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Re: Kellie

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Kellie,

Good for you that your taking this all the way! You will pave the road for those behind you in the same situation!

Although this appears only cosmetic, us plagio parents know the changing or asymmetry of the face is more than just that- it only makes sense that if the body is growing the wrong way- it should be considered an abnormality. With the shifting of the jaw bone, and facial features, with nerve endings included, it should be common sense that this is more than just cosmetic.

I just think its ironic that we are such a superficial world, and vanity is so alive and well, that when we as parents try to ensure that our children "look and feel" normal as well (besides for medical reasons) we are considered vain. Even if this was not a medical problem, I would have no qualms about trying to make sure my son feels good about his looks. Like you, I know what it feels like to be picked on, and kids can be very cruel. I would like to say to those that say its cosmetic, if it were your child, what would you do? Do you think my son will come to me at 20 and say "Mom, why did you bother?" No, I think our children will say, thanks Mom and Dad, for caring enough to do something for me, repositioning, banding or whatever- cuz nobody else seems to have given a damn! Some correction is better than none at all in my opinion. And those people can call me vain all day long if it makes them feel justified- because I only answer to my son. (Sorry, I'm venting this morning- need more coffee ;)

Good luck on your appeal- you have a great resource here with all of the parents that are appealing as well and I wish you all much success! You sound like a super mommy and your efforts are to be applauded!

' Mom

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Thank you . Couldn't have said it better myself! Here's another one for ya. Last night we were in Supercuts getting my husband's hair cut. Well, no one's commented on my son's appearance for months now, but the girl cutting his hair said, "Oh, it's so cute how one cheek is bigger than the other one." And I said, "Oh, well, that's because......"blah blah blah, and I explained it was from sleeping on his back and that he preferred the right side all the time. She said she had heard of it and that it is happening to a lot of babies. Well, this old hag who was cutting hair next to her heard probably half of our conversation and chimes in, "And don't put him on his back either or his head will get flat." I felt like hitting her! I said, "Well, that's what they tell you to do these days." I wanted to say more, but people don't understand my frustration. I'm sure she didn't mean to be offensive.

Oh, well.

Kellie

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Kellie,

The older generation always slept children on their stomachs, but we know now that SIDS CAN be a factor (ok, let's not all debate this again please)- so here we are getting the "new" advice from our Docs- so she probably didn't mean to be offensive, just speaking from her train of thought.

I was wiping the sleepies out of ' eyes in the bathroom before pt one morning, with band on, and an older lady says, "mom (real whiny), first you put this thing on my head and now you won't leave my eyes alone!" I looked at her and said, 'yes, I am a mean mommy" She sensed my irritability and said that they used to put these huge helmets on kids and this one looked better, and she didn't even know why he was wearing it! I was like, oh really-ok! That was about the worst I ever encountered, so that wasn't too bad.

The band did wonders for the cheek asymmetry had that was very evident in the mirror. I used to look at him in the mirror because it is such a mind game and your eyes play tricks on you- so the mirror was like the ultimate judge. Now we can't notice the difference with the cheek asymmetry and his eyes are the same size now, ears are almost perfectly aligned- in the mirror too! We have no regrets. Over time it has seemed to get better and I'm sure you will find things getting better as well. Good luck in your journey and keep us posted!

' Mom

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In a message dated 01/08/2002 9:09:30 AM Central Standard Time,

Kelliesmith@... writes:

<< " And don't put him on his

back either or his head will get flat. " I felt like hitting her! I said,

" Well, that's what they tell you to do these days. " I wanted to say more,

but people don't understand my frustration. I'm sure she didn't mean to be

offensive. >>

Sheesh - what a nutcase. That would have really pushed all my meanie buttons.

Marci

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