Guest guest Posted May 23, 2005 Report Share Posted May 23, 2005 Yes, I can only open my jaw a little bit (enough to get food in) but that is it. It makes it a challenge for my dentist but she is very patient and accommodating. I won't have surgery b/c of the risk of being under general anesthesia and weakening my *already* very weak respiratory system. Aul Pedajas <aul_co@...> wrote: Hello, Has anybody had a problem with opening mouth enough because of contractures in jaws? If yes, then what have they done to make that problem less disturbing? Is a surgery recommended, or it's too dangerous for people living with SMA? I appreciate any information. Thanks! Sincerely, Aul http://aul.freestoresystem.com/ http://aul.freestorenow.net/ http://aul.freestoreclub.com/ __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2005 Report Share Posted May 23, 2005 Opening enough for what? 'Has anybody had a problem with opening mouth enough' Lori Aul Pedajas wrote: > Hello, > > Has anybody had a problem with opening mouth enough because of > contractures in jaws? If yes, then what have they done to make that > problem less disturbing? Is a surgery recommended, or it's too > dangerous for people living with SMA? I appreciate any information. > Thanks! > > Sincerely, > > Aul > http://aul.freestoresystem.com/ > http://aul.freestorenow.net/ > http://aul.freestoreclub.com/ > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2005 Report Share Posted May 23, 2005 Hello, Victor is 18 with SMA 2. His jaw started closing up a few months ago and he was seen by two different dentists (one a specialist in jaw problems) who had us start exercises using tongue depressors. In two months Victor has increased his jaw opening by almost double. You might want to check with your dentist about this. Aul Pedajas <aul_co@...> wrote: Hello, Has anybody had a problem with opening mouth enough because of contractures in jaws? If yes, then what have they done to make that problem less disturbing? Is a surgery recommended, or it's too dangerous for people living with SMA? I appreciate any information. Thanks! Sincerely, Aul http://aul.freestoresystem.com/ http://aul.freestorenow.net/ http://aul.freestoreclub.com/ __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2005 Report Share Posted May 23, 2005 What would the surgery entail? I had given it some thought, but never went as far as to ask a dentist-surgeon. I am able to eat foods that are somewhere within the sandwich width zone, but not a hamburger size width without having to squish it with either my fingers or lips. I experience no pain and I see no compelling reason to venture into surgery just so I can heave more food into my gut....wink! Angie On 2005.05.23 18:21, a B. wrote: > Yes, I can only open my jaw a little bit (enough to get food in) but that > is it. It makes it a challenge for my dentist but she is very patient and > accommodating. I won't have surgery b/c of the risk of being under general > anesthesia and weakening my *already* very weak respiratory system. > > > > Aul Pedajas <aul_co@...> wrote: Hello, > > Has anybody had a problem with opening mouth enough because of > contractures in jaws? If yes, then what have they done to make that > problem less disturbing? Is a surgery recommended, or it's too > dangerous for people living with SMA? I appreciate any information. > Thanks! > > Sincerely, > > Aul > http://aul.freestoresystem.com/ > http://aul.freestorenow.net/ > http://aul.freestoreclub.com/ > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2005 Report Share Posted May 23, 2005 Whats a TENS? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2005 Report Share Posted May 23, 2005 There is an interesting story about this issue on the FSMA site. The person involved is younger but the story is pretty amazing. They used a TENS with great results. It would be very interesting to hear if anyone else has tried this. See http://www.fsma.org/dental04.shtml for the story. cheers, bettylou Aul Pedajas wrote: > Hello, > > Has anybody had a problem with opening mouth enough because of > contractures in jaws? If yes, then what have they done to make that > problem less disturbing? Is a surgery recommended, or it's too > dangerous for people living with SMA? I appreciate any information. > Thanks! > > Sincerely, > > Aul Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2005 Report Share Posted May 23, 2005 How exactly do you use this system? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2005 Report Share Posted May 23, 2005 A TENS unit. http://www.healiohealth.com/tek9.asp At 08:35 PM 5/23/2005, you wrote: >Whats a TENS? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2005 Report Share Posted May 24, 2005 This is a definite issue with SMA. Jordan, age 15 type II is going through some of the same issues. In fact, the tightening seems to affect his eating and speech somewhat as well. We just started to seem a TMJ specialist, but not far into it. He's never mentioned anything about surgery, and I've never heard of it being necessary for this issue. I believe there are some successful treatments that don't require surgery. So far, Jordan had an MRI and the doctor has ordered a Therabite, but treatment has not begun. The doctor is hopeful that he can do something to help. Jay Jaws Hello, Has anybody had a problem with opening mouth enough because of contractures in jaws? If yes, then what have they done to make that problem less disturbing? Is a surgery recommended, or it's too dangerous for people living with SMA? I appreciate any information. Thanks! Sincerely, Aul http://aul.freestoresystem.com/ <http://aul.freestoresystem.com/> http://aul.freestorenow.net/ <http://aul.freestorenow.net/> http://aul.freestoreclub.com/ <http://aul.freestoreclub.com/> __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2005 Report Share Posted May 24, 2005 Thank you, everybody, for all of the information you gave me! Yes, I am also afraid of having a surgery, because I am 41, and my lungs are weak as well. I have tried tongue depressors, but I feel that nobody, including my visiting nurse, can use them properly on me at my home. I also tried to get Therabite, but my insurance didn't pay for it, and I can't afford it. The main reason why I am worried is that I'm using a voice-activated computer, and when my speech gets worse I have lost everything. My computer is the only way for me to do something in my life. Please tell me what are " jaw jacks " ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2005 Report Share Posted May 24, 2005 I'm surprised that your insurance company didn't cover it. Jordan's TMJ Specialist (an Orthodontist) didn't think it would either, however, the SMA need for treating this is NOT cosmetic. I believe the Therabite is typically used for Othodontal type needs, which are generally cosmetic. When they put it through insurance, with medical justification, it was approved (50% copay, but that was the max for these types of things under our insurance). I'd fight that one because the SMA need IS medical since it impacts eating, speaking, drinking...basic living needs. Jay Re: Jaws Thank you, everybody, for all of the information you gave me! Yes, I am also afraid of having a surgery, because I am 41, and my lungs are weak as well. I have tried tongue depressors, but I feel that nobody, including my visiting nurse, can use them properly on me at my home. I also tried to get Therabite, but my insurance didn't pay for it, and I can't afford it. The main reason why I am worried is that I'm using a voice-activated computer, and when my speech gets worse I have lost everything. My computer is the only way for me to do something in my life. Please tell me what are " jaw jacks " ? A FEW RULES * The list members come from many backgrounds, ages and beliefs So all members most be tolerant and respectful to all members. * Some adult language and topics (like sexual health, swearing..) may occur occasionally in emails. Over use of inappropriate language will not be allowed. If your under 16 ask your parents/gaurdian before you join the list. * No SPAMMING or sending numerous emails unrelated to the topics of spinal muscular atrophy, health, and the daily issues of the disabled. Post message: Subscribe: -subscribe Unsubscribe: -unsubscribe List manager: (Sexy Mature Artist) Email: Esma1999@... oogroups.com List manager: (Sexy Mature Artist) Email: Esma1999@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2005 Report Share Posted May 24, 2005 I have the jaw probs you write about. I had a long search to find a dentists to remove my wisdom teeth (they were impacted and always infected and it was a big releif to get them out) There is a back issue of MDA Quest magazine (about 2 yrs back) that shows a device that will help stretch your jaws muscles so you can eventually open up wider. Problem is it cost around $500 and isn't covered by most insurences. I found two methods that help. Using toothbrushes that are almost too big for your mouth help keep you stretched out (won't work if someone else brushes your teeth) and having someone help with jaw range and motion. (It's awkward, make sure you have a person who's