Re: IT'S NOT A DELUSIONAL PARISITOSIS BUT MICROSCOPIC COLLEMBOLA

[Guest guest]

Kihun, even if you did find a doc willing to listen, what really

could they do for you? They have no idea about environment, or

anything else. You would basically have to school them, something

that they despise. Then the only thing they could do is lab work

which usually doesnt turn up much, and costs a ton. You can order any

script you want or need online anyways. I have a book that a guy

documents years of dealing with doctors and labs trying to get

answers, i can forward it to you if you want. He wound up on an

antipsychotic med, that only worked in conjunction with a strict

diet, and he still had to deal with his environment.

>

> So googling around for collembola, I found this mold inspection

> company:

>

> http://www.njmoldinspection.com/pediculosis/collembola.html

>

> The webpage says " IT'S NOT A DELUSIONAL PARISITOSIS BUT MICROSCOPIC

> COLLEMBOLA PRESENT WITH MOLD INFESTIONS " .

>

> This gave me hope. Although I don't live in the NY/Tri-state area,

> maybe I could talk to someone there.

>

> So I called and this guy answered the phone (forget his name).

> He was very generous even after I told him I don't live in the

> area.

>

> I told him briefly my story, that I picked up these bugs from a

used

> car and I get biting and crawling sensations.

>

> Here's when all hope went out the window. He told me that I'm

> probably dealing with some type of allergy and not collembola b/c

> collembola typically don't follow ppl into the house. He asked

> whether I live in a humid or dry place. I said very dry b/c I have

> a dehumidifier running. He said it's probably allergy b/c

> collembola usually breed in damp places.

>

> He asked me whether I've seen a doctor, whether I've been to a

> dermatologist. I told him I had not. He said I need to go see one

> b/c they know all about skin conditions. I suggested that ppl that

> often go to a doctor are written off as imagining things or crazy

> and I suggested some other type of bugs like bird mites. I also

> told him that this all started when I bought a used car infested

> with something. He said he's trained in allertology and dermotolgy

> and the only thing he kept telling me was to go see a dermatologist

> b/c they know best and they will be able to figure out what I have

> and don't have.

>

> He also kept saying that it could also be some kind of an allergy I

> picked up - perhaps there are stuff in my clothes like fiberglass

or

> silicone. I told him again that this started after I bought the

> used car. He said that the last thing he wants to do is to tell

ppl

> they need to have their home inspected (OK, to that point, he's

> being honest and good). However, it was obvious that he did not

> want to give me the benefit of doubt that I'm dealing with

> mites/collembola/whatever until I've seen a doctor. So I said,

> thank you and ended the call. I'm not bashing the guy or I'm not

> being angry b/c he didn't let me hear what I wanted to hear. In

> fact, I appreciate the fact he took the 8 min out of his day to

talk

> to a guy when he knew there was no money in it for him. I'm just a

> bit deflated after having some hope going into the call.

>

> Ok, I'm open to seeing a doctor. I really want them to scrape my

> skin and find something (or not). But I just don't want to go and

> speak to a wall, having to tell my story and them labelling me as

> having delusional paratosis or writing me off as " uh oh, another

> morg guy with a matchbox syndrome " . Really, what do you guys

> suggest? I wish I can find an open-minded dermatologist who'll be

> able to listen.

>

[Guest guest]

Kihun -

That was a very interesting article. I know that certain people over

the past year and a half on this site have had collembola

(springtails) identified. I don't remember if it was from skin

scrapings or the environment though.

I haven't had the " pleasure " of a visit to a dermatologist, so I

guess I'm lucky!

Bessie

>

> So googling around for collembola, I found this mold inspection

> company:

>

> http://www.njmoldinspection.com/pediculosis/collembola.html

>

> The webpage says " IT'S NOT A DELUSIONAL PARISITOSIS BUT MICROSCOPIC

> COLLEMBOLA PRESENT WITH MOLD INFESTIONS " .

>

> This gave me hope. Although I don't live in the NY/Tri-state area,

> maybe I could talk to someone there.

>

> So I called and this guy answered the phone (forget his name).

> He was very generous even after I told him I don't live in the

> area.

>

> I told him briefly my story, that I picked up these bugs from a

used

> car and I get biting and crawling sensations.

>

> Here's when all hope went out the window. He told me that I'm

> probably dealing with some type of allergy and not collembola b/c

> collembola typically don't follow ppl into the house. He asked

> whether I live in a humid or dry place. I said very dry b/c I have

> a dehumidifier running. He said it's probably allergy b/c

> collembola usually breed in damp places.

