Re: Re: Shola? 's mom

January 23, 2002

I'm a first time mother who has a son with

Plagiocephaly and I haven't received any positive

response or advice from my local doctor who thinks I'm

crazy. I was so excited when I read (on the

Plagiocephaly support group) that there's a Doctor in

London who understands the condition. He was born by

C-Section and had a perfectly normal round head until

about two months later when I noticed that he's head

was becoming flatter and flatter at the back and one

of his ears was standing out (mis-aligned) and it got

worse and now he's head is very flat at the back.

is 17 months old born on the 12th of August 2000 and

I'm so scared that time is running out for him to have

anything done. I have read that the best results can

be achieved before the age of One when the skull does

most of it's growing and the growth slows down after

the age of 24 months.

--- abbygator49509 <dj2kirby@...> wrote:

<HR>

<tt>

I just wanted to welcome you to our group. & nbsp; This

is terrific that you

have been able to find some plagio information for

your area. & nbsp; How

old is your son ? & nbsp; Could you give us some

more information about

him & amp; his plagio? & nbsp;

Debbie Abby's mom DOCgrad

MI & nbsp; USA

& gt; I'm a first time mother myself who has a son

& gt; with Plagiocephaly and I haven't received any

positive

& gt; response or advice from my local doctor who

thinks I'm

& gt; crazy. I was so excited when I read your response

and

& gt; that there's a Doctor in London who understands

the

& gt; condition. I would be more than grateful if you

could

& gt; give me Dr. Blechers details & amp; e-mail address

so I can

& gt; arrange an appointment with him.Also I would like

more

& gt; information about funding the helmets.

& gt; & nbsp;

& gt; Thanks....

& gt;

</tt>

<tt>

For more plagio info, go to

www.plagiocephaly.org/support

January 24, 2002

Thanks for replying and it does feel better to know

thatI'm not all alone in this. I have an appointment

for Monday to see the Doctor but he's said to me that

he might not recommend the helmet because it might be

too late already. That's very sad for me because I'd

noticed and complained about the shape of s head

right from when he was about 2/3 months old and didn't

get any positive feedback from my local doctor. I

still persisted and cpmplained just about ever month

about the same thing and he told me that there was

nothing that anyone could do about it until I started

my own research and found out what it was (Plagio).

Had I known what I know now a year ago my would

have still stood a good chance for the Helmet

treatment.

I'm very sad now.....

--- ceejhas2babes <gcpopik@...> wrote:

<HR>

<tt>

Hi Shola - I am in the same position as you - I

finally too made the

decision to push hard and on Monday, we drive 5 hours

to Edmonton,

(here in Canada) to see the specialist - my daughter

Kayleigh is 19

months old and I too think we are too late to do

anything except

maybe surgery - I would try to go see the doc in

London ASAP to see

what you might still be able to do - that's what I

would recommend

Good Luck!

- in Canada

& lt;BR & gt;

& gt; & amp;gt; I'm a first time mother myself who has a

son

& gt; & lt;BR & gt;

& gt; & amp;gt; with Plagiocephaly and I haven't

received any

& gt; positive & lt;BR & gt;

& gt; & amp;gt; response or advice from my local doctor

who

& gt; thinks I'm & lt;BR & gt;

& gt; & amp;gt; crazy. I was so excited when I read your

response

& gt; and & lt;BR & gt;

& gt; & amp;gt; that there's a Doctor in London who

understands

& gt; the & lt;BR & gt;

& gt; & amp;gt; condition. I would be more than grateful

if you

& gt; could & lt;BR & gt;

& gt; & amp;gt; give me Dr. Blechers details & amp;amp;

e-mail address

& gt; so I can & lt;BR & gt;

& gt; & amp;gt; arrange an appointment with him.Also I

would like

& gt; more & lt;BR & gt;

& gt; & amp;gt; information about funding the

helmets. & lt;BR & gt;

& gt; & amp;gt; & amp;nbsp; & lt;BR & gt;