very in tune with you, help out). Make sure you get regular dental cleanings and go to a specialist for TMJ. They work with people who can't open there jaws at all. THINGS TO STAY AWAY FROM- Don't go to any dentist who want to give you general aneastethia or even 'laughing gas' sedation. It's very dangerous. Also doctors will be rougher than usual and may do more work than needed while you're knocked out. Some people have even had their jaws get broken while being 'out'. I had 2 Boston 'world renouned' hosps. insists on the 'knock out method' with me. Something in my gut told me to not do it, so I kept looking and found a suburben dentist that did the job right. This dentists warned me that Boston dentist #1 had failed to pass his board exams for the past 10 years! AND I ended up finding out through a reliable source that Boston dentist #2 was in trouble for abusive behavior to his patients and also had a cocaine habit. Listen to your peers and listen to your instincts folks. Hello, > > > > Has anybody had a problem with opening mouth enough because of > > contractures in jaws? If yes, then what have they done to make that > > problem less disturbing? Is a surgery recommended, or it's too > > dangerous for people living with SMA? I appreciate any information. > > Thanks! > > > > Sincerely, > > > > Aul > > http://aul.freestoresystem.com/ > > http://aul.freestorenow.net/ > > http://aul.freestoreclub.com/ > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2005 Report Share Posted May 24, 2005 TENS are useless for this situation and their usfulness with sma and dental issues has been very unreliable. From my own experiences with TENs units, they don't work for sma adults very well. [if it works for any of you, I'm happy] As far as speech and jaw movement, stretching out your jaw won't make your speach any louder if you have respiratory probs. With your computor voice controls, what system/program are you using? Dragon Naturally speaking and Dragon dictate can be retrained and also using diferent microphones can improve results. > Thank you, everybody, for all of the information you gave me! Yes, I am > also afraid of having a surgery, because I am 41, and my lungs are weak > as well. I have tried tongue depressors, but I feel that nobody, > including my visiting nurse, can use them properly on me at my home. I > also tried to get Therabite, but my insurance didn't pay for it, and I > can't afford it. The main reason why I am worried is that I'm using a > voice-activated computer, and when my speech gets worse I have lost > everything. My computer is the only way for me to do something in my > life. Please tell me what are " jaw jacks " ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2005 Report Share Posted May 24, 2005 As far back as I can remember, my mother encouraged me to do jaw exercises before going to bed or whenever I felt like doing them. All I did was open up and hold for a few seconds then wiggle left to right with my mouth slightly opened. I never could open up wide enough for what a dentist might like, but I had little trouble with inserting foods I ate or mascara tubes or any small lids that needed my mouths firm grip to open. I will admit my mouth has closed down a little, but I am working on my exercises again especially after reading all these postings .... I am now gonna say " AH! " wink! Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2005 Report Share Posted May 24, 2005 Hello Everyone, My six year old grandaughter is in need of a new wheelchair, she has sma type 2 and the insurance company (unity) says they only cover 1 chair per life time. We were never told this when we had to fight to get the first one. How can this be when the cost of insurance is so high. --- jondus@... wrote: > I'm surprised that your insurance company didn't > cover it. Jordan's TMJ > Specialist (an Orthodontist) didn't think it would > either, however, the > SMA need for treating this is NOT cosmetic. I > believe the Therabite is > typically used for Othodontal type needs, which are > generally cosmetic. > When they put it through insurance, with medical > justification, it was > approved (50% copay, but that was the max for these > types of things > under our insurance). > > I'd fight that one because the SMA need IS medical > since it impacts > eating, speaking, drinking...basic living needs. > > Jay > > Re: Jaws > > > Thank you, everybody, for all of the information you > gave me! Yes, I am > also afraid of having a surgery, because I am 41, > and my lungs are weak > as well. I have tried tongue depressors, but I feel > that nobody, > including my visiting nurse, can use them properly > on me at my home. I > also tried to get Therabite, but my insurance didn't > pay for it, and I > can't afford it. The main reason why I am worried is > that I'm using a > voice-activated computer, and when my speech gets > worse I have lost > everything. My computer is the only way for me to do > something in my > life. Please tell me what are " jaw jacks " ? > > > > > > A FEW RULES > > * The list members come from many backgrounds, ages > and beliefs So all > members most be tolerant and respectful to all > members. > > * Some adult language and topics (like sexual > health, swearing..) may > occur occasionally in emails. Over use of > inappropriate language will > not be allowed. If your under 16 ask your > parents/gaurdian before you > join the list. > > * No SPAMMING or sending numerous emails unrelated > to the topics of > spinal muscular atrophy, health, and the daily > issues of the disabled. > > Post message: > Subscribe: -subscribe > > Unsubscribe: > -unsubscribe > > List manager: (Sexy Mature Artist) Email: > Esma1999@... > > > > > oogroups.com > > List manager: (Sexy Mature Artist) Email: > Esma1999@... > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2005 Report Share Posted May 25, 2005 You're right, stretching out your jaw probably won't make your speech any loader, but if your speech is mumbled because of an inability to articulate your words properly (restricted tongue movement), then stretching out your jaw can help that situation. Re: Jaws TENS are useless for this situation and their usfulness with sma and dental issues has been very unreliable. From my own experiences with TENs units, they don't work for sma adults very well. [if it works for any of you, I'm happy] As far as speech and jaw movement, stretching out your jaw won't make your speach any louder if you have respiratory probs. With your computor voice controls, what system/program are you using? Dragon Naturally speaking and Dragon dictate can be retrained and also using diferent microphones can improve results. > Thank you, everybody, for all of the information you gave me! Yes, I am > also afraid of having a surgery, because I am 41, and my lungs are weak > as well. I have tried tongue depressors, but I feel that nobody, > including my visiting nurse, can use them properly on me at my home. I > also tried to get Therabite, but my insurance didn't pay for it, and I > can't afford it. The main reason why I am worried is that I'm using a > voice-activated computer, and when my speech gets worse I have lost > everything. My computer is the only way for me to do something in my > life. Please tell me what are " jaw jacks " ? A FEW RULES * The list members come from many backgrounds, ages and beliefs So all members most be tolerant and respectful to all members. * Some adult language and topics (like sexual health, swearing..) may occur occasionally in emails. Over use of inappropriate language will not be allowed. If your under 16 ask your parents/gaurdian before you join the list. * No SPAMMING or sending numerous emails unrelated to the topics of spinal muscular atrophy, health, and the daily issues of the disabled. Post message: Subscribe: -subscribe Unsubscribe: -unsubscribe List manager: (Sexy Mature Artist) Email: Esma1999@... oogroups.com List manager: (Sexy Mature Artist) Email: Esma1999@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2005 Report Share Posted May 26, 2005 my parents used the Knights of Pythius for my sister's first wheelchair. Have you asked your local orgs. like knight of columbus, elks, local churches? (you don't have to be a church goer. Many churches actually need to have a non-member of church fundraiser a year.) Verbsky <used_to_think@...> wrote: Hello Everyone, My six year old grandaughter is in need of a new wheelchair, she has sma type 2 and the insurance company (unity) says they only cover 1 chair per life time. We were never told this when we had to fight to get the first one. How can this be when the cost of insurance is so high. --- jondus@... wrote: > I'm surprised that your insurance company didn't > cover it. Jordan's TMJ > Specialist (an Orthodontist) didn't think it would > either, however, the > SMA need for treating this is NOT cosmetic. I > believe the Therabite is > typically used for Othodontal type needs, which are > generally cosmetic. > When they put it through insurance, with medical > justification, it was > approved (50% copay, but that was the max for these > types of things > under our insurance). > > I'd fight