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Hi

I have been a member of the torticollis group for a little while. My

son was diagnosed with tort at 5 months. When he was 2 mths I

mentioned to his peditrician that he had a flat spot on the back of

his head but he said lets wait and check it at 4 mths. At 4 mths I

mentioned it again and he sent me to a neurologist which took a month

to get an appointment. He sent us to physical therapy for the tort

which was once a week but recently within the past 2 weeks upped to 3

times a week from an orthopedic doc we just started seeing.

I was scared of the helmet and because they never said his plagio was

severe I didn't put him in it. The doctor kept saying it is up to

me. Two peditricians and the orthopedic didn't think it was that

bad. Well now he is 8 mths old and we went back again this past

Monday and as probably all of you know we are wortking againt time so

my husband and the doc still think it is a good idea to at least try

the helmet at this point hoping it will do some good. I agreed to

it but I am so scared I'm going to make my baby so miserable. I

can't imagine him sleeping in it without crying. Between his tort

with is very noticeable and he has had a tough winter with pneumonia

and he is on his third ear infection now he maybe headed for tubes in

his ears I feel like I'm only going to be making his life harder. I

did read that someone as an adult had wished they had treatment when

they were younger to keep from being made fun of. Of course that is

the last thing I would want to happen to my son.

He is also going to be getting a tot collar for his tort and when he

is wearing that we won't be able to wear his helmet. His helmet will

be ready in 2 weeks. I'm sooooooooo nervous about it. We are hoping

that in 3 mths his head shows some improvement.

Sorry so long I'm confused about the docband or starband I'm not sure

what kind of helmet we are getting. Now I just sound very uninformed.

Eileen & Adam