Guest guest Posted February 1, 2002 Report Share Posted February 1, 2002 Christi, That is soooo terrific that Mya is almost at full range of motion!! Keep up the great work (and I know that it is work!!- don't worry, one day soon you'll be free of doing stretches and thinking stretches and worrying about stretches and Mya will be totally resolved!!) Actually was 8 weeks old when I found out about tort- I noticed that his head would always fall one way, but like you, thought this was just a favored way, and i thought he was just too young to have enough neck support (although he lifted his head the day he was born believe it or not!). Thank God my ped asked me at his 2 month check up if he always preferred one side- she couldn't get him to turn the other way to check his ear- and I was like YES! I couldn't even get into the crease to clean his neck it was so ear to shoulder (but looking back, it didn't seem so obvious- because it would slowly spring back to the shoulder, not like it was permanently stuck there!). I am so glad she knew about it because I have talked with so many Moms that tort is not dx until 10 mnths and later, because as with plagio, the earlier you start treatment the faster your done! But even before the dx, we were conscious of repositioning and it didn't seem to help- now we know we were fighting a losing battle with the tort being a factor. To this day people (except for family now, in the beginning, they were the 1st to say, your overreacting, there is nothing wrong with his head, nobody's head is perfect!) still act as if I just wanted to torture him and put a helmet on him! They seem to dismiss the whole thing as if I was a paranoid mom, and a lot of those friends are starting to having babies with flat heads (or am I really paranoid!?). I was just thinking about it today actually, when some distant family members looked at him and said, "Oh, he looks fine "- and I say, "well, it took a lot of hard work and plus a band to get here" - then they think I want some kind of credit for be a super mom- NO- just the facts ma'am! A picture tells a thousand words! also had the smaller eye, the puffier cheek- all history now thanks to the band and pt. That is why I found such relief with talking to parents here and the tort board. Only people walking in your shoes can understand the emotions that come with this. Yes, its not fatal, thank God, but it is a condition, and when you have a baby, that's the last thing you want to hear- that there is ANYTHING wrong with your baby! And to find that you are now responsible for life changing decisions- that's a whopper of a rollercoaster to ride alone. So, I am so glad I had friends riding with me and my husband, it made all the difference in the world- and I hope it will for you too! My ped did not recommend going with the band, said his misaligned ears were an optical illusion- I educated myself and made the decision for my son that the Band was our best route. I have never regretted that decision once! And- family will ease up once they see how much correction your daughter gets- trust me! My parents were my biggest opposition, and after it was over, they wanted him to wear the band all the time because they thought he looked cuter! Sorry so long, but I get very connected when people share that they are dealing with tort as well. If I can ever help you in anyway, please feel free to email me- I would love to help someone the way I was helped out so much! BTW- is now resolved and doing fantastic! Good luck to you and all the best to Mya!! ' Mom Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.