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Claire - mom to Ethan

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,

So good to hear from you! I remember your father-in-laws post and have been

hoping that all was going well for you and Ethan. Good to hear that you have

made some progress and are able to get things taken care of closer to home.

We seem to be getting more and more people posting from Englad - perhaps this

condition will start to become more recognized and more easily treated there!

Anyways, Ethan is so lucky to have such a loving and concerned family. You

are doing all that you can for him and that is wonderful. Good for you! Best

wishes and let us know how it goes in Bristol.

Marci (mom to )

Oklahoma

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Marci

Thanks for your message. I will certainly keep you informed. We

English are definately coming out of the woodwork now aren't we!!!

Thank god for groups like this. Without the internet we would not

have pushed as much as we did. Hopefully the condition is being

recognised here, but reading the messages in this group we are not

alone with our insensitive, stubborn Doctors!!!!

> ,

>

> So good to hear from you! I remember your father-in-laws post and

have been

> hoping that all was going well for you and Ethan. Good to hear that

you have

> made some progress and are able to get things taken care of closer

to home.

> We seem to be getting more and more people posting from Englad -

perhaps this

> condition will start to become more recognized and more easily

treated there!

>

> Anyways, Ethan is so lucky to have such a loving and concerned

family. You

> are doing all that you can for him and that is wonderful. Good for

you! Best

> wishes and let us know how it goes in Bristol.

>

> Marci (mom to )

> Oklahoma

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:

We Americans & Canadians have about just as many clueless Drs than

you have in England. What a shame! I am really glad you found our

group - it is sooo nice to know you're not alone and to get good

advice from people in your area. It is a small world. I don't know

where I'd be w/o the internet either - it has taught me so much about

plagio.

I also remember your father in laws post - what a great guy. Wanna

trade in laws? I could ship mine to England any time!!! HEHEHEHE.

Be sure you do keep us informed of Ethan's progress. I wish you the

best of luck!

Debbie Abby's mom DOCGrad

MI USA :)

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