UPDATE - UK Parents - Tegan

[Guest guest]

Well thanks to this group, I managed to track down a consultant at

Kings College in London who we visited yesterday with Tegan. Along

with his colleague, they diagnosed that Tegan has moderate plagio and

no sign of craniostenosis which is a massive relief.

Part of the visit was an initial discussion explaining the medical

reasons as to what had happened to Tegans head and enabled me to ask

questions without being shunned as I have been by my local doctors.

The result was that we immediately decided to go with their advice

and have a cast taken of Tegans head for a band. One thing I wasn't

prepared for was the actual taking of the mould of her head. Its

pretty dramatic and upsetting for the baby but only took 5 minutes.

She has her band fitted in 3 weeks time as it is being made in

Germany and Dr Blecher only visits the UK for 1 day every 3 to 4

weeks.

They estimate that she will have to wear the band for 4 to 5 months

and think they can get about 80% correction which they say will mean

it will not be noticable when she has finished treatment.

I'd like to thank the group and all those who responded as Tegan has

started on her trip to getting her plagio treated. Thanks.

I will also keep you all posted about the progress and I'll post some

pictures of Tegan once I work out how to use my digital camera.

Thanks again

Nick and baby Tegan