More of my thoughts about treating Makenna with the helmet.

January 29, 2002

I'm glad we have decided to get the helmet, i'm just a little worried

about other peoples comments. I shouldnt be, my eldest daughter had

Cerebral Palsy and was wheel chair bound and i took her everywhere

and learned to not care about the stares. My two sons both have

Tourette syndrome, and people will stare sometimes when we are out in

the public. I guess its just another way i'm suppose to educate

people. My boys ages 8 and 10 are not thrilled about Makenna having

to get the band. They are worried she will be funny looking. I have

tryed to explain that we are doing this now so she will not be made

fun of in the future. What really made me decide to get the helmet is

that the Doctor said that how Makennas head looks right now, is going

to be how it will be when she is an adult, she wont be able to change

it later. I dont want to have regrets if i didnt get the helmet, so

im going to try and hope we get good results. Makenna was 6 months on

the 17th of this month, and the Doc said she will wear the helmet

until she is 12 months (WOW< LONG TIME). I trust this doc, my boys

neurologist at barnes hospital in st louis said Dr Marsh is one of

the best in the states, and i actually read an article on the

internet about plagio and treatment that 3 different docs were

interviewed for. Oh, and Makenna will be part of a study, where they

will cast her every 6 weeks and put the cast in a CAT scan to show

exactly the results and progress that has been made. 15 babies with

helmets and 15 without helmets are being part of the research. Good

thing Makenna thought the casting was fun, or i wouldnt have agreed

to be part of the research. I had always noticed that on her left

eye, the inner skin flap covered more of the tear duct, that is from

her plagio, im hopeing that will get better with treatment. Well, i

just needed to get a few things of my chest. Being so new to this i'm

always thinking about it....Everyone have a great day! Gotta get the

boys ready for wrestling practice. Gee, i feel like i'm always on the

go!LOL

Illinois

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