>

> He asked me whether I've seen a doctor, whether I've been to a

> dermatologist. I told him I had not. He said I need to go see one

> b/c they know all about skin conditions. I suggested that ppl that

> often go to a doctor are written off as imagining things or crazy

> and I suggested some other type of bugs like bird mites. I also

> told him that this all started when I bought a used car infested

> with something. He said he's trained in allertology and dermotolgy

> and the only thing he kept telling me was to go see a dermatologist

> b/c they know best and they will be able to figure out what I have

> and don't have.

>

> He also kept saying that it could also be some kind of an allergy I

> picked up - perhaps there are stuff in my clothes like fiberglass

or

> silicone. I told him again that this started after I bought the

> used car. He said that the last thing he wants to do is to tell

ppl

> they need to have their home inspected (OK, to that point, he's

> being honest and good). However, it was obvious that he did not

> want to give me the benefit of doubt that I'm dealing with

> mites/collembola/whatever until I've seen a doctor. So I said,

> thank you and ended the call. I'm not bashing the guy or I'm not

> being angry b/c he didn't let me hear what I wanted to hear. In

> fact, I appreciate the fact he took the 8 min out of his day to

talk

> to a guy when he knew there was no money in it for him. I'm just a

> bit deflated after having some hope going into the call.

>

> Ok, I'm open to seeing a doctor. I really want them to scrape my

> skin and find something (or not). But I just don't want to go and

> speak to a wall, having to tell my story and them labelling me as

> having delusional paratosis or writing me off as " uh oh, another

> morg guy with a matchbox syndrome " . Really, what do you guys

> suggest? I wish I can find an open-minded dermatologist who'll be

> able to listen.

>

[Guest guest]

Hi Kihun. You still don't believe me that it is sarcoptic mange mite.... but, you are thinking about it, right? When you do go to the derm, insist on a scraping of an 'active' papule. one that is bumpy and full of eggs, mites, etc. When I went to the derm, she scraped an older papule and nothing came up. Take pictures of any red papule looking areas and keep those to show to the doc. I have a regular m.d. and was planning on bringing my pictures with me. Of course, I'm as nutty as a Christmas fruitcake, as far as he is concerned. The old goat. lol...... when you said animal rescue and car, I knew what it was....

You do know that sarcoptes scabiei var canis is almost the same as sarcoptes scabiei var hominis, but not quite. Your doc will tell you that canis mites cannot survive on humans, but we know better than what they have been taught. I know one lady who has scabies really bad. She is around 60 years old (not me). Has a very poor immune system, and she can't shake them. She came across a fews docs who specialize in this. And one African pharmacist who knows about this mite. She was told many things. For example, the pharmacist told her that the severe cases of this have to take ivermectin regularly for 3 to 6 months. Another doctor told her that the animal meds are just as good as the human meds. And another doctor told her that this is a very bad type of mite, and is hard to beat. I was amazed at her tenacity at finding the right doctor, and getting the care she needs through the medical

community. ly, most of us here cannot afford this type of care. She had other things wrong with her and she was treated for them, too. So, her case is complicated, based on her age and other problems. There was a point in my infestation that I had to give up my dogs, and this was very hard on me. I was prescribed anti-psychotic drugs by a psychiatrist, but, after a few months, I realized that this doctor wasn't helping me, but actually hurting me. So, Kihun, be careful. Read as much as you can and educate yourself.

mel

From: kihunonline <kihunonline@...>Subject: IT'S NOT A DELUSIONAL PARISITOSIS BUT MICROSCOPIC COLLEMBOLAbird mites Date: Tuesday, December 2, 2008, 12:03 PM

So googling around for collembola, I found this mold inspection company:http://www.njmoldin spection. com/pediculosis/ collembola. htmlThe webpage says "IT'S NOT A DELUSIONAL PARISITOSIS BUT MICROSCOPIC COLLEMBOLA PRESENT WITH MOLD INFESTIONS".This gave me hope. Although I don't live in the NY/Tri-state area, maybe I could talk to someone there.So I called and this guy answered the phone (forget his name).He was very generous even after I told him I don't live in the area. I told him briefly my story, that I picked up these bugs from a used car and I get biting and crawling sensations.Here's when all hope went out the window. He told me that I'm probably dealing with some type of allergy and not collembola b/c collembola typically don't follow ppl into the house. He asked

