Re: A New Plagio Mom Needing Help

[Guest guest]

Kay,

We didn't have any trouble getting any of 's clothes over her head. The

onesies with the snaps on the side were the best though.

I can't believe there is a ped out there that actually said that the flatness

might not correct on its own. Peds who feel that way are few and far between.

Good for you ped!

Marci (Mom to )

Oklahoma

[Guest guest]

I just found this reply to a new mother.... thanks for the information!

[Guest guest]

Kay:

Hi & welcome to our group! You have the same questions we've all had

at one point during our child's journey to a rounder head! Let me

say, you are lucky to be starting Jenna's helmet at such an early

age. 4 mos is truely one of the best age to begin treatment. She

will be hitting the most growth spurts in the next few mos., which

will result in a lot of head growth, rounding it out!

Your Dr. is right, it will be harder on you than it will be on

Jenna. It is a difficult thing to see your child with this big piece

of plastic on top of her head, I had a hard time for the first week

or 2. It is quite rare for a baby to not adjust well to wearing a

helmet. My daughter went about her happy life as usual. It didn't

affect her sleep or mood one bit. After the first couple wks., I was

totally used to seeing her in it, in fact, I thought she looked goofy

w/o it on!!! Just remember that you are doing what's best for your

daughter. It does not hurt her one bit!

For decorating, most parents put stickers on the band. I tried to

stay with holiday/season themes on Abby's bands. I loved decorating

her band. It was so much fun for me! It gave me something to look

forward to do with it.

So many babies do not tolerate tummy time well. Try to put down many

toys in front of her, or turn on a baby video that will maybe keep

her interested.

My daughter wore a DOCband for 4.5 mos - we began late as she was

11.5 mos old. We still had good improvement. There have been VERY

few parents in this group who have not been happy with helmet/band

results.

I am so happy you found our group. Be sure to let us know when Jenna

gets her helmet. Best of luck.

For more information, check out www.plagiocephaly.org -this website

has answers to every question you asked. Also has many good tips for

tummy time that might help.

Debbie Abby's mom DOCGrad

MI

> Hello Plagio Parents! I am so grateful to have found the website

> before my daughter's diagnosis this week. She has been diagnosed

> with moderate/severe plagio. No torticollis. She is getting

fitted

> for a cranial molding helmet tomorrow...so I am guessing in about

1.5

> weeks we will begin a four month journey. I am looking for words

of

> wisdom/lessons learned from those of you who have already been

> through this. Any pointers on how to ease the transition to the

> helmet? Ideas on decorating? Moral Support? I live in Indianapolis

> Indiana and the helmet is not the Band I hear so much about, but my

> dr. says it is more of a full helmet. My daughter is four months

> old and not rolling over or sitting up yet...she isn't much for

tummy

> time though I am working on it. Dr. says minimize time on

back....so

> please send me your ideas so that I can be prepared and can help

> Jenna adjust as painlessly as possible (my dr. says it will be

harder

> for me than her....is this true?) What Kind of success rate have

you

> all Had. Thanks so much for your help.

> Kay

> Mother to Jenna

> Indianapolis

[Guest guest]

> > Hello Plagio Parents! I am so grateful to have found the website

> > before my daughter's diagnosis this week. She has been diagnosed

> > with moderate/severe plagio. No torticollis. She is getting

> fitted

> > for a cranial molding helmet tomorrow...so I am guessing in about

> 1.5

> > weeks we will begin a four month journey. I am looking for words

> of

> > wisdom/lessons learned from those of you who have already been

> > through this. Any pointers on how to ease the transition to the

> > helmet? Ideas on decorating? Moral Support? I live in

Indianapolis

> > Indiana and the helmet is not the Band I hear so much about, but

my

> > dr. says it is more of a full helmet. My daughter is four

months

> > old and not rolling over or sitting up yet...she isn't much for

> tummy

> > time though I am working on it. Dr. says minimize time on

> back....so

> > please send me your ideas so that I can be prepared and can help

> > Jenna adjust as painlessly as possible (my dr. says it will be

> harder

> > for me than her....is this true?) What Kind of success rate have

> you

> > all Had. Thanks so much for your help.

