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In a message dated 1/9/02 4:08:16 AM Pacific Standard Time, jlkittredge@... writes:

We have had to switch insurances since the first band was approved and have been promptly DENIED any benefits for Will's 2nd band for the following stated reason "The use of a cranial orthosis or remodeling band or helmet for the diagnosis of positional plagiocephaly is not considered to be medically necessary as it does not correct or improve a bodily function. We are unable to authorize any benefits for this item." Does anyone have any words of advice on how I could fight this? If so, I would greatly appreciate it.

Oh I feel your pain. Are you familiar with the files section of this group and other plagio groups? There are lots of good documents in the files section that I recommend you print off and read for starters. It will help you get ready to write your appeal letter. There are many good successful appeal letters in there too. I am currently working on our 2nd appeal letter. My daughter only had one band and the insurance company is refusing to pay for it so your case is a bit different and I think it is great that your first insurance company paid some and you should use that fact in your letter (I think) Check out the files section by going to the plagio group main page and click on files then click on the various documents and print them out and read them all and they will get ya started. (mommy to 22 mos and just mommy to an unknown little one....just had a postive pregnancy test this a.m.) Yeah!)

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Hello Plagio Parents,

My son at 6 mo. was labeled with a " severe case " of positional

plagio. Our first insurance covered 50% of his current DOCband,

which was great. The time has come for my son to enter his second

band, which in the beginning we were told he was probably going to

need. We have had to switch insurances since the first band was

approved and have been promptly DENIED any benefits for Will's 2nd

band for the following stated reason " The use of a cranial orthosis

or remodeling band or helmet for the diagnosis of positional

plagiocephaly is not considered to be medically necessary as it does

not correct or improve a bodily function. We are unable to authorize

any benefits for this item. " Does anyone have any words of advice on

how I could fight this? If so, I would greatly appreciate it.

Thanks!

in Michigan

Mother to (9 1/2 mo)

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You are probably in for along battle withyour new insurance company-but don't give up!!! Following are some links that will be helpful for you if you have trouble accessing them let me know and I will send them in another form. Good Luck and Keep us posted on your battle. What type of insurance do you have?????

Beck

: Plagiocephaly Files

Insurance Issues and Support

Click here: State Insurance Departments

Click here: Plagiocephaly Information Center - Cranial Technologies, Inc.

Click here: Research Links

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> Following are some links that will be helpful for you if you have

> trouble accessing them let me know and I will send them in another

form.

Beck:

I just wanted to say how helpful all the links are to everyone!

Thanks!

Debbie Abby's mom

MI

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I don't know if your DR. S could help or not but when I got my letter from

the insurance company that they would not pay I was on the phone quick! I

told the lady that I did not see how they could tell me that my son did not

need a helmet when they had never even seen him. Before i could vent to much

she asked me when my letter had been written, and when i told her she said

don't worry about it your dr. has already called and taken care of it. and it

was covered.

sherry Mom to mason

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  • 1 month later...
Guest guest

Dear Jackie, I have Health Net, and I was turned down for my son's

Oral/Verbal Dyspraxia. I went through all the appeals with the insurance co.

and I contacted New Jersey State, Dept. of Health and Senior Services. I was

told that I could then appeal through the state, it cost $ 25.00 on my end.

They have to read over everything you submitt and then decide if you have a

case. I submitted a cover letter I wrote, and the Speech/Language Eval.

Info. from the Neuro. and a letter of Medical Necess. from his doctor. I

won, I was given 30 sessions a year. Not great but it is something. You

could also try contacting your local school district to have speech provided

through pre-school early ed. I have been doing that as well for the last 6

years, the only problem is that I learned the hard way, you should make sure

they have a speech teacher who is trained and famil. with Apraxia. When my

son started at the school I had a different diagn. which was just

Articulation/Phonological and know since I had him evaluated twice since

then he is know correctly been diagn. with Dyspraxia. I also homeschool him

because the school district was not going to give him the help he needed.

Good luck, Kathy feel free to contact me.

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Guest guest

Hi there,

Healthnet has a history of giving their customers a run around like this. I

would turn down the level two phone thing and start requesting a hearing

before their board that handles customer's appeals for denial of coverage.