whether I live in a humid or dry place. I said very dry b/c I have a dehumidifier running. He said it's probably allergy b/c collembola usually breed in damp places.He asked me whether I've seen a doctor, whether I've been to a dermatologist. I told him I had not. He said I need to go see one b/c they know all about skin conditions. I suggested that ppl that often go to a doctor are written off as imagining things or crazy and I suggested some other type of bugs like bird mites. I also told him that this all started when I bought a used car infested with something. He said he's trained in allertology and dermotolgy and the only thing he kept telling me was to go see a dermatologist b/c they know best and they will be able to figure out what I have and don't have.He also kept saying that it could also be some kind of an allergy I picked up - perhaps there are stuff in my clothes like

fiberglass or silicone. I told him again that this started after I bought the used car. He said that the last thing he wants to do is to tell ppl they need to have their home inspected (OK, to that point, he's being honest and good). However, it was obvious that he did not want to give me the benefit of doubt that I'm dealing with mites/collembola/ whatever until I've seen a doctor. So I said, thank you and ended the call. I'm not bashing the guy or I'm not being angry b/c he didn't let me hear what I wanted to hear. In fact, I appreciate the fact he took the 8 min out of his day to talk to a guy when he knew there was no money in it for him. I'm just a bit deflated after having some hope going into the call.Ok, I'm open to seeing a doctor. I really want them to scrape my skin and find something (or not). But I just don't want to go and speak to a wall, having to tell my story and them

labelling me as having delusional paratosis or writing me off as "uh oh, another morg guy with a matchbox syndrome". Really, what do you guys suggest? I wish I can find an open-minded dermatologist who'll be able to listen.

[Guest guest]

Kihun, They can give you ivermectin, eurax lotion, perm. cream, and

many other drugs, at the right and safe dosage for you, which are all

tools to help fight this. My Dr and the derms were all willing to

prescribe stuff to try to help, even though they didn't see anything.

And a scaping, if they find something, will put them on your side. I

didn't have a scraping done and should have. They can also help by

ruling out things for you, like your scabies question. Ask for a

referral to a " bug " doc at one of the big hospitals or schools. They

all have departments for this type of thing, maybe they could be more

of a help.

bob

> >

> > So googling around for collembola, I found this mold inspection

> > company:

> >

> > http://www.njmoldinspection.com/pediculosis/collembola.html

> >

> > The webpage says " IT'S NOT A DELUSIONAL PARISITOSIS BUT

MICROSCOPIC

> > COLLEMBOLA PRESENT WITH MOLD INFESTIONS " .

> >

> > This gave me hope. Although I don't live in the NY/Tri-state

area,

> > maybe I could talk to someone there.

> >

> > So I called and this guy answered the phone (forget his name).

> > He was very generous even after I told him I don't live in the

> > area.

> >

> > I told him briefly my story, that I picked up these bugs from a

> used

> > car and I get biting and crawling sensations.

> >

> > Here's when all hope went out the window. He told me that I'm

> > probably dealing with some type of allergy and not collembola b/c

> > collembola typically don't follow ppl into the house. He asked

> > whether I live in a humid or dry place. I said very dry b/c I

have

> > a dehumidifier running. He said it's probably allergy b/c

> > collembola usually breed in damp places.

> >

> > He asked me whether I've seen a doctor, whether I've been to a

> > dermatologist. I told him I had not. He said I need to go see

one

> > b/c they know all about skin conditions. I suggested that ppl

that

> > often go to a doctor are written off as imagining things or crazy

> > and I suggested some other type of bugs like bird mites. I also

> > told him that this all started when I bought a used car infested

> > with something. He said he's trained in allertology and

dermotolgy

> > and the only thing he kept telling me was to go see a

dermatologist

> > b/c they know best and they will be able to figure out what I

have

> > and don't have.

> >

> > He also kept saying that it could also be some kind of an allergy

I

> > picked up - perhaps there are stuff in my clothes like fiberglass

> or

> > silicone. I told him again that this started after I bought the

> > used car. He said that the last thing he wants to do is to tell

> ppl

> > they need to have their home inspected (OK, to that point, he's

> > being honest and good). However, it was obvious that he did not

> > want to give me the benefit of doubt that I'm dealing with

> > mites/collembola/whatever until I've seen a doctor. So I said,

> > thank you and ended the call. I'm not bashing the guy or I'm not

> > being angry b/c he didn't let me hear what I wanted to hear. In

> > fact, I appreciate the fact he took the 8 min out of his day to

> talk

> > to a guy when he knew there was no money in it for him. I'm just

a

> > bit deflated after having some hope going into the call.