that one because the SMA need IS medical > since it impacts > eating, speaking, drinking...basic living needs. > > Jay > > Re: Jaws > > > Thank you, everybody, for all of the information you > gave me! Yes, I am > also afraid of having a surgery, because I am 41, > and my lungs are weak > as well. I have tried tongue depressors, but I feel > that nobody, > including my visiting nurse, can use them properly > on me at my home. I > also tried to get Therabite, but my insurance didn't > pay for it, and I > can't afford it. The main reason why I am worried is > that I'm using a > voice-activated computer, and when my speech gets > worse I have lost > everything. My computer is the only way for me to do > something in my > life. Please tell me what are " jaw jacks " ? > > > > > > A FEW RULES > > * The list members come from many backgrounds, ages > and beliefs So all > members most be tolerant and respectful to all > members. > > * Some adult language and topics (like sexual > health, swearing..) may > occur occasionally in emails. Over use of > inappropriate language will > not be allowed. If your under 16 ask your > parents/gaurdian before you > join the list. > > * No SPAMMING or sending numerous emails unrelated > to the topics of > spinal muscular atrophy, health, and the daily > issues of the disabled. > > Post message: > Subscribe: -subscribe > > Unsubscribe: > -unsubscribe > > List manager: (Sexy Mature Artist) Email: > Esma1999@... > > > > > oogroups.com > > List manager: (Sexy Mature Artist) Email: > Esma1999@... > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2005 Report Share Posted May 28, 2005 Also, MDA contributes $1500.00 (or more...I don't remember the exact amount) to a new chair every five years. Lori charmed chic wrote: > my parents used the Knights of Pythius for my sister's first wheelchair. > > Have you asked your local orgs. like knight of columbus, elks, local > churches? > > (you don't have to be a church goer. Many churches actually need to > have a non-member of church fundraiser a year.) > > Verbsky <used_to_think@...> wrote: > Hello Everyone, My six year old grandaughter is in > need of a new wheelchair, she has sma type 2 and the > insurance company (unity) says they only cover 1 chair > per life time. We were never told this when we had to > fight to get the first one. How can this be when the > cost of insurance is so high. > --- jondus@... wrote: > > I'm surprised that your insurance company didn't > > cover it. Jordan's TMJ > > Specialist (an Orthodontist) didn't think it would > > either, however, the > > SMA need for treating this is NOT cosmetic. I > > believe the Therabite is > > typically used for Othodontal type needs, which are > > generally cosmetic. > > When they put it through insurance, with medical > > justification, it was > > approved (50% copay, but that was the max for these > > types of things > > under our insurance). > > > > I'd fight that one because the SMA need IS medical > > since it impacts > > eating, speaking, drinking...basic living needs. > > > > Jay > > > > Re: Jaws > > > > > > Thank you, everybody, for all of the information you > > gave me! Yes, I am > > also afraid of having a surgery, because I am 41, > > and my lungs are weak > > as well. I have tried tongue depressors, but I feel > > that nobody, > > including my visiting nurse, can use them properly > > on me at my home. I > > also tried to get Therabite, but my insurance didn't > > pay for it, and I > > can't afford it. The main reason why I am worried is > > that I'm using a > > voice-activated computer, and when my speech gets > > worse I have lost > > everything. My computer is the only way for me to do > > something in my > > life. Please tell me what are " jaw jacks " ? > > > > > > > > > > > > A FEW RULES > > > > * The list members come from many backgrounds, ages > > and beliefs So all > > members most be tolerant and respectful to all > > members. > > > > * Some adult language and topics (like sexual > > health, swearing..) may > > occur occasionally in emails. Over use of > > inappropriate language will > > not be allowed. If your under 16 ask your > > parents/gaurdian before you > > join the list. > > > > * No SPAMMING or sending numerous emails unrelated > > to the topics of > > spinal muscular atrophy, health, and the daily > > issues of the disabled. > > > > Post message: > > Subscribe: -subscribe > > > > Unsubscribe: > > -unsubscribe > > > > List manager: (Sexy Mature Artist) Email: > > Esma1999@... > > > > > > > > > > oogroups.com > > > > List manager: (Sexy Mature Artist) Email: > > Esma1999@... > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2005 Report Share Posted June 11, 2005 The amount mda provides will only cover the amount of a low rate scooter. Have you seen the cost of power chairs?! It's much much more than 1500. Also a child or person with progressive mds need a chair sooner than every 5 yrs .. Crumbs from the table of plenty people. Those Two <those2@...