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Re: Angry & Frustrated

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Hi ,

I'm sorry it's been a frustrating time for you, I know all of this

can be very stressful. Like your son, my daughter had a flat spot on

her left side, and I didn't worry about it because my son had a flat

head and the ped kept telling me it would round out on its own. Well

luckily, his did, but my ped showed more concern over my daughter's

flat head because it was on one side only. Her torticollis was

making her slump to her left, and that was the only side she would

ever lay on. To tell you the truth, I didn't notice anything until

other people started to point it out. Anyways, my daughter was also

5 months when she began to wear the STARband, and we've heard it's a

great time to start. Don't blame yourself for not knowing what was

going on, it's harder for parents to see those things, and it's not

too late for you to get help for your son. We've already seen a

little improvement, and are really grateful we chose to do this for

Abby. Hope everything goes well for you. Keep us posted!

Alaina Abby's mom

Idaho

-- In Plagiocephaly@y..., " barryandnancys " <barryandnancy@m...> wrote:

> Hi. My name is and I'm new to this group. My son is almost

5

> months old and we just discovered he has this problem. Oh, we

always

> knew he had a flat spot on the left side of his head but everyone

> including our ped. said that it was normal and it would go away.

It

> wasn't until my husband looked at our son from above that we

noticed

> one ear is way forward, his cheek is bulging, and his forehead is

> protruding a bit on the flat side. I am just so angry that we

didn't

> know, angry at myself I guess for not knowing. My son likes to

sleep

> with his head tilted to the left. I don't think he has

torticollis.

> We are seeing a specialist on Fri. and will probably end up getting

a

> band or helmet. We live in Wash. and I noticed that the DOC band

> clinic is not here. I've gotten alot of good info from the web

site

> and other sites. Thanks for the info and for letting me vent. We

> are just afraid and frustrated. Thanks.

>

>

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Hi & welcome to our group!!

We all understand your frustration and anger. Your story is similar

to so many of our parents in the group. SOOO many pediatricians play

off plagio as no big deal, he'll outgrow it, or hair will cover the

flatness.

You have no reason to feel any guilt toward yourself though. Your

son is very young yet, so IF a helmet or band is needed, he's young

enough to get good & fast correction. You already have an appt with

a specialist so you are doing everything right.

Have you tried repositioning him while he's sleeping at night? Check

out www.plagiocephaly.org for SO much helpful information. There's

also a section in there for questions to ask the Dr. that you might

want to check out before your appt Friday with the specialist.

There are probably several local hospitals in your area where you

could receive either a STARband made by Orthomerica or a locally made

helmet.

Be sure you stay with us to keep us updated on your son's progress.

Let us know how the appt with your specialist goes on Friday. Again,

check out www.plagiocephaly.org for so much wonderful info..

Debbie abby's mom DOCgrad

MI

--- In Plagiocephaly@y..., " barryandnancys " <barryandnancy@m...>

wrote:

> Hi. My name is and I'm new to this group. My son is almost

5

> months old and we just discovered he has this problem. Oh, we

always

> knew he had a flat spot on the left side of his head but everyone

> including our ped. said that it was normal and it would go away.

It

> wasn't until my husband looked at our son from above that we

noticed

> one ear is way forward, his cheek is bulging, and his forehead is

> protruding a bit on the flat side. I am just so angry that we

didn't

> know, angry at myself I guess for not knowing. My son likes to

sleep

> with his head tilted to the left. I don't think he has

torticollis.

> We are seeing a specialist on Fri. and will probably end up getting

a

> band or helmet. We live in Wash. and I noticed that the DOC band

> clinic is not here. I've gotten alot of good info from the web

site

> and other sites. Thanks for the info and for letting me vent. We

> are just afraid and frustrated. Thanks.

>

>

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Hi and welcome to the group! You sure have come to the right

place to vent your frustrations and ask your questions.

Unfortunately, your story is very familiar to so many of us with the

peds. saying that its no big deal or that the head will round out on

its own. I had asked my ped on 2 seperate occassions about the shape

of my twins heads, and each time he told me that once they started to

move around more then their heads will start to round out. It wasn't

until my mom was babysitting for us and she's the one that noticed

that my daughter's ears were getting out of whack. After that I kept

pushing until we were finally given the rx for the bands. But I can

remember the extreme feelings of guilt that I had, I kept thinking if

only I had held them more, if only I knew how important tummy time

was, I even got mad at myself for not being a bigger person...if I

was bigger then the twins wouldn't have been so squished while in

utero. I totally beat myself up over this, but with the help of this

group I learned that its not my fault and I wasn't to blame for their

plagio. And you know what, you're not to blame either!!! You are

seeking out treatment for your son's plagio and that is very

commendable! I know its easier said than done, but please don't feel

that you are at fault!

I'm really glad that you found us, , and I hope you continue to

stick with us! You will not find a greater group of parents! Let us

know how it goes on Friday!

Niki

Kaylie & Danny (STAR grads)

Phila., PA

--- In Plagiocephaly@y..., " barryandnancys " <barryandnancy@m...>

wrote:

> Hi. My name is and I'm new to this group. My son is almost

5

> months old and we just discovered he has this problem. Oh, we

always

> knew he had a flat spot on the left side of his head but everyone

> including our ped. said that it was normal and it would go away.

It

> wasn't until my husband looked at our son from above that we

noticed

> one ear is way forward, his cheek is bulging, and his forehead is

> protruding a bit on the flat side. I am just so angry that we

didn't

> know, angry at myself I guess for not knowing. My son likes to

sleep

> with his head tilted to the left. I don't think he has

torticollis.

> We are seeing a specialist on Fri. and will probably end up getting

a

> band or helmet. We live in Wash. and I noticed that the DOC band

> clinic is not here. I've gotten alot of good info from the web

site

> and other sites. Thanks for the info and for letting me vent. We

> are just afraid and frustrated. Thanks.

>

>

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