> >

> > Ok, I'm open to seeing a doctor. I really want them to scrape my

> > skin and find something (or not). But I just don't want to go

and

> > speak to a wall, having to tell my story and them labelling me as

> > having delusional paratosis or writing me off as " uh oh, another

> > morg guy with a matchbox syndrome " . Really, what do you guys

> > suggest? I wish I can find an open-minded dermatologist who'll

be

> > able to listen.

> >

>

[Guest guest]

Amasingly 3 out of 4 vets that I spoke to about this, did some what

believe me....

The first, when I took my pets in thinking it was scabies, warned me

that it would be a long fight as scabies mites are getting resistant.

The second one told my mother to tell me to use vet grade meds as they

are no different to human grade, he also did some of his own research

the third vet believed me, and told me to bring her in any samples I

had, as her sister had had a terrible encounter with resistant head

lice of all things, and ended up throwing out all her beds and sofas etc

this is the vet that saved my animals for me by having them quarantined.

other than that no doctor ever listened, they just gave me crazy pills.

Dont ask me why the vets I spoke with were open minded....

I wouldnt waist my time or money on doctors....even if they believe

you....they wouldnt have the foggiest clue as to how to help you.....

z

[Guest guest]

Hi Mel,

It's not that I didn't believe you but since the idea of sarcoptic

mange was new, it's still settling in and I'm doing due diligence

research on them. You're right, all the sites that talk about them

say that the canine variation cannot live on humans for long and

they go away on their own (don't we all wish HA!)

I'm just wondering what these " papules " you're referring to are. I

don't exhibit any classic human scabies symptoms - no burrows, no

crusting, no itching. But from what you say, I also understand that

canine scabies on humans probably yield different symptoms. I have

bites randomly all day, still no itching. I do have some pimple

looking stuff on my chest but I've always had them even before all

of this began...

So as a response to you, Z, Bob... do I go and try to find a good

vet or a good doctor? I know what Z's saying - even if I find a doc

who believes me, they wouldn't have the slightest clue how to help.

I'll ask my sister who her dermatologist is... at least that's a

start instead of just endlessly wondering what is it that I have...

When I call in (and the reception person answers) do I schedule an

appointment saying " I'd like to have skin scraping done " . B/c

unless the scraping's done, it's just a waste of time, right?

>

> From: kihunonline <kihunonline@...>

> Subject: IT'S NOT A DELUSIONAL PARISITOSIS BUT

MICROSCOPIC COLLEMBOLA

> bird mites

> Date: Tuesday, December 2, 2008, 12:03 PM

>

>

>

>

>

>

> So googling around for collembola, I found this mold inspection

> company:

>

> http://www.njmoldin spection. com/pediculosis/ collembola. html

>

> The webpage says " IT'S NOT A DELUSIONAL PARISITOSIS BUT

MICROSCOPIC

> COLLEMBOLA PRESENT WITH MOLD INFESTIONS " .

>

> This gave me hope. Although I don't live in the NY/Tri-state area,

> maybe I could talk to someone there.

>

> So I called and this guy answered the phone (forget his name).

> He was very generous even after I told him I don't live in the

> area.

>

> I told him briefly my story, that I picked up these bugs from a

used

> car and I get biting and crawling sensations.

>

> Here's when all hope went out the window. He told me that I'm

> probably dealing with some type of allergy and not collembola b/c

> collembola typically don't follow ppl into the house. He asked

> whether I live in a humid or dry place. I said very dry b/c I have

> a dehumidifier running. He said it's probably allergy b/c

> collembola usually breed in damp places.

>

> He asked me whether I've seen a doctor, whether I've been to a

> dermatologist. I told him I had not. He said I need to go see one

> b/c they know all about skin conditions. I suggested that ppl that

> often go to a doctor are written off as imagining things or crazy

> and I suggested some other type of bugs like bird mites. I also

> told him that this all started when I bought a used car infested

> with something. He said he's trained in allertology and dermotolgy

> and the only thing he kept telling me was to go see a

dermatologist

> b/c they know best and they will be able to figure out what I have

> and don't have.

>

> He also kept saying that it could also be some kind of an allergy

I

> picked up - perhaps there are stuff in my clothes like fiberglass

or

> silicone. I told him again that this started after I bought the

> used car. He said that the last thing he wants to do is to tell

ppl

> they need to have their home inspected (OK, to that point, he's

> being honest and good). However, it was obvious that he did not

> want to give me the benefit of doubt that I'm dealing with

> mites/collembola/ whatever until I've seen a doctor. So I said,

> thank you and ended the call. I'm not bashing the guy or I'm not

> being angry b/c he didn't let me hear what I wanted to hear. In

> fact, I appreciate the fact he took the 8 min out of his day to

talk

> to a guy when he knew there was no money in it for him. I'm just a

> bit deflated after having some hope going into the call.