> wrote: Also, MDA contributes $1500.00 (or more...I don't remember the exact amount) to a new chair every five years. Lori charmed chic wrote: > my parents used the Knights of Pythius for my sister's first wheelchair. > > Have you asked your local orgs. like knight of columbus, elks, local > churches? > > (you don't have to be a church goer. Many churches actually need to > have a non-member of church fundraiser a year.) > > Verbsky <used_to_think@...> wrote: > Hello Everyone, My six year old grandaughter is in > need of a new wheelchair, she has sma type 2 and the > insurance company (unity) says they only cover 1 chair > per life time. We were never told this when we had to > fight to get the first one. How can this be when the > cost of insurance is so high. > --- jondus@... wrote: > > I'm surprised that your insurance company didn't > > cover it. Jordan's TMJ > > Specialist (an Orthodontist) didn't think it would > > either, however, the > > SMA need for treating this is NOT cosmetic. I > > believe the Therabite is > > typically used for Othodontal type needs, which are > > generally cosmetic. > > When they put it through insurance, with medical > > justification, it was > > approved (50% copay, but that was the max for these > > types of things > > under our insurance). > > > > I'd fight that one because the SMA need IS medical > > since it impacts > > eating, speaking, drinking...basic living needs. > > > > Jay > > > > Re: Jaws > > > > > > Thank you, everybody, for all of the information you > > gave me! Yes, I am > > also afraid of having a surgery, because I am 41, > > and my lungs are weak > > as well. I have tried tongue depressors, but I feel > > that nobody, > > including my visiting nurse, can use them properly > > on me at my home. I > > also tried to get Therabite, but my insurance didn't > > pay for it, and I > > can't afford it. The main reason why I am worried is > > that I'm using a > > voice-activated computer, and when my speech gets > > worse I have lost > > everything. My computer is the only way for me to do > > something in my > > life. Please tell me what are " jaw jacks " ? > > > > > > > > > > > > A FEW RULES > > > > * The list members come from many backgrounds, ages > > and beliefs So all > > members most be tolerant and respectful to all > > members. > > > > * Some adult language and topics (like sexual > > health, swearing..) may > > occur occasionally in emails. Over use of > > inappropriate language will > > not be allowed. If your under 16 ask your > > parents/gaurdian before you > > join the list. > > > > * No SPAMMING or sending numerous emails unrelated > > to the topics of > > spinal muscular atrophy, health, and the daily > > issues of the disabled. > > > > Post message: > > Subscribe: -subscribe > > > > Unsubscribe: > > -unsubscribe > > > > List manager: (Sexy Mature Artist) Email: > > Esma1999@... > > > > > > > > > > oogroups.com > > > > List manager: (Sexy Mature Artist) Email: > > Esma1999@... > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2005 Report Share Posted June 11, 2005 The amount mda provides will only cover the amount of a low rate scooter. Have you seen the cost of power chairs?! It's much much more than 1500. Also a child or person with progressive mds need a chair sooner than every 5 yrs .. Crumbs from the table of plenty people. Those Two <those2@...> wrote: Also, MDA contributes $1500.00 (or more...I don't remember the exact amount) to a new chair every five years. Lori charmed chic wrote: > my parents used the Knights of Pythius for my sister's first wheelchair. > > Have you asked your local orgs. like knight of columbus, elks, local > churches? > > (you don't have to be a church goer. Many churches actually need to > have a non-member of church fundraiser a year.) > > Verbsky <used_to_think@...