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update on Logan

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Hi Guys! Logan has had his STARband for nearly a week. We had to go back

the very next day because it was slipping off his head. So our ortho

placed " grippers " at the bottom of the band. Last night was the first

night he wore it all night and it left a strawberry by his left eye. We

have to go back on Friday for another adjustment. So far it doesn't

bother him too much just a lot of sweating. We're hoping for a growth

spurt soon. He had just had one before he got the band. On tuesday

took Logan in for his checkup and she (our ped)thought his head already

looked rounder but to be honest I think it's too soon to tell. It was

our Physical therapist that suggested the helmet. Our ped never ever

mentioned plagio to us until I brought it up. On a positive note though

i think his eye asymmetry is looking better. So it's a start!

Sara(Logan's mom)

OK

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Sara,

Good to hear that things are going well for Logan! Luckily you live fairly

close so going in for adjustments doesn't mean a 2 -3 hour drive! Hopefully

your ped will have learned something from this experience and other babies in

her care will be treated for plagio when necessary in the future.

It does seem soon to already see improvement, however, some parents notice

changes within 1 to 2 weeks. It all depends on the baby! Good luck and the

sweating will decrease over the first few weeks. ;-)

Marci (Mom to )

Oklahoma

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Sara:

Things sound to be going pretty good! That's great. The 1st week or

2 usually require a few trips back to the orthotist for adjustments

to get that perfect fit.

It is possible you've seen improvement already. It seems so hard to

beleive but there could be some rounding already!

Now feed Logan some spinach to get him growing :)

Debbie Abby's mom DOCGrad

MI

> Hi Guys! Logan has had his STARband for nearly a week. We had to go

back

> the very next day because it was slipping off his head. So our ortho

> placed " grippers " at the bottom of the band. Last night was the

first

> night he wore it all night and it left a strawberry by his left

eye. We

> have to go back on Friday for another adjustment. So far it doesn't

> bother him too much just a lot of sweating. We're hoping for a

growth

> spurt soon. He had just had one before he got the band. On tuesday

> took Logan in for his checkup and she (our ped)thought his head

already

> looked rounder but to be honest I think it's too soon to tell. It

was

> our Physical therapist that suggested the helmet. Our ped never ever

> mentioned plagio to us until I brought it up. On a positive note

though

> i think his eye asymmetry is looking better. So it's a start!

> Sara(Logan's mom)

> OK

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  • 3 years later...
Guest guest

,

OMG! I'm relieved to hear he is okay....... and that you like this cast.

Honestly, it doesnt matter how many times you have to get your child

anesthetized (sp?), it never gets less scary.

I am very fortunate that nothing similar has happened to Olivia, but am

always petrified when she gets wheeled into the OR. Its one of the most

frighteneng things a parent could experience...every time.

Welcome back.

HRH

update on Logan

> Logan got his 2nd cast on yesterday and it was quite a scare. While he

> was under the anestesia his o2 saturation went down to the low 50s.

> And they got him back up by giving him more anestesia. Then when they

> did the x-ray to see how straight his back is in the cast they saw

> that he has nemonia(SP?)! He had no fever and sounded clear so they

> had no idea. The anestesiologist said that was a huge risk and had she

> known he had it she never would have let us go through with it. They

> were all weirded out by it cause he semed perfectly fine except for a

> cold. But anyways, he is doing well and I like this cast much better

> than the last one.

> I saw the x-ray of his back in the cast and it is perfectly straight.

> Like 99.9 percent!!! I am very excited!!

>

> Logan's ortho has another ortho from Tokio following him around for a

> week and he took a lot of pictures so hopefully I'll get a hold of

> those so I can show you guys. They hung him from the ceiling again. I

> forgot mine so I didn't get any.

>

> Does anyone know what Chiari 1 Malformation is? They said it showed up

> on the MRI. I looked it up on the internet a little but found

> conflicting things so still don't understand it. Anybody have any

> advice?

>

>

>

>

>

>

>

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