Re: my mini miracle!

[Guest guest]

Kellie,

Congrats on your insurance paying for the helmet! With all that you

went through to get his helmet, its about time that you had a

stroke of luck! Now just make sure you keep it on his head (just

kidding!) One of the many joys of this whole thing is the roller

coaster ride that our emotions take us on. There were plenty of

times that I left the twins out of their bands because I felt like a

bad mom. Then I would kick myself because I would think that it was

lost time that I could get more correction. So how did do his

first night in the helmet?! Hang in there and congrats again!

Niki

Kaylie & Danny (STAR grads)

Phila., PA

> Well, to me, this seems like a huge miracle! It appears that

Regence has in

> fact paid for 's helmet! I can't believe it. To me, it is

nothing

> short of a miracle, because of the fact that the denial letter,

dated

> December 21st, 2001, was very clear in stating their denial of

's helmet

> therapy. They gave me my typical 60 days to appeal the claim, and

I was just

> about finished with my research, when I received the explanation of

benefits

> statement. I still do not know for sure, but I am going to try to

call

> Children's in Seattle tomorrow and find out if Regence did pay.

But my

> grandfather, who sells insurance, looked at it, and he's pretty

convinced

> that they did pay. It says the billed amount was 1300 but that the

agreed

> upon payment between them and the provider was 1265 or something,

and under

> patient responsibility, zero! I am just elated, if it is true, and

I guess I

> will find out pretty soon, huh?

>

> Someone had asked how was doing in his helmet. Well, to tell

you all

> the truth, he seems to be just fine. It is me who is having most

of the

> problems. Mostly because I think he must not be comfortable, or he

is

> sweating too much, or it slides down on his face, etc, etc,

etc....He has had

> it for almost a month, and not once has he worn it to bed. Tonight

is the

> first night. I don't know what is wrong with me. I feel like I am

in a

> Catch 22. I feel cruel if it is on; I feel cruel if it's off,

because I'm

> denying him correction. I read all of your posts religiously, but

I don't

> have the time or a lot of knowledge to respond to many, but I read

about all

> of you and how good you are about leaving it on, even while

sleeping, and I

> feel really bad about it. There are times when it is off and I

will look at

> his head and think, " It's not that bad. He doesn't need to wear

it. " and

> then I see him at another angle, and I think, " He needs his helmet

on. His

> head IS that bad. " So I put it on for a few hours at a time, and

then I find

> a reason to take it off. last month it was because he was sick.

>

> It was not until the day I received the Regence letter that it

really hit me

> that I am wasting precious time that I'm lucky if we have, being

that he is

> almost 13 months. I don't know if I feel like because he is older

that we

> probably won't see much correction anyway, so why bother? But then

that's

> not true because I have read so many testimonies from you all that

you can

> receive significant correction after 12 months. I honestly don't

know what

> my deal was, and is. I fought tooth and nail to get this helmet,

and now

> some days I find it hasn't touch 's head all day. I feel

awful!

>

> As soon as I got that letter, I realized that it is now or never,

and he's

> not getting another helmet. I'm not that religious of a person,

but I do

> believe in God, and I hope I don't offend anyone, but I think no

matter what

> we all believe, we can pretty much all agree in a Higher Power. I

believe in

> God, and I've been praying that He would help my , and now

Regence pays

> our claim. Yes, you can call it coincidence, but to me it is a

sign that

> 's little head will get better, but I just have to implement

the

> solution. I just can't get over how an insurance company who

doesn't pay for

> these helmets, I was told not to waste my time with appealing,

because " They

> won't pay, " and then I don't even appeal and they pay? How does

that happen?

> That's a good enough sign for me that you better believe 's

gonna have

> that helmet on 23 hours a day for the next 10 months...it's a long

time, but

> we have to do it.

>

> Sorry if I sound kind of looney tonight. I am just very inspired

by this and

> very grateful. I feel now that does have a chance.

>

> Thanks, you guys.

>

> Kellie, mom of , helmeted 1/17/02, born 1/17/01!

> Tacoma, WA

[Guest guest]

Kellie:

That is so wonderful that they have ended up paying for the helmet!

YIPPEE, finally something good happens for you & .

We all understand how difficult it is to see your baby in their

helmet. Many of us have cheated plenty by taking the helmet off. Is

he still sweating horribly in it? It'll get easier. Just plop it on

his head & forget about it, as long as he's ok in it. If it's

slipping over his eye, maybe you need a trim done to it? Give your

orthotist a call to see if he could adjust it.

Debbie Abby's mom DOCGrad

MI

>