possible bad news re:Emilie

[Guest guest]

Well, I just posted a few days ago that Emilie's xrays came back fine.

We knew that it was just the preliminary report (the pediatric

radiologist was on vacation, so a regular radiologist read the films

first), but we thought we could rely on it. So here is the update:

the pediatric radiologist says that one of her sutures may be

partially closed. He needs a cat scan to be sure one way or the

other. So, we go for a cat scan tomorrow morning. How the heck am I

supposed to keep a 5 month old still for a cat scan?? They didn't

want to give her any meds to sedate her, so we are bringing her in

hungry so that she can have the bottle during the scan!

Well, after hearing all of this, I decided that we are going to have a

second person read the xray and the cat scan. I am demanding that a

pediatric NEURO radiologist from Children's Hospital in Los Angeles

(one of the best hospitals in the country) look at them just to be

sure. No one is going to deny me this!! My thought is that a second

opinion can't hurt in this situation, even if the first guy thinks

that her sutures are fine based on the cat scan films.

My gut instinct tells me that she doesn't have cranio -- so pray that

I am right on this one.

Any heard of a partially closed suture (on only one side)??

thanks for reading this far!!

[Guest guest]

Any heard of a partially closed suture (on only one side)??

YES! This is entirely possible. Please don't panic tho. You are on the right track in asking for a pediatric neurosurgeon to look at the films. Many radiologists have misread films in the past!

Please keep us up to date.

Kendra

possible bad news re:Emilie

Well, I just posted a few days ago that Emilie's xrays came back fine.We knew that it was just the preliminary report (the pediatricradiologist was on vacation, so a regular radiologist read the filmsfirst), but we thought we could rely on it. So here is the update:the pediatric radiologist says that one of her sutures may bepartially closed. He needs a cat scan to be sure one way or theother. So, we go for a cat scan tomorrow morning. How the heck am Isupposed to keep a 5 month old still for a cat scan?? They didn'twant to give her any meds to sedate her, so we are bringing her inhungry so that she can have the bottle during the scan!Well, after hearing all of this, I decided that we are going to have asecond person read the xray and the cat scan. I am demanding that apediatric NEURO radiologist from Children's Hospital in Los Angeles(one of the best hospitals in the country) look at them just to besure. No one is going to deny me this!! My thought is that a secondopinion can't hurt in this situation, even if the first guy thinksthat her sutures are fine based on the cat scan films. My gut instinct tells me that she doesn't have cranio -- so pray thatI am right on this one.Any heard of a partially closed suture (on only one side)??thanks for reading this far!!For more plagio info

[Guest guest]

Hi... I just wanted to say not to rely on their

opinions about the cat scans. My little had

one, and they told us that 2 of her sutures were

partially closed. So after about 3 weeks of run

arounds with so called SPECIALIST who wanted more

tests and different people to read them.... sigh, of

course, and tons more money... we decided to skip it,

and try the band. We figured if we didn't get any

correction within a month, we'd fly to specialist that

delt with this and with DOC companies...

Here's the good news, will have been in her band

4 months in two weeks, in two weeks, at 14 months old,

we've got an estimated 85% correction!!! I'm so glad

we desided to start with the band. Dr's don't know

crap in my opinion, most are just guessing with their

hands held out for our hard earned money. I was

reading in some report where this one clinic had

surgery on some 700+ patients in the 70's with cranial

syntosis, out of those, only 4 or 5 needed the

surgery. That right there had me doubting anyones

word that she had it.

I guess what I'm trying to say, fused sutures are very

rare, just hold on to your faith and positive outlook

that everything is okay.

Kelli and soon to be graduate

__________________________________________________