Questions about treatment

[Guest guest]

Karyn,

Looks like you have already received some good responses from people who are

using the same hospital that you would potentially use. I'm sure that

will chime in at some point as well.

I wouldn't worry too much about not seeing the specialist. The orthotist that

you see to get the helmet will be your main contact. He/she will be in charge

of the entire treatment and will be able to answer any question that should

come up about the helmet. If you feel like there are outstanding issues that

the nurse prac didn't answer then you could ask to see the specialist for

additional information. It seems from the other two posts that seeing just

the nurse is common for that hospital.

Good luck and let us know what you decide to do.

Marci (Mom to )

Oklahoma

[Guest guest]

I am new to internet groups such as this, but feel fortunate to have

found this one! Thank you for sharing your stories and offering

support for parents in this way. I haven't met any other parents

with children who have plagio and was feeling a bit lost in the dark

about it. We think that we will probably go ahead and get the

helmet for our daughter, (6months) but it is hard to deal

with friends and family that don't understand what the big deal is.

They don't really notice the flatness of her head and wonder why we

want to subject her to wearing a helmet for several months. I am

still interested in hearing from any parents that didn't use the

helmet therapy. Also, we were referred to a " specialist " at the

cranio-facial clinic at Children's Hospital in Seattle but were only

seen by an nurse practioner who took measurements and consulted with

us. Did anyone else in Seattle have a similar experience? Should

my daughter be seen by an acutal M.D.?

Karyn Sasten

Duvall, Washington