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Re: Re: Nice to be back

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Niki:

I forgot that you have older children as well as the twins. Are we crazy or

what???? It really makes for a fun house...when all is going well. I have

to say that now that the twins are a bit older, we are gaining more of our

freedoms back. It is easier to leave the house on time.

Take care,

Sue

Cleveland

Re: Nice to be back

> Hi Sue!

> Its so great to hear from you again! You sure are keeping yourself

> busy. I always enjoyed reading your posts because our kids are so

> close in age. (I also have a kindergartener, a 3 and 1/2 yr. old and

> 1 and 1/2 yr. old twins) I'm really happy to hear that your twins

> are doing so well after being born so early. Kids are truly

> amazing! Keep up the great work by being such an advocate for many

> parents through all the groups that you a member of. Be sure to drop

> in time from time to let us know how you all are doing.

>

> Niki

> Kaylie & Danny (STAR grads)

> Phila., PA

>

>

> > Beck, Kendra, Debbie, Marci and all:

> > Hi everyone!!

> > It is nice to be back and reading about our plagio babies. We are

> > all doing great here, busy, just like everyone else in this group.

> I

> > have several " causes/passions " like this one that I like to stay

> > involved in (twins club, a preemies/NICU support group, my church,

> > PTO, our Young Republician's Club) and it gets overwhelming. I

> have

> > found that I need to take a break from one or two things so that I

> > stay fresh and find the time to actually do the things I committ

> to!!

> >

> > The kids are great... is 6, in kindergarden and just lost her

> > first tooth. Kayle is 3 1/2, FINALLY potty trained and loving

> > preschool two mornings a week. Jacskon and are 2 1/2,

> > growing perfectly (they were 29 week preemies) and have actually

> > tested as ready for preschool in the fall. I am not sure if they

> are

> > self disciplined enough to listen for 2 1/2 hours, but their Early

> > Intervention team seems to think so. We'll see.

> >

> > We still do speach therapy through EI - mostly trying to clear up

> the

> > twin babble. The EI staff has been so great to us.

> >

> > Again, the moms and dads here should be proud of the sound

> suggetions

> > and advice given to new parents. So many resources are not known,

> > and we all clearly remember how confusing and emotionally tring it

> > was at the beginning of our journey with plagio/brachio/cranio.

> >

> > I may not post as often as I want to because the advice is so

> clearly

> > and QUICKLY given by others. It really is awesome.

> >

> > It is so nice to hear of everyone's successes. Even the vents are

> > great to read because we realize we are not alone in the battle for

> > our children!!

> >

> > I will never regreat seaking out the best treatment possible for

> > ...and being strong enough to get through all of it, from

> > decision making, to casting, to actually putting the thing on his

> > head, to smiling through the stares, to the thrill of graduation.

> We

> > moms are a tough group, and having this group to lean on and learn

> > from makes it all so much easier.

> >

> > I have found a locaiton that does the Starband here in Cleveland,

> so

> > now we actually have three options for treatment: a locally made

> > helmet from the Cleveland Clinic, the DOC band from CT and the

> > Starband from Orthhodic ____ (I forget). I called the Starband

> place

> > and they have done four babies in the last year. They sound ok,

> but

> > a bit unexperienced yet.

> >

> > Love ya all, sorry so long (one of my greatest flaws!)

> > Have a great Valentines Day!!!

> > Sue Luck

> > Cleveland

> > mom to , Kayle, (DOC band grad) and

>

>

>

> For more plagio info

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Debbie:

Thanks for the reply. Yes, I am happy to have in school, although it

is very obvious how much influence friends are now having. We have some

pretty tight rules about what the kids watch and listen to (absolutely no

news, few cartoons, etc) and one day she came home singing a Brittany Spears

song. I about fell over. She learned it on the bus. Brittany may be fine

for older girls, but not my 6 year old. Just my opinion, but it opened a

whole can of worms!!!

And yes, I realized that OrthoAmerica makes the Starband, but I was

referring to the local company who fronts it. It is called Orthodic

Specialties and is in a city called Euclid. It is so nice to have another

option. I think that is what frustrates us all the most (besides lack of

information) is lack of options for treatment.

Take care,

Sue

Cleveland

Re: Nice to be back

> Sue:

> Wow, you sure are a busy woman! No wonder you haven't been around

> much. We're happy to have you back :). I remember you helping me

> out a lot last year when Abby was having some troubles with her 1st

> band, then on to our happier times later.

> You're probably quite happy to have at least one of your 4 kids in

> school.

> Be sure you keep in touch.

> BTW, the " STARband place " is Orthomerica :)

> Debbie Abby's mom DOCGrad

> MI

>

>

>

>

>

>

>

> For more plagio info

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In a message dated 02/12/2002 1:48:19 PM Central Standard Time,

msluck@... writes:

<< Some day I'll tell the story of when she

learned ALL of the words that rhyme with Luck. Of course, on the bus. Wow,

that was a conversation I wasn't prepared for!!!! >>

LOL - I guess that is something I have to look forward to!! You'll have to

share what you said just in case the rest of us have to go through it some

day!! Ha, ha, ha!!

Marci

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Debbie:

I wasn't sure how to react at first. I was shocked, but when I listened to

the words she was singing, it was a fun, catchy tune. I asked what

she knew about Brittany and of course it was nothing. So we went to the

computer and found a fan based web site and I showed her who Brittany was

(luckily comes home from school while the other three are napping so

we get some quiet time). I flatly explained that while Brittany was a

pretty girl with a pretty voice, I didn't think that God appreciated some of

the things she said or the way she danced. It was just not appropriate for

little girls to see or hear. (Group, please don't get offended...my faith

plays a big part in my life and at times like this it really comes in as

powerful stuff for my kids!) That said, I told her if she liked that type

of dance music I would find another singer that would be appropriate. (I

emailed our youth pastor for suggestions!!)

I have found that quickly addressing the topic and explaining our parental

opinion has worked well with her. Some day I'll tell the story of when she

learned ALL of the words that rhyme with Luck. Of course, on the bus. Wow,

that was a conversation I wasn't prepared for!!!!

Take care,

Sue

Cleveland

Re: Nice to be back

>

> and one day she came home singing a Brittany Spears

> song. I about fell over. She learned it on the bus. Brittany may be

> fine

> for older girls, but not my 6 year old. Just my opinion, but it

> opened a

> whole can of worms!!!

>

> Sue:

> OMG, I would have a cow too if Abby ever comes home listening to

> someone like Britney Spears! That girl gets me all wound up.

> Haven't we all seen enough of her belly button to last us a

> lifetime??? I for one have! Oh boy, I'm gettin all wound up again.

> Another thing - like any of us believe her " you know whats " are

> real!! Shew.! You really touched a nerve there. LOL

> Debbie Abby's mom DOCGrad

> MI

>

>

>

> For more plagio info

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