Guest guest Posted January 24, 2002 Report Share Posted January 24, 2002 Hi everyone, Like everyone else, my son has torticollis and positional plagio. We first noticed his head flattening at 3 weeks but his dr. told us not to worry about it. Being first time parents we didn't know any better:( At 2 months I realized that his head was getting worse and demanded a referral to a ped. It's been several months of repositioning and OT and his head is still misshapen. However, his ears have actually started to realign. We are not sure if this means the repositioning is working or if we should consider getting the helmet given he is almost 6 months old. Does anyone have a similar story? Advice? Thanks Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2002 Report Share Posted January 24, 2002 Dana: It does sound like you have been getting somewhere with repositioning!! That's great! ) Whether or not you should switch over to a helmet will be a big decision for you to make. If you feel you have had really good success with repositioning, and you feel it will continue, then by all means continue with it. On the flip side of that, your son is getting older by the day, and you may find the repositioning becomes difficult or impossible in the weeks and months to come. But consider too that when he starts to sit on his own, you MAY see some improvement at that time as well (although many (not all!) of us could say that sitting up had no effect on head shape). It's all so confusing!! No one can know what will happen with each individual situation. Each baby and each case is different from the next, and there's no way to look ahead to see if it will all work out on it's own. I wish you luck with your decision! Please keep us posted as to what you decide to do. Kendra new member/question of ear alignment. Hi everyone,Like everyone else, my son has torticollis and positional plagio. We first noticed his head flattening at 3 weeks but his dr. told us not to worry about it. Being first time parents we didn't know any better:( At 2 months I realized that his head was getting worse and demanded a referral to a ped. It's been several months of repositioning and OT and his head is still misshapen. However, his ears have actually started to realign. We are not sure if this means the repositioning is working or if we should consider getting the helmet given he is almost 6 months old. Does anyone have a similar story? Advice?Thanks DanaFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2002 Report Share Posted January 24, 2002 Hi Dana: Welcome to our group!! It is hard for any of us to say if your son might need a helmet or not. Have you been referred to a pediatric neurosurgeon yet? A ped. neuro could offer valuable input as to your son's headshape and ears. It sounds like you've seen some success with repositioning which is great! At 6 mos your son is probably able to sit up a bit now and sit in his exesaucer which will mean less time on his head. How is his tort coming along? Deciding whether or not to get a helmet for your son is very difficult. You might want to wait & see if repositioning will help (which it has some parents) but then you also don't want to wait until your son is older to begin helmet treatment (the younger you begin, the better the correction often is). Do you have any pictures you could email us of your son's headshape and/or ears? We'd love to see the cutie! Welcome again. Debbie Abby's mom DOCGrad MI > Hi everyone, > Like everyone else, my son has torticollis and positional plagio. > We first noticed his head flattening at 3 weeks but his dr. told us > not to worry about it. Being first time parents we didn't know any > better:( At 2 months I realized that his head was getting worse and > demanded a referral to a ped. It's been several months of > repositioning and OT and his head is still misshapen. However, his > ears have actually started to realign. We are not sure if this > means the repositioning is working or if we should consider getting > the helmet given he is almost 6 months old. Does anyone have a > similar story? Advice? > Thanks > Dana Quote Link to comment Share on other sites More sharing options...
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