& gt; & amp;gt; Thanks.... & lt;BR & gt;

& gt; & amp;gt; & lt;BR & gt;

& gt; & lt;BR & gt;

& gt; & lt;/tt & gt;

& gt;

& gt; & lt;br & gt;

& gt; & lt;tt & gt;

& gt; For more plagio info, go to

& gt; www.plagiocephaly.org/support & lt;BR & gt;

& gt;

January 24, 2002

I too have an appointment Monday to see a neuro surgeon - I am pretty sure

he will tell me we are too late for a helemt. You can see pics of

Kayleigh's head at www.parksolutions.com/plagio

I complained too, to 4 different docotrs until finally I discovered I should

be talking to a skull specialist and insisted my doctor refer me -and that's

why I see the neuro surgeon on Monday.

I too wish that I had done the research a year ago or persisted then - cause

then Kayleigh would have been 7 months and in a helpmet - not 19 months and

not sure what to do.

I will still try to see a specialist like I am - just to be sure there is

nothing you can do. You want to make sure the plagio isn't severe because

if it is - it could lead to migranes, TMJ, etc - so you should still try to

get into a specialist if you aren't seeing one yet!

-

Re: Re: Shola? 's mom

> Thanks for replying and it does feel better to know

> thatI'm not all alone in this. I have an appointment

> for Monday to see the Doctor but he's said to me that

> he might not recommend the helmet because it might be

> too late already. That's very sad for me because I'd

> noticed and complained about the shape of s head

> right from when he was about 2/3 months old and didn't

> get any positive feedback from my local doctor. I

> still persisted and cpmplained just about ever month

> about the same thing and he told me that there was

> nothing that anyone could do about it until I started

> my own research and found out what it was (Plagio).

> Had I known what I know now a year ago my would

> have still stood a good chance for the Helmet

> treatment.

>

> I'm very sad now.....

>

> --- ceejhas2babes <gcpopik@...> wrote:

> <HR>

> <html><body>

>

> <tt>

> Hi Shola - I am in the same position as you - I

> finally too made the

> decision to push hard and on Monday, we drive 5 hours

> to Edmonton,

> (here in Canada) to see the specialist - my daughter

> Kayleigh is 19

> months old and I too think we are too late to do

> anything except

> maybe surgery - I would try to go see the doc in

> London ASAP to see

> what you might still be able to do - that's what I

> would recommend

>

> Good Luck!

>

> - in Canada

>

> & lt;BR & gt;

> & gt; & amp;gt; I'm a first time mother myself who has a

> son

> & gt; & lt;BR & gt;

> & gt; & amp;gt; with Plagiocephaly and I haven't

> received any

> & gt; positive & lt;BR & gt;

> & gt; & amp;gt; response or advice from my local doctor

> who

> & gt; thinks I'm & lt;BR & gt;

> & gt; & amp;gt; crazy. I was so excited when I read your

> response

> & gt; and & lt;BR & gt;

> & gt; & amp;gt; that there's a Doctor in London who

> understands

> & gt; the & lt;BR & gt;

> & gt; & amp;gt; condition. I would be more than grateful

> if you

> & gt; could & lt;BR & gt;

> & gt; & amp;gt; give me Dr. Blechers details & amp;amp;

> e-mail address

> & gt; so I can & lt;BR & gt;

> & gt; & amp;gt; arrange an appointment with him.Also I

> would like

> & gt; more & lt;BR & gt;

> & gt; & amp;gt; information about funding the

> helmets. & lt;BR & gt;

> & gt; & amp;gt; & amp;nbsp; & lt;BR & gt;

> & gt; & amp;gt; Thanks.... & lt;BR & gt;

> & gt; & amp;gt; & lt;BR & gt;

> & gt; & lt;BR & gt;

> & gt; & lt;/tt & gt;

> & gt;

> & gt; & lt;br & gt;

> & gt; & lt;tt & gt;

> & gt; For more plagio info, go to

> & gt; www.plagiocephaly.org/support & lt;BR & gt;

> & gt;

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