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Re: A better day!

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,

Whew! I was very relieved to read your post today. I cannot believe they

wouldn't have told you that they were going to write cranio for insurance

purposes. That's nice and everything, but a real good way to give a parent a

heart attack!!! GREAT news about the CT scan being moved to 2/26/02. That is

just around the corner and then you will have the information you need!

Hooray!!

I'm glad things are going a little better today. Here's hoping for more great

days ahead!!!

Marci (mom to )

Oklahoma

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It is great that your doctor was thinking about insurance coverage, but he

certainly should have let you know.

Were you seen by Karmel Ross or Lette? Just curious. I am

sorry that the drive was so hard...I agree that 6 hours one way is tough.

We had the option to fly (we had great rates and close airports) because we

did the 6 hour drive to Chicago for the first appointment and decided it was

too much. Flying had its own challenges, but we did much better with it.

Please let me know when you are coming this way again. Maybe I can help

with suggesting a place to stay ( I can look into locations and rates for

you - I wonder if any local hotels would offer discounts for medical

travel??) I would be happy to help out. I would love to offer a room for a

night, but we just don't have the extra space.

Maybe the PT was being a bit overly pessimistic about the amount of

correction you would get, or maybe just trying to be cautious. It was great

to hear all of the responses over the weekend about what wonderful

correction was obtained even with older children than .

Keep your head up!!!

Take care,

Sue

Cleveland (Wickliffe actually) OH

A better day!

> Thanks to everyone for all the kinds words when I was feeling down.

> I'm feeling much better today! I got in touch with our neurosurgeon's

> office and they said the doctor wrote craniosynostosis on the order

> for 's CT scan just for insurance purposes so that they would

> pay for it. It would have been nice if they would have explained that

> to us ahead of time so that we didn't worry about it all weekend.

> But anyway, I'm just glad that 's chances of having cranio are

> once again low. More good news is that we got 's CT scan moved

> up from March 6th to Feb. 26th. So we should be able to get going

> with the casting of the band shortly after that. I know there are

> more tough days ahead (casting, insurance battles, etc...) but I feel

> so much better now that we are least on our way to getting help for

> . It is great to have this group for information and support

> during those really hard moments. Thanks

>

> MI

>

>

> For more plagio info

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