That way you can have your experts testify on your behalf or submit

affidavits in writing about their conclusions and plans for treatment. You

also can speak before real people about your child's needs. You do not need

a lawyer yet. There are health care professionals usually nurses who have

lately started specializing in helping consumers navigate the HMO nightmare

maze. Some of these specialize in handling medicare cases, but a few

contacts might give you some leads on someone who will help you with this.

If all else fails, then by all means consult a lawyer. Just remember, it's a

waiting game, the louder you are, the more you bug them the greater chance

you have to get your child's therapy covered. They try to hold out as long

as possible with all kinds of excuses, but you can be strong for your child

and outlast them. Best wishes for your success. We fought for a year and

finally our insurance company covered the therapy which was included in our

plan in the fine print, they just thought they could deny, deny, deny and we

would go away but it didn't happen that way. Stay strong. B.

>From: prupru@...

>Reply-

>

>Subject: [ ] Insurance Denial

>Date: Mon, 4 Mar 2002 16:42:52 EST

>

>My insurance Co, Health Net has denied speech therapy for my 4.5 y.o.son

>with

>verbal apraxia. At first they stated that he would not make any

>significant

>progress within 2 months (the maximum period of coverage). When I sent

>notes

>from my SLP to dispute this, they changed to saying that verbal apraxia was

>not a congenital disorder. Although, Dr. Agin sent them a letter about

>this,

>they continue to deny therapy.

>

>They are now offering me a level 2 appeal which is done by phone. I

>requested that a Neurodevelopmental Pediatrician and a SLP with childhood

>apraxia experience be included in the evaluation. I was told that they are

>not required to do this.

>

>Any suggestions on how I should proceed? I will file a complaint with the

>Insurance Board, but I am not expecting much from that. Should I hire a

>lawyer? I know it sounds like alot of effort to get them to pay for a very

>limited benefit, but at this point it has become a matter of principle. I

>just can't understand how an insurer can flatly refuse coverage for a

>service

>that meets the benefit criteria.

>

>Thanks for the help.

>Jackie

>

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Guest guest

Jackie,

I am sorry to hear that your insurance co. wll not cover your needs. I just

don't understand why these insurance co. do not think that speech therapy is not

a need. What is the insurance for anyways?????? These are medical needs that

they should be covering. Nothing makes sense anymore! I had found out through

someone I know who put there son in therapy that sometimes the ones who make the

diagnoses on your child HAVE to stretch the truth a little bit and make a

diagnoses more severe than it really is. My suggestion is that...ask them if

they can make it more severe than it really is. That is what my speech therapist

did when my son was evaluated. Knowing that most insurances do not cover this

type of need...they want there money no matter what so it won't hurt them either

way. My sons therapy is covered and I have already recieved what the insurance

co sends to let me know what has been billed...so far each therapy session is

194.00 for a half an hour 2x's a week. Seems like alot...just hoping it is well

worth it.

Good luck to you

>My insurance Co, Health Net has denied speech therapy for my 4.5 y.o.son with

>verbal apraxia. At first they stated that he would not make any significant

>progress within 2 months (the maximum period of coverage). When I sent notes

>from my SLP to dispute this, they changed to saying that verbal apraxia was

>not a congenital disorder. Although, Dr. Agin sent them a letter about this,

>they continue to deny therapy.

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Guest guest

We are going through this also. Do they cover speech therapy for

anything? If so, what?

My daughter has brain damage, and our insurance does cover speech

therapy to " restore " her speech. That's what we now have to prove.

Suzi

> My insurance Co, Health Net has denied speech therapy for my 4.5

y.o.son with

> verbal apraxia. At first they stated that he would not make any

significant

> progress within 2 months (the maximum period of coverage). When I

sent notes

> from my SLP to dispute this, they changed to saying that verbal

apraxia was

> not a congenital disorder. Although, Dr. Agin sent them a letter

about this,

> they continue to deny therapy.

>

> They are now offering me a level 2 appeal which is done by phone.

I

> requested that a Neurodevelopmental Pediatrician and a SLP with

childhood

> apraxia experience be included in the evaluation. I was told that

they are

> not required to do this.

>

> Any suggestions on how I should proceed? I will file a complaint

with the

> Insurance Board, but I am not expecting much from that. Should I

hire a

> lawyer? I know it sounds like alot of effort to get them to pay

for a very

> limited benefit, but at this point it has become a matter of

principle. I

> just can't understand how an insurer can flatly refuse coverage

for a service

> that meets the benefit criteria.

>

> Thanks for the help.

> Jackie

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