Guest guest Posted February 14, 2002 Report Share Posted February 14, 2002 Hi paige, love that name and Its my daughters middle name. Have you look at Cranial Technologies web site, they have refering physicians. I used one from there and he was totally honest with me and he did recomened it but because she needed it. Lorraine. > Hello Group, > > I've been following your email for a few days. I have a 12 month old with plagiocephaly. We noticed it early on, but were told by our pediatrician that it would round itself out. She continued to " reassure " us at each visit. Then, I came across an article on plagio in a magazine I acquired from her office! I let her know that I understood that by 12 months, head growth slows down considerably and reasserted my concerns for my baby's lopsided noggin. She agreed that I could see a specialist. I went yesterday to a neurosurgeon listed as a preferred physician on the plagio website. Since he was listed, I was really confused when he said that he rarely if ever prescribed the bands because there was no evidence that it had any effect except in the most severe cases. He basically said the whole thing was a scam. He went on to say that the only research that supports the use of banding is research done by the companies who sell the bands. He seemed to think there was nothing I could do but to let nature takes its course. > > My son's head has improved somewhat since we first noticed it. I did reposition him, but did not do so aggressively as my pediatrician only suggested it as an afterthought and seemed to indicate that it was optional. I am frustrated with her, to say the least. When we first became aware of the problem, we definitely noticed asymmetry in the eyes and some of the other facial features associated with the condition. They have significantly improved, but we still notice one ear appearing higher than the other. His condition may be considered mild at this point, but it is still noticeably flatter on one side. I have a consult with Cranial Tech on Monday. I also have an appt. with Dr. Day earlier that day. I live in the Dallas/Fort Worth area and wonder if there is anyone out there in my neck of the woods who might refer me to a competent and objective doctor. I truly believe the neurosurgeon I visited was a pompous a@#! Still, I am feeling very confused. I don't want to put my baby in band, but I do want him to have a more normally shaped head, of course. That doctor really threw me for a loop. I'm open to any advice. Thanks for letting me vent. Paige Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2002 Report Share Posted February 14, 2002 Hi Paige & welcome to our group We're very happy you found us! First of all, I am sooo tired of hearnig about all these incompentent drs! It seems like every day we have a new member with a story so similar to yours. What a shame :'(. Let me tell you, helmets/bands DO work. I have been a member of this group for 16 mos now and have met only a few parents who haven't been happy with their child's band or helmet. My daughter began her DOCband treatment when she was 11.5 mos old., she had severe plagio and we were still able to achieve good improvement. It is true that baby's head growth slows after they've turned one, but that doesn't mean a band won't be effective, my daughter is proof of that. Also, I think most ped. neuros are pompus a@!es., hehe a lot of em seem to have the almighty God complex. If noone in our group is able to give you a referral for a good Dr. in your area, I am sure Cranial Tech. will have someone they'll recommend. You also mentioned you don't want your baby in a band. Trust me when I say, he won't even know it's on his head IF you do get him banded. Most babies adjust w/o any problems to it, they honestly go about their daily lives happy as usual. Best of luck with your appts Monday - please let us know what they suggest. Keep us updated. Debbie Abby's mom 3/1/00 DOCgrad 6/22/01 MI > Hello Group, > > I've been following your email for a few days. I have a 12 month old with plagiocephaly. We noticed it early on, but were told by our pediatrician that it would round itself out. She continued to " reassure " us at each visit. Then, I came across an article on plagio in a magazine I acquired from her office! I let her know that I understood that by 12 months, head growth slows down considerably and reasserted my concerns for my baby's lopsided noggin. She agreed that I could see a specialist. I went yesterday to a neurosurgeon listed as a preferred physician on the plagio website. Since he was listed, I was really confused when he said that he rarely if ever prescribed the bands because there was no evidence that it had any effect except in the most severe cases. He basically said the whole thing was a scam. He went on to say that the only research that supports the use of banding is research done by the companies who sell the bands. He seemed to think there was nothing I could do but to let nature takes its course. > > My son's head has improved somewhat since we first noticed it. I did reposition him, but did not do so aggressively as my pediatrician only suggested it as an afterthought and seemed to indicate that it was optional. I am frustrated with her, to say the least. When we first became aware of the problem, we definitely noticed asymmetry in the eyes and some of the other facial features associated with the condition. They have significantly improved, but we still notice one ear appearing higher than the other. His condition may be considered mild at this point, but it is still noticeably flatter on one side. I have a consult with Cranial Tech on Monday. I also have an appt. with Dr. Day earlier that day. I live in the Dallas/Fort Worth area and wonder if there is anyone out there in my neck of the woods who might refer me to a competent and objective doctor. I truly believe the neurosurgeon I visited was a pompous a@#! Still, I am feeling very confused. I don't want to put my baby in band, but I do want him to have a more normally shaped head, of course. That doctor really threw me for a loop. I'm open to any advice. Thanks for letting me vent. Paige Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2002 