Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 , Welcome to the group. We have lots of parents of brachy babies in this group so you should be right at home! I'm wondering why surgery would be an option to correct the brachy? Your daughter seems young enough that surgery wouldn't even be an option unless she had craniosynostosis. Has she had a CT scan to rule out cranio? Hopefully you will get some good responses from other parents who have dealt specifically with brachy. I know that banding can be very effective for brachy and Lauryn is DEFINITELY not to old for banding therapy!!! Good luck and please keep us posted. You have come to the right place for advice, support and friendship - this is a great group of moms, dads and professionals!! Marci (Mom to ) Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 Hi , First, what a cutie pie is! I have read that surgery is only a last resort, and with only being 8 months old, I would think a helmet could work wonders! Many members have started much later, and received an ample amount of correction. Check into the helmets, DOC, STARBAND or locally made, to give you an idea of what can be done in this regard. Good luck! ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 Dear Marci, Thankyou for the welcome. Her pediatrician and Dr.Billmire have consulted and said that she seems to have premature fused sutures and that they should be allowing more room for her brain to develope but, they are not. I am unsure as to why this is happening. Sincerely, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 Dear , Thankyou for the welcome. I hope all she needs is a band or helmet. Sincerely, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 Dear Kendra, Thankyou very much! I really appreicate it! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 , It kind of sounds like your baby might have craniosynostosis if the sutures are prematurely closed. You might take a look at www.cappskids.org - this is a sight for cranio support and if it is cranio you will get all the support and answers you need there. Of course, you will have the support of this group as well no matter what the outcome is. We have a member here named whose daughter was diagnosed with cranio. She has been through the corrective surgery and then her daughter wore the DOCband for protection and additional correction. I'm sure you will get a response from her and she will be able to give you all sorts of help and advice. Let us know how things progress. Good wishes to you! Marci (Mom to ) Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 : There is also a group that provides support for families of babies with fused sutures. You can find them at CranioandParentsSupport/?yguid=75062272 I hope Lauryn will only need a helmet, but just in case, you should have the support you need. These people might be able to help you with the wording of the CT report as well. Good luck, and please keep us posted. Kendra Re: Hello! I am new here! Dear Marci, Thankyou for the welcome. Her pediatrician and Dr.Billmire have consulted and said that she seems to have premature fused sutures and that they should be allowing more room for her brain to develope but, they are not. I am unsure as to why this is happening. Sincerely, For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 Dear Marci, Thankyou sooo much! I joined the CAPPS! It is very informative but, I am going to stick with you all too! ) I appreciate all of your input! You are great! Thanks for making me feel welcome! Sincerely, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2002 Report Share Posted February 12, 2002 , I'm glad you joined CAPPS - you will get so much support and help from them if it does turn out to be cranio! Like I said before, I'm glad you joined us as well! Marci (Mom to ) Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2002 Report Share Posted February 13, 2002 Dear Marci, Thankyou for the welcome. Sincerely, Quote Link to comment Share on other sites More sharing options...
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