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Hi,

We recently found this group very useful as we were desperately

searching round to figure out what was best for our daughter Molly

and things were quite confused here in the UK.

I therefore wanted to post something about the UK in the hope that

others may find this posting in the future.

(FYI, Regarding Molly it turns out that her case is quite mild and

does not require helmet therapy.)

1. In the UK things are very confused but it is clear that you child

should go and see one of the four regional craniofacial centres in

Liverpool, Birmingham, London and Oxford.

These guys are very negative on helmets but are the real experts.

2. For the helmet point of view, there is only one guy to talk to and

that is Dr. Blecher. You can find a link to him on the website and

his email is: Joerg.C.Blecher@...

3. There is a guy in Bristol who is doing helmets. I haven't met him

and didn't get a helmet off him but my strong feeling is that Dr.

Blecher is more experienced and offering a much higher quality

soltuion.

I hope this is of use and thanks to all for your help up to now.

Cheers,

Van Buren

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Chris:

That's so nice of you to put such helpful information on this board

for others to reference in the future. Your post will help many

desperate parents in the years to come. Thanks so much.

I'm glad that MOlly's case is mild & won't require a helmet.

Thanks again!

Debbie Abby's mom DOCGrad

MI

> Hi,

>

> We recently found this group very useful as we were desperately

> searching round to figure out what was best for our daughter Molly

> and things were quite confused here in the UK.

>

> I therefore wanted to post something about the UK in the hope that

> others may find this posting in the future.

>

> (FYI, Regarding Molly it turns out that her case is quite mild and

> does not require helmet therapy.)

>

> 1. In the UK things are very confused but it is clear that you

child

> should go and see one of the four regional craniofacial centres in

> Liverpool, Birmingham, London and Oxford.

>

> These guys are very negative on helmets but are the real experts.

>

> 2. For the helmet point of view, there is only one guy to talk to

and

> that is Dr. Blecher. You can find a link to him on the website and

> his email is: Joerg.C.Blecher@c...

>

> 3. There is a guy in Bristol who is doing helmets. I haven't met

him

> and didn't get a helmet off him but my strong feeling is that Dr.

> Blecher is more experienced and offering a much higher quality

> soltuion.

>

> I hope this is of use and thanks to all for your help up to now.

>

> Cheers,

>

> Van Buren

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