Re: UPDATE - Desparate Parents in the UK

[Guest guest]

Nick,

I'm glad you have been able to get the ball rolling and have potentially

found the help you need in England. That is very good news indeed. It looks

like was able to provide quite a bit of informaiton to you and

hopefully that was helpful.

I'll second Debbie's comment about your baby's name - Tegan is really a

beautiful name! Good luck and keep us posted.

Marci (Mom to )

Oklahoma

[Guest guest]

Hi everyone,

Just an update as it seems there is some confusion about Dr Blecher in London.

I have been talking with him and he see's people for free. You just have to email him and he responds within approximately 1 hour. So the only cost you have to absorb is getting there. I'll post more details if any wants them after I've seen him. Or alternatively, email me at : nick.whitfield_AT_purple.net

(Remove the "_AT_" bit and put @ in instead. It stops people stealing your email address and sending you unsolicited emails)

He holds his clinics on a Monday at Kings in London. I've got his secretarys details if you wish to make an appointment. I also sent him a phot of tegan's head which he seemed to think wasn't too bad but advised a consultation anyway.

Dr Blecher also said that the only cost may be the cost of a helmet/band if it was necessary but it seems that he takes the view of using them only if necessary. I don't want Tegan to wear a helmet/band if she doesn't have to - I just want to be sure I can help her as best I can. If I can help anyone else through my experiences then I'm happy to do so as without this group I would be still stuck with my local doctor telling me that theres nothing wrong and suggesting I've got new parent syndrome - worrying about everything.

Thanks

Nick and baby Tegan

-----Original Message-----From: purplesystems [mailto:nick.whitfield@...]Sent: 21 January 2002 13:44Plagiocephaly Subject: UPDATE - Desparate Parents in the UKHi everyone,First off I would like to thank everyone who posted a response to my appeal to find a specialist who I can see about my 8 month old baby daughters head.Loads of you responded with encouragement, advice and directions in where to look and as a result I've now found a german doctor (Dr Blecher) in London who understands this condition. I'm in the process of making an appointment to see him and hopefully all will be right from there onwards.If there are still issues however which cannot be resolved in the UK then I will take her to the Boston Childrens Hospital as I have been contacted by several UK parents who have been there as well as some American parents who have all said how good it is. It also is easier to get to from the UK which I exepect is a nightmare flying for 7 hours with an 8 month old who gets bored easily :)Its great to know your not alone out there and all the comments and feedback has been brilliant. Thank you everyone for that.I will of course let everyone know how baby Tegan is getting on. We're seeing out local doctor on Wednesday to resolve any insurance details and then on to see Dr Blecher.Thanks again Nick and TeganFor more plagio info

[Guest guest]

thanks for the great info Nick!

Good luck

Beck

[Guest guest]

Nick,

Great news about getting in to see Dr. Blecher. I'm sure he will be able to

tell you for sure if Tegan needs a helmet. I've heard some really good things

about him from others in this group.

Good luck and let us know when you get in to see him. Also, thanks for being

willing to field questions from other UK parents - that is very much

appreciated.

Marci (Mom to )

Oklahoma

[Guest guest]

Thank you for the update Nick! This is great information to have! )

Good luck at your appointment!

Kendra in Canada

RE: UPDATE - Desparate Parents in the UK

Hi everyone,

Just an update as it seems there is some confusion about Dr Blecher in London.

I have been talking with him and he see's people for free. You just have to email him and he responds within approximately 1 hour. So the only cost you have to absorb is getting there. I'll post more details if any wants them after I've seen him. Or alternatively, email me at : nick.whitfield_AT_purple.net

(Remove the "_AT_" bit and put @ in instead. It stops people stealing your email address and sending you unsolicited emails)

He holds his clinics on a Monday at Kings in London. I've got his secretarys details if you wish to make an appointment. I also sent him a phot of tegan's head which he seemed to think wasn't too bad but advised a consultation anyway.

Dr Blecher also said that the only cost may be the cost of a helmet/band if it was necessary but it seems that he takes the view of using them only if necessary. I don't want Tegan to wear a helmet/band if she doesn't have to - I just want to be sure I can help her as best I can. If I can help anyone else through my experiences then I'm happy to do so as without this group I would be still stuck with my local doctor telling me that theres nothing wrong and suggesting I've got new parent syndrome - worrying about everything.

Thanks

Nick and baby Tegan

-----Original Message-----From: purplesystems [mailto:nick.whitfield@...]Sent: 21 January 2002 13:44Plagiocephaly Subject: UPDATE - Desparate Parents in the UKHi everyone,First off I would like to thank everyone who posted a response to my appeal to find a specialist who I can see about my 8 month old baby daughters head.Loads of you responded with encouragement, advice and directions in where to look and as a result I've now found a german doctor (Dr Blecher) in London who understands this condition. I'm in the process of making an appointment to see him and hopefully all will be right from there onwards.If there are still issues however which cannot be resolved in the UK then I will take her to the Boston Childrens Hospital as I have been contacted by several UK parents who have been there as well as some American parents who have all said how good it is. It also is easier to get to from the UK which I exepect is a nightmare flying for 7 hours with an 8 month old who gets bored easily :)Its great to know your not alone out there and all the comments and feedback has been brilliant. Thank you everyone for that.I will of course let everyone know how baby Tegan is getting on. We're seeing out local doctor on Wednesday to resolve any insurance details and then on to see Dr Blecher.Thanks again Nick and TeganFor more plagio info

[Guest guest]

Nick:

Thanks for the information. I also love the AT substitute for @ when

you posted that. That's a very good idea. We could all use a few

less " junk emails " ! Good luck with everything. I don't think the

new parent syndrome ever goes away! YIKES

Debbie Abby's mom DOCgrad

MI

--- In Plagiocephaly@y..., " Nick Whitfield " <nick.whitfield@p...>

wrote:

> Hi everyone,

>

> Just an update as it seems there is some confusion about Dr Blecher

in

> London.

>

> I have been talking with him and he see's people for free. You just

have to

> email him and he responds within approximately 1 hour. So the only

cost you

> have to absorb is getting there. I'll post more details if any

wants them

> after I've seen him. Or alternatively, email me at :

> nick.whitfield_AT_purple.net

>

> (Remove the " _AT_ " bit and put @ in instead. It stops people

stealing your

> email address and sending you unsolicited emails)

>

> He holds his clinics on a Monday at Kings in London. I've got his

secretarys

> details if you wish to make an appointment. I also sent him a phot

of

> tegan's head which he seemed to think wasn't too bad but advised a

> consultation anyway.

>

> Dr Blecher also said that the only cost may be the cost of a

helmet/band if

> it was necessary but it seems that he takes the view of using them

only if

> necessary. I don't want Tegan to wear a helmet/band if she doesn't

have to -

> I just want to be sure I can help her as best I can. If I can help

anyone

> else through my experiences then I'm happy to do so as without this

group I

> would be still stuck with my local doctor telling me that theres

nothing

> wrong and suggesting I've got new parent syndrome - worrying about

> everything.

>

> Thanks

>

> Nick and baby Tegan

>

>