Report Share Posted February 14, 2002 Paige- I just wanted to answer about the DFW part of your question, my sentiments are " ditto what they said " on the other replies. We are in Dallas and go to Cranial Tech at Hillcrest/LBJ. Our pediatrician that started this was Dr at North Dallas Pediatrics. She sent us to Dr Steve Byrd at Children's Medical Center Cranio-Fascial clinic. He is on the CT page as a specialist. I have heard Dr Day's name around town, he is also on CT's page of friendly Dr. I believe that some Drs and even CT will tell the truth - " wow this is severe and you should definately go with the band " - or - " well he falls into the grey area, you'll have to decide if you want him in the band.... " Sometimes the answer is ONLY up to you, the concerned parents. We are in that grey area now for our daughter's 3rd helmet. She was so severe that two were for sure, but now they want her in it until April at least, so why not get a new band with new holding pressures?? Nurse at Dr Byrds says no because there just isn't enough growth happening now on her head, CT says they'll do it (of course) if we want it. Its up to us. When we saw our nephew (up in Chicago) over Christmas, we were like - uh guys, he DEFINATELY has plagio you better get him to a dr and to CT. They said that their Ped did the old " round out on its own " thing. After we sent them a wealth of info and websites, they took him to a new Ped which said the same thing. So they made their choice in believing the two Drs and aren't proceeding anymore. As long as they are happy with their decision, its the right one. Parents are in control and always have the final say, mild or severe. So - as you see Dr Day and CT, ask questions, talk their ears off! Learn all you want to know and then you'll know what the right decision is for your baby. Best of Luck, I know that you'll love , Vickie and June at CT!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2002 Report Share Posted February 15, 2002 Ho Paige and welcome to the group! Feel free to vent about these pompous a@#es (heehee)! We've all had to vent at one point or another so you are in good company here. It sounds like Dr. Day is a good doctor by the testemonies of the other replies and that is awesome. A knowledgeable and personable doctor makes all the difference! Good luck on monday with your consults, be sure to let us now how they go! And again, welcome to the group! Niki Kaylie & Danny (STAR grads) Phila., PA > Hello Group, > > I've been following your email for a few days. I have a 12 month old with plagiocephaly. We noticed it early on, but were told by our pediatrician that it would round itself out. She continued to " reassure " us at each visit. Then, I came across an article on plagio in a magazine I acquired from her office! I let her know that I understood that by 12 months, head growth slows down considerably and reasserted my concerns for my baby's lopsided noggin. She agreed that I could see a specialist. I went yesterday to a neurosurgeon listed as a preferred physician on the plagio website. Since he was listed, I was really confused when he said that he rarely if ever prescribed the bands because there was no evidence that it had any effect except in the most severe cases. He basically said the whole thing was a scam. He went on to say that the only research that supports the use of banding is research done by the companies who sell the bands. He seemed to think there was nothing I could do but to let nature takes its course. > > My son's head has improved somewhat since we first noticed it. I did reposition him, but did not do so aggressively as my pediatrician only suggested it as an afterthought and seemed to indicate that it was optional. I am frustrated with her, to say the least. When we first became aware of the problem, we definitely noticed asymmetry in the eyes and some of the other facial features associated with the condition. They have significantly improved, but we still notice one ear appearing higher than the other. His condition may be considered mild at this point, but it is still noticeably flatter on one side. I have a consult with Cranial Tech on Monday. I also have an appt. with Dr. Day earlier that day. I live in the Dallas/Fort Worth area and wonder if there is anyone out there in my neck of the woods who might refer me to a competent and objective doctor. I truly believe the neurosurgeon I visited was a pompous a@#! Still, I am feeling very confused. I don't want to put my baby in band, but I do want him to have a more normally shaped head, of course. That doctor really threw me for a loop. I'm open to any advice. Thanks for letting me vent. Paige Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2011 Report Share Posted March 30, 2011 I'm off to read all the links you included...thanks so much for all the helpful info Bee! Look forward to learning lots from you! > > > > Hi all! > > > > I've been recently diagnosed with candida and multiple food sensitivities. It seems like every recipe I come across that looks palatable to me has something that I have a sensitivity to, such as eggs. > > > > I guess a question would be, can I use Ener-G egg replacer in place of eggs for breads even though it contains potato starch? Also, in regards to onions, I can't stand the texture unless they are cooked down considerably, is that ok? Aren't they sugary that way or am I way off? > > > > I've purchased the Candida Cure book amongst a few others and there is so much conflicting info, I have no idea where to start or what to follow! > > > +++Hi Autumn, > > Welcome to our group. The reason you have sensitivity to good foods like eggs is because they are high in sulphur which is an important mineral your body needs in order to detoxify itself. Detoxifying reactions do create many symptoms that are unpleasant but necessary. See Healing Foods, Herbs and Spices Create Healing Reactions to understand it: > http://www.healingnaturallybybee.com/articles/heal14.php > - Unnecessary text edited out by moderator Quote Link to comment Share on other sites More sharing options...
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