Thanks to all & update on Zach

[Guest guest]

Hi Plagio Support Friends!

I just want to say how grateful I am for this support group! I have

received a number of responses to my questions and I appreciate that

a lot. I also want to give a quick update on how we are treating my

son Zach's Plagiocephaly. He has to wear his band at night only

because his glasses won't fit under the band (we tried everything;

and we found out that the babies that do wear the band and glasses

wear a smaller and closer fitting pair of glasses than Zach can wear

since he is older and his glasses can't even be attached to more

flexible straps to be attached around his head under the helmet

because then they would not sit on his nose correctly....frustrating,

huh!?!?). So he wears his glasses during the day, his band at night

and every 3-4 weeks we are going to see a DO that specializes in

cranial sacral therapy. We are hoping the combination of both these

therapies will help him.

Zach's orthotist said " you should invent a pair of glasses or piece

of plastic to make those glasses work with the helmet so you could

make a small fortune... " I said, " or alteast make enough money to

pay off the band...ha! " Needless to say, now I am in the process of

writing my appeals letter to the insurance company. From what I have

heard from several of you, it is going to be a long process, but it

will be worth it. Especially if it helps parents get this covered in

the future without any problems. I still can't believe my insurance

company will cover a $25,000 surgery to correct this condition but

they won't cover the $600 band. That makes a lot of sense, doesn't

it?

Thanks again to all of you, especially those of you who have shared

your stories and suggestions with me.

Lou (Zach's mom)

[Guest guest]

Lou:

Thanks for the update. I'm sure Zach will still see correction while

wearing his band just at night. That really is a bummer that he

can't wear glasses & helmet at the same time, but it does make since

why not now.

I hope things go well for you with the DO and the therapy. Like I

said before, I've heard so many good things about it. Be sure you

let us know how it goes.

Yet another struggle with insurance. Good luck with that fight too,

appeal, appeal appeal!!!!

Debbie Abby's mom

MI