>

> Ok, I'm open to seeing a doctor. I really want them to scrape my

> skin and find something (or not). But I just don't want to go and

> speak to a wall, having to tell my story and them labelling me as

> having delusional paratosis or writing me off as " uh oh, another

> morg guy with a matchbox syndrome " . Really, what do you guys

> suggest? I wish I can find an open-minded dermatologist who'll be

> able to listen.

>

[Guest guest]

Kihun, It sounds like you really need to go to put your mind at ease,

that you've done all you can for yourself. My cousin went to her vet

for me...lol. He recommended a Dr, that of course had just retired,

who specialised in bugs/skin diseases. I left my name and number on

his machine to see if he would call me back. He did and said I should

call all the big hospitals or teaching universities and go to the one

who could fit me in the soonest. Did I do this, of course not. He did

say that these departments use a wider range of drugs, being use to

dealing with tropical skin diseases, than I was using now. I told my

derm's office something was crawling on me and it was driving me

crazy. I didn't say mites or anything. They fit me in on a

cancellation in a couple of days.

bob

> >

> > From: kihunonline <kihunonline@>

> > Subject: IT'S NOT A DELUSIONAL PARISITOSIS BUT

> MICROSCOPIC COLLEMBOLA

> > bird mites

> > Date: Tuesday, December 2, 2008, 12:03 PM

> >

> >

> >

> >

> >

> >

> > So googling around for collembola, I found this mold inspection

> > company:

> >

> > http://www.njmoldin spection. com/pediculosis/ collembola. html

> >

> > The webpage says " IT'S NOT A DELUSIONAL PARISITOSIS BUT

> MICROSCOPIC

> > COLLEMBOLA PRESENT WITH MOLD INFESTIONS " .

> >

> > This gave me hope. Although I don't live in the NY/Tri-state

area,

> > maybe I could talk to someone there.

> >

> > So I called and this guy answered the phone (forget his name).

> > He was very generous even after I told him I don't live in the

> > area.

> >

> > I told him briefly my story, that I picked up these bugs from a

> used

> > car and I get biting and crawling sensations.

> >

> > Here's when all hope went out the window. He told me that I'm

> > probably dealing with some type of allergy and not collembola b/c

> > collembola typically don't follow ppl into the house. He asked

> > whether I live in a humid or dry place. I said very dry b/c I

have

> > a dehumidifier running. He said it's probably allergy b/c

> > collembola usually breed in damp places.

> >

> > He asked me whether I've seen a doctor, whether I've been to a

> > dermatologist. I told him I had not. He said I need to go see one

> > b/c they know all about skin conditions. I suggested that ppl

that

> > often go to a doctor are written off as imagining things or crazy

> > and I suggested some other type of bugs like bird mites. I also

> > told him that this all started when I bought a used car infested

> > with something. He said he's trained in allertology and

dermotolgy

> > and the only thing he kept telling me was to go see a

> dermatologist

> > b/c they know best and they will be able to figure out what I

have

> > and don't have.

> >

> > He also kept saying that it could also be some kind of an allergy

> I

> > picked up - perhaps there are stuff in my clothes like fiberglass

> or

> > silicone. I told him again that this started after I bought the

> > used car. He said that the last thing he wants to do is to tell

> ppl

> > they need to have their home inspected (OK, to that point, he's

> > being honest and good). However, it was obvious that he did not

> > want to give me the benefit of doubt that I'm dealing with

> > mites/collembola/ whatever until I've seen a doctor. So I said,

> > thank you and ended the call. I'm not bashing the guy or I'm not

> > being angry b/c he didn't let me hear what I wanted to hear. In

> > fact, I appreciate the fact he took the 8 min out of his day to

> talk

> > to a guy when he knew there was no money in it for him. I'm just

a

> > bit deflated after having some hope going into the call.

> >

> > Ok, I'm open to seeing a doctor. I really want them to scrape my

> > skin and find something (or not). But I just don't want to go and

> > speak to a wall, having to tell my story and them labelling me as

> > having delusional paratosis or writing me off as " uh oh, another

> > morg guy with a matchbox syndrome " . Really, what do you guys

> > suggest? I wish I can find an open-minded dermatologist who'll be

> > able to listen.

> >

>