Guest guest Posted February 4, 2002 Report Share Posted February 4, 2002 Hi! My son, ph (now 6 months), and I are new to the group. He was diagnosed with torticollis and plagiocephaly at 4 months. However, our pediatrician didn't think it was serious and only recommended stretching. After I became concerned that things were not improving (as I had been assured they would), I asked for a referral to a neurologist who, after our meeting, referred me to a plastic surgeon group. We had a CT scan done on Friday and, from what I understand, a cranial banding clinic is next on the agenda. I feel like I am running around in different directions and precious time is being wasted. I met with a physical therapist (for the torticollis)when was 4 months old but she didn't feel he needed regular sessios because it would improve as his neck became stronger. However, 2 months later, can hold his head up but it is still very much tilted. Two whole months have passed during which we could have accomplished so much more. And, we have found out that our insurance will be uncooperative with the CT scan and banding. I am discouraged and scared for my son! I apologize for ranting so much my first time in the group but it feels comforting to know that others understand. Thanks for listening! Stiles Quote Link to comment Share on other sites More sharing options...
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