> wrote: > Hello Everyone, My six year old grandaughter is in > need of a new wheelchair, she has sma type 2 and the > insurance company (unity) says they only cover 1 chair > per life time. We were never told this when we had to > fight to get the first one. How can this be when the > cost of insurance is so high. > --- jondus@... wrote: > > I'm surprised that your insurance company didn't > > cover it. Jordan's TMJ > > Specialist (an Orthodontist) didn't think it would > > either, however, the > > SMA need for treating this is NOT cosmetic. I > > believe the Therabite is > > typically used for Othodontal type needs, which are > > generally cosmetic. > > When they put it through insurance, with medical > > justification, it was > > approved (50% copay, but that was the max for these > > types of things > > under our insurance). > > > > I'd fight that one because the SMA need IS medical > > since it impacts > > eating, speaking, drinking...basic living needs. > > > > Jay > > > > Re: Jaws > > > > > > Thank you, everybody, for all of the information you > > gave me! Yes, I am > > also afraid of having a surgery, because I am 41, > > and my lungs are weak > > as well. I have tried tongue depressors, but I feel > > that nobody, > > including my visiting nurse, can use them properly > > on me at my home. I > > also tried to get Therabite, but my insurance didn't > > pay for it, and I > > can't afford it. The main reason why I am worried is > > that I'm using a > > voice-activated computer, and when my speech gets > > worse I have lost > > everything. My computer is the only way for me to do > > something in my > > life. Please tell me what are " jaw jacks " ? > > > > > > > > > > > > A FEW RULES > > > > * The list members come from many backgrounds, ages > > and beliefs So all > > members most be tolerant and respectful to all > > members. > > > > * Some adult language and topics (like sexual > > health, swearing..) may > > occur occasionally in emails. Over use of > > inappropriate language will > > not be allowed. If your under 16 ask your > > parents/gaurdian before you > > join the list. > > > > * No SPAMMING or sending numerous emails unrelated > > to the topics of > > spinal muscular atrophy, health, and the daily > > issues of the disabled. > > > > Post message: > > Subscribe: -subscribe > > > > Unsubscribe: > > -unsubscribe > > > > List manager: (Sexy Mature Artist) Email: > > Esma1999@... > > > > > > > > > > oogroups.com > > > > List manager: (Sexy Mature Artist) Email: > > Esma1999@... > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2005 Report Share Posted June 11, 2005 A) 1 didn't say they paid for a whole chair. They contribute toward the cost of a new chair, Take it or leave it. Similar organizations like the MS Society, Cerebral Palsy, Spinal Cord, etc. don't contribute any $$ toward a chair or braces, C) Even private insurance only buys you a chair once every five years, and D) It was just a suggestion. You're welcome. Lori charmed chic wrote: > The amount mda provides will only cover the amount of a low rate > scooter. Have you seen the cost of power chairs?! It's much much > more than 1500. > Also a child or person with progressive mds need a chair sooner than > every 5 yrs . > Crumbs from the table of plenty people. > > Those Two <those2@...> wrote: > Also, MDA contributes $1500.00 (or more...I don't remember the exact > amount) to a new chair every five years. > > Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2005 Report Share Posted June 12, 2005 Well said, Lori! Kimi In a message dated 6/11/2005 9:25:24 PM Eastern Daylight Time, those2@... writes: A) 1 didn't say they paid for a whole chair. They contribute toward the cost of a new chair, Take it or leave it. Similar organizations like the MS Society, Cerebral Palsy, Spinal Cord, etc. don't contribute any $$ toward a chair or braces, C) Even private insurance only buys you a chair once every five years, and D) It was just a suggestion. You're welcome. Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Remember in jaws when the guys were showing their scars and drinking rum on the boat. I think we need more of that to figure out just exactly what we're dealing with. This might be a guy thing but the potions and lotions can only go so far before it's the blind leading the blind. WTG........................ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Wow WTG.....you're the man! Get-R-dun!!! From: wtgwilliamthegreat <gibson-w@...>bird mites Sent: Tuesday, December 30, 2008 11:41:18 AMSubject: JAWS Remember in jaws when the guys were showing their scars and drinking rum on the boat. I think we need more of that to figure out just exactly what we're dealing with. This might be a guy thing but the potions and lotions can only go so far before it's the blind leading the blind. WTG......... ......... ...... Quote Link to comment Share on other sites More sharing options...
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