> > Kay

> > Mother to Jenna

> > Indianapolis

[Guest guest]

on 1/10/02 12:01 PM, mzeunik at mkrust@... wrote:

> Question: do onesies fit over

> the helmet or do I need to plan to buy undershirts? Thanks so much

> for your support....this group has confirmed for me that I am doing

> the right thing. kay

We've had more luck pulling onesies up from the bottom than going over

the top. It doesn't work with everything, but some. All his new outfits w/

t-shirts are going to be too small by the time the band comes off

--

Joe O'Connor

streams2oceans@...

Charlotte, NC USA

[Guest guest]

Question: do onesies fit over

the helmet or do I need to plan to buy undershirts?

Kay:

Abby's onesies fit over her bands - you also might want to take into

consideration, that when baby's are in the bands/helmets, they are

warmer than usual, so you might want to consider not having her wear

a onesie, except on those really cold days or nights. It depends on

how hot she is. She will sweat a lot more in the beginning, usually

for a week or so until her body temperature adjusts to wearing the

helmet, then it will decrease.

The butterfly design sounds very cute! The STARband offers a

butterly design as well, it is really cute.

Debbie Abby's mom DOCGrad

MI

[Guest guest]

Kay,

We use a locally made helmet, and our orthotist has advised us to take it

off during meal times and bath time. Usually these coincide with the times

I change him so I just leave the helmet off until we're finished. Most of

his cloths, however, due have a wide enough neck opening to go on right over

the helmet. Additionally, we can dress him in many items feet first- more

difficult, but it is possible!

The butterfly design sounds adorable!

~, 's mom

[Guest guest]

We always did bathtime in the morning, so getting dressed was done while the band was off.

I don't recall having any problems pulling shirts, etc. over the band at jammie time!

Kendra

Re: Re: A New Plagio Mom Needing Help

on 1/10/02 12:01 PM, mzeunik at mkrust@... wrote:> Question: do onesies fit over> the helmet or do I need to plan to buy undershirts? Thanks so much> for your support....this group has confirmed for me that I am doing> the right thing. kay We've had more luck pulling onesies up from the bottom than going overthe top. It doesn't work with everything, but some. All his new outfits w/t-shirts are going to be too small by the time the band comes off -- Joe O'Connorstreams2oceans@...Charlotte, NC USAFor more plagio info

[Guest guest]

Hello Kay,

My son Garrett is 5 months old and has been wearing a locally made

helmet for about a month. He had no problems with it at the

beginning. The only thing he really didn't like was the casting for

it, cold wet bandages - I wouldn't have like it much either. He has

been doing great with it until recently. He has a reflux problem so

when he is lying down and up chucks it goes into the helmet. The

daycare didn't notice that he had thrown up last week and when we

took the helmet off for his hour of freedom, we noticed that his head

had started to blister and was red. He had to leave it off for a

week to let it heal. We had a weekly fitting today and the chap told

us to make sure that we cleaned it with alcohol as this will kill

bacteria. Also he advised us to be careful what we put on his head

in the way of lotions because he had craddle cap, we were using baby

oil. It is a full helmet with the vent holes in the top. We noticed

a difference in the first week. Good luck to you and Jenna when you

get yours, I am sure she will be fine :-)

Mum to Garrett (5 months)

> Hello Plagio Parents! I am so grateful to have found the website

> before my daughter's diagnosis this week. She has been diagnosed

> with moderate/severe plagio. No torticollis. She is getting

fitted

> for a cranial molding helmet tomorrow...so I am guessing in about

1.5

> weeks we will begin a four month journey. I am looking for words

of

> wisdom/lessons learned from those of you who have already been

> through this. Any pointers on how to ease the transition to the

> helmet? Ideas on decorating? Moral Support? I live in Indianapolis

> Indiana and the helmet is not the Band I hear so much about, but my

> dr. says it is more of a full helmet. My daughter is four months

> old and not rolling over or sitting up yet...she isn't much for

tummy

> time though I am working on it. Dr. says minimize time on

back....so

> please send me your ideas so that I can be prepared and can help

> Jenna adjust as painlessly as possible (my dr. says it will be

harder

> for me than her....is this true?) What Kind of success rate have

you

> all Had. Thanks so much for your help.

> Kay

> Mother to Jenna

> Indianapolis