Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 Hi, My name is Kelli. For all you newbies in here, I wanted to tell you a little of my story. My little Em was given a Cat Scan at 8+ months old. The CT read that she indeed DID have Synosis of both left and rt Lamboidal Sutures. I was really freaked out to say the least. After an appointment with a specialist (who by the way didn't know to much about infant plagio, ect...) who wanted us to have another CT and more tests, we decided to hold off and start with the DOC band, and if we hadn't seen results within 4 weeks, we were going to pretty much fly anywhere in the US for a professional that delt with infants/plagio/cranio. Well, everyone, I'm here to tell you, we just graduated, after 4 months only in the band. We went from 10 months to 14 months. So.... not only did I have an older baby, but one that was diagnosed with possible cranio!!! I'm including my photo's again, so sorry everyone, if you've seen them before, I appologize. I'll resend with my next post. I went with a gut instinct I had that she was okay, just needed redirection with her growth, and I came out okay. Kelli and DOCgrad __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 Awesome Kelli and em-mommies instinct is great and thank goodness for second opinions! She looks great! beck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 Dear Kelli, Thankyou for your input. I am hoping Lauryn will not need any surgery but, I am going to see what Dr. Billmire says first. I hope he says lets just go with the band. HUGS, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2002 Report Share Posted February 12, 2002 I went with a gut instinct I had that she was okay, just needed redirection with her growth, and I came out okay. Kelli: It's that mommy intuition coming thru yet again . Scary isn't it? I'm so glad you were right & had terrific results. Debbie Abby's mom DOCgrad MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2002 Report Share Posted February 12, 2002 {I went with a gut instinct I had that she was okay, just needed redirection with her growth, and I came out okay.} That is the most important thing is to go with gut instinct. I am glad that things worked out and that cranio was not found. Some plagio can be interpreted as stenosis, but most of the time if the CT is read by a qualified professional who deals with both plagio and cranial there won't be an error. Please keep in mind that doctors are indeed human and in the case of cranio it is best to get a second opinion if your gut tells you things aren't right. Some times we need to remind ourselves there is a difference between gut instinct and mixed up emotions. Always always!!! If it just doesn't seem right get more than one opinion!!! Where you Kelli recieved a wrong diagnosis of cranio we have also had mom's here that were told their babies had plagio and after months apon months of unsuccessful banding found they were misdiagnosed and did indeed have cranio. I am glad it worked out for you and your daughter the way it did. -- Kansas City,mo proud mommy of Austen 12/21/96 and *Leigha 7/22/00 *misdiagnosed as perfectly fine until 2/14/01 when she was found to have bicoronal CS. CVR with FOA 5/01/01 POSTOP Doc band 5/25/01- 9/24/01 > Hi, My name is Kelli. For all you newbies in here, I > wanted to tell you a little of my story. > > My little Em was given a Cat Scan at 8+ months old. > The CT read that she indeed DID have Synosis of both > left and rt Lamboidal Sutures. I was really freaked > out to say the least. After an appointment with a > specialist (who by the way didn't know to much about > infant plagio, ect...) who wanted us to have another > CT and more tests, we decided to hold off and start > with the DOC band, and if we hadn't seen results > within 4 weeks, we were going to pretty much fly > anywhere in the US for a professional that delt with > infants/plagio/cranio. > > Well, everyone, I'm here to tell you, we just > graduated, after 4 months only in the band. We went > from 10 months to 14 months. So.... not only did I > have an older baby, but one that was diagnosed with > possible cranio!!! > > I'm including my photo's again, so sorry everyone, if > you've seen them before, I appologize. I'll resend > with my next post. > > I went with a gut instinct I had that she was okay, > just needed redirection with her growth, and I came > out okay. > > Kelli and DOCgrad > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2002 Report Share Posted February 12, 2002 Kel, You go girl!! ;o) ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2002 Report Share Posted February 12, 2002 Hi . I'm so sorry for your misdiagnosis, and I pray all is well for you and your little one now. I too, was VERY scared, but I had gotten a little shifting for the good the couple of months while I WAS waiting for my insurance to decide. And I thought to myself, if indeed she DID have stenosis, wouldn't she continue to get worse?? and not better if however slight? That's what had me questioning. I had research cranio so VERY much on the net, and had seen all sorts of head shapes, and to me, she wasn't even close to be severe. I thought, with age, and a fused suture or two, the growth would have had to go somewhere, and made her head get worse in shape. I had read in one of the reports where there were many misdiagnosed babies that did indeed NOT need the surgery, and that xrays sometimes showed, when the plates of the suture are pressed together very tightly, they showed a fusion... In my case, or 's, that was the outcome. I've never felt such a complete lift off of my shoulders, the day I realized that her band was indeed shifting her growth. I was so very nervous about surgery. But.... If we had indeed needed it??... I would have gone to Chicago, or where ever needed, to Doctors that actually KNEW what they were doing, and of course, had done the surgery before several times with great outcome. It's truely amazing the feeling I have for my baby. I had NO clue how protective I would be about anyone touching my baby, much less doing surgery on them. It was bad enough I was in denial from 6 months to 8 months, and refused to have my baby seen for this problem. I kept thinking, hey, I'm seeing results.... but by 8 months, I realized, oh boy, she's really not correcting....sigh. Then at 10 months, we finally banded. Now, if at 4 to 5 months, when I continually voiced my concerns about her head, and he had told me, okay do this, I would have started right away... Those two months of waiting for insurance, I got myself as educated as possible via net, printed tons and tons of info, ect... By the time I got her band, I felt no qualms, or fears, except that maybe it may not work... I was totally happy to have it started. NOW>.... lol, I have a bruised headed child....sigh, yep, she's used to banging her little noggin, and is just not starting to realize, that hey, this hurts, I'd better treat my head better....lol. So very sorry for my running on story....lol. Darn, hey ... how's this??? lol Kelli and DOCgrad __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2002 Report Share Posted February 12, 2002 Your welcome . I just wanted to show you my side. I know during my time of questioning, I wanted so many different sides of view. I pray that your little one doesn't have Cranio. But if your baby does, let us all know and we'll all pray for you and your beautiful little one. Kel __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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