boston Children's Hospital? They make reference to a passive helmet. With all we have seen about the DOC band we are wondering if there are significant differences. Has anyone else had a similar experience. Thanks , father of Leanna For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 Hi - My son who is 10mos. old started going to Boston Childrens 4 mos ago. His neurologist is Dr. Mark Proctor and he sees a couple different orthotists @ Nopco...Mike and Randy. Everyone has been extremely helpful and thoughtful. Not to mention the fact that has responded to the treatment extremely well. We actually will be seeing both doctors tomorrow (we go in every other Friday). The helmet treatment is passive and has been great! was considered severe when we started and when you take his helmet off you can't even tell. We will be getting some new measurements tomorrow so I'm anxious to find out how much improvement he's had. We originally planned on going w/the DOC Band, we actually felt that it was the only and best way to go. But I must say that once we met w/Mark Proctor and saw the treatment and outcome of many patients, we decided to try it out. I am so glad we did too! has done tremendously well and these are truly some " top notch " doctors and surgeons at Boston Childrens, so we feel very comfortable w/putting our child in their care. We too live about 45 minutes north of Boston. So please let me know if there is anything I can do to help. I just gave my notice at work to become a stay at home Mom, so my email address @ home is brownys4@... - mom to and Jack - 10 month old twins " Murray, " " 'Plagiocephaly ' " <j1murray@bri <Plagiocephaly > dgew.edu> cc: Subject: RE: Trip to Boston 01/03/02 09:53 AM Please respond to Plagiocephaly Hi , I forgot to ask in my previous post, but will you be traveling back and forth from London for the checks, or is there someone in London that you can see? If you are traveling back to the States please let me know if we can help in any way. We live about 45 minutes outside of the city (that's non-rush hour time of course!). ~, 's mom (6 months) Trip to Boston Hi, and I are taking our daughter Leanna to Boston Children's Hospital to meet with a doctor and have her fitted for a helmet before we return to London. Has anyone had any experience with Boston Children's Hospital? They make reference to a passive helmet. With all we have seen about the DOC band we are wondering if there are significant differences. Has anyone else had a similar experience. Thanks , father of Leanna For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2002 Report Share Posted January 7, 2002 How did the trip to Boston go